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XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019

XIII Giornata

The 13th European Patients’ Rights Day (EPRD) will be celebrated at the European Parliament in Brussels by Active Citizenship Network (ACN) on April 2019.

The 2019 conference titled “Delivering patient value throughout the healthcare system” will have a twofold structure:

a multi-stakeholder event focused on “A Debate on citizens' expectations” on April 9th (12:30 - 15:00)
and
a mono-stakeholder event focused on “Digital Health and Personalized Medicine” on April 10th  (10:00 – 12:30).

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Campaign

The Engagement of Cittadinanzattiva-Active Citizenship Network on Therapeutic Adherence

At the National level
The topic of therapeutic adherence was addressed by Cittadinanzattiva through the National Coalition of Associations for Patients Suffering Chronic Diseases (CnAMC). The CnAMC is a network of Cittadinanzattiva established in 1996, which represents an example of crosscutting alliance between associations of people with chronic and rare diseases for the protection of their rights. It has about one hundred members.

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Our policy on patient safety: focus on Healthcare-Associated Infections (HAIs) and Antimicrobial Resistance (AMR)

Our commitment on the topic
Since its inception in 1978, Cittadinanzattiva Onlus has worked continuously to advocate for safer healthcare, first at the National level and then also at EU level through its international branch called Active Citizenship Network (ACN). In particular, in 2002, ACN drafted the European Charter of Patients' Rights together with other patient associations from 15 different countries. The Charter underlines, among others, the Patients’ Right to preventive measures, the Patients’ Right to the observance of quality standards, the Patients’ Right to safety, the Patients’ Right to Innovation.

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Network News

#MakeWorkWork for those affected by Neurological Disorders and Chronic Pain Conditions

Active Citizenship Network supports the Written Declaration, under Rule 136 of Parliament’s Rules of Procedure, on access to employment for those affected by neurological disorders and chronic pain conditions. The initiative is promoted by the European Federation of Neurological Associations (EFNA) and Pain Alliance Europe (PAE) with the aim to encourage research into and access to innovative treatments, promote prevention and self-management approaches, decrease stigma and work together to improve quality of life for people living with these disabling conditions.

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4 March 2016 - Improving patients’ rights in the age of the Cross Border Healthcare Directive

Active Citizenship Network organized a webinar-conference on 4 March 2016 in Rome, on the topic of “Improving patients’ rights in the age of the Cross Border Healthcare Directive”. The event involved online and on-the-spot participation of national and international experts to debate the European Directive on patients’ rights in cross-border healthcare and the current state of its implementation throughout Europe.
On this occasion, the communication campaign “Patients’ rights have no borders” has been presented for the first time.
Read more about the event here.

Progetti

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