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VII European Patients’ Rights Day

 "European Citizens' rights: patients' involvement and Cross Border Care"
16th May 2013 – Brussels

 

The objective of the 2013 Conference is to promote the involvement of citizens' and patients' organisations in health policies in Europe, both in general and in the implementation of the Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare, which should be transposed in all EU Member States within 25 October this year.

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Campaign

The patients’ involvement on Health policies in Europe: the citizens voice in Cancer Care decision making process

Framework and rational
The patients' involvement and citizen participation are going to enter in the European Agenda of Health policy. Many studies have been promoted by scientists' society, private company, Public bodies, etc about the necessity of a citizens' engagement in the Health choices. The lack of financial resources and the economic crisis in one side and the growing of Health research and new requirements about diseases' treatments in the other side require different behaviors and innovative model of governance. Despite the studies and the widespread belief about citizens' engagement, there is not a systematic commitment on it at European and Member State level.

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PAIN PATIENT PATHWAY RECOMMENDATIONS

Framework
The commitment against unnecessary pain is going to enter in the European Agenda of Health policy. A lot of data have been collected by scientists' society, private companies and governments, etc. about the diffusion of chronic pain and its societal and economical impact. New laws, as the Italian one, have proposed innovative contents to put in practice.
At the same time the willing of patients' organizations to have an even more active role in the commitment for reducing pain and in the promotion of a new policy on pain relief is growing. Recently, it was founded a new coalition of patients' and citizens' organizations, named PAE (Pain Alliance Europe), with the mission to represent the point of view of patients in the European pain policies.

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Network News

Energy and gas: protection for citizens at risk of poverty

After the presentation to the Senate of our dossier in terms of fuel poverty, "Energy and chronically ill", made with Acquirente Unico, the Authority for Electricity and Gas has shown not only to be able to act very quickly on important issues, but also to carefully consider the "civic" information produced by the associations.

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