8th European Patients’ Rights Day

May 12-13 2014
VM3 (2nd floor) Van Maerlant Bulding, 2, rue Van Maerlant, 1040

Active Citizenship Network (ACN) has decided to dedicate the 8th celebration of the European Patients’ Rights Day 2014 (launched by ACN in 2003) to:

“The role of citizens' organisations in the empowerment of patients with chronic diseases”.

The patient empowerment does have two different but complementary dimensions:
1. Improvement of a person’s capabilities to effectively self-manage his/her chronic disease;
2. Enhancement of patient groups’ capacities to participate efficiently in health policies.  
In both cases, citizens’ organisations – which include self-help groups, associations of patients with a chronic disease, networks and umbrella organisations - play an essential role. Patients’ organisations educate and support individual patients and their families, while networks and umbrella organisations contribute to build their capacities to participate in the policy-making. 

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Cittadinanzattiva has more than 30 year experience in the citizens’ rights protection in healthcare sector started with its Tribunal for patient’s  rights (Tribunale per i diritti del malato) in 1980 and strengthened  through the National Coordination of  the Association of patients affected by chronic diseases in 1996.
Some of the areas we decided to strengthen in the last years are pregnancy, maternity and fertility protection and defense, intervening particularly on this last topic in order to overcome prejudices and fears, explaining the opportunities given by the current regulatory framework to couples who want to have children but have difficulties in the conception.
The commitment of Cittadinanzattiva can be demonstrated with different kind of activities:

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The Commitment Of Cittadinanzattiva-Active Citizenship Network In The Prevention Of Cerebro And Cardiovascular Diseases

Cittadinanzattiva has more than 30 year experience in the protection of citizens' rights in the health sector, which initiated with its Tribunale per i diritti del malato ("Tribunal for Patients' Rights" or TDM) in 1980 and was later strengthened through the Coordinamento nazionale Associazioni Malati Cronici (National Coordination Centre of Chronic Patients' Associations) in 1996.
In spite of the fact that about 97% of health budgets are presently spent on treatment, whereas only 3% are invested in prevention (EU Commission 2013), we are convinced that prevention is imperative. CVDs are the number one cause of death globally: more people die annually from CVDs than from any other cause. The number of people who die from CVDs, mainly from heart disease and stroke, will increase to reach 23.3. million by 2030. CVDs are projected to remain the single leading cause of death. At a European level, the, the European Heart Network calculated that the cost for the treatment of cerebro and cardiovascular diseases is more than 196 billion euros each year.

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Network News

Energy and gas: protection for citizens at risk of poverty

After the presentation to the Senate of our dossier in terms of fuel poverty, "Energy and chronically ill", made with Acquirente Unico, the Authority for Electricity and Gas has shown not only to be able to act very quickly on important issues, but also to carefully consider the "civic" information produced by the associations.

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