The EU Commission produced a short video to inform patients about their rights, and to advise them on things they should consider before going abroad for treatment. You can also find a leaflet, the principal Questions&Answers on the Directive and the list of the National Contact Point.
At European level, Active Citizenship Network addresses the EU Institutions so that they become facilitators and guarantors in:
building a network of National Contact Points;
begin a proper dialogue between the National Contact Points and the various stakeholders identified by the Directive as necessary interlocutors and at the same time striving to involve associations for patients and for the protection of rights;
promote opportunities for discussion and debate on the subject, for example within the EUHPF in order to disseminate awareness and maintain high attention to the important changes introduced by the Directive;
monitor the problems citizens may encounter while dealing with cross-border healthcare;
ensure that the development of e-health, urged by the Directive, may be safely carried out and without exposing the Member States to the risks of scams and frauds;
convey a European-oriented message built upon these new rights and provisions in healthcare which would help strengthen the sense of belonging to the European community.
(written in October 2013)
The Patients'Forum organized by Active Citizenship Network and Pain Alliance Europe last 22-23 October, 2013 it was the occasion to develop concrete proposals for the improvement of pain management in Europe: recommendations against pain, according to the patients point of view, for a good Health policy on chronic pain relief. With the Patients' Forum it started the II step of the project "Pain patients' pathway recommendations".
"European Citizens' rights: patients' involvement and Cross Border Care"
16th May 2013 – Brussels
The 2013 Conference promoted the involvement of citizens' and patients' organisations in health policies in Europe, both in general and in the implementation of the Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare, which should be transposed in all EU Member States within 25 October this year.
The patients’ involvement on Health policies in Europe: the citizens voice in Cancer Care decision making process
Framework and rational
The patients' involvement and citizen participation are going to enter in the European Agenda of Health policy. Many studies have been promoted by scientists' society, private company, Public bodies, etc about the necessity of a citizens' engagement in the Health choices. The lack of financial resources and the economic crisis in one side and the growing of Health research and new requirements about diseases' treatments in the other side require different behaviors and innovative model of governance. Despite the studies and the widespread belief about citizens' engagement, there is not a systematic commitment on it at European and Member State level.
The commitment against unnecessary pain is going to enter in the European Agenda of Health policy. A lot of data have been collected by scientists' society, private companies and governments, etc. about the diffusion of chronic pain and its societal and economical impact. New laws, as the Italian one, have proposed innovative contents to put in practice.
At the same time the willing of patients' organizations to have an even more active role in the commitment for reducing pain and in the promotion of a new policy on pain relief is growing. Recently, it was founded a new coalition of patients' and citizens' organizations, named PAE (Pain Alliance Europe), with the mission to represent the point of view of patients in the European pain policies.
Cittadinanzattiva (Active Citizenship) and SiHTA (Italian Society of HTA)have signed an agreement for the promotion of a summer school for civic leaders HTA in November 2011. The agreement is focused on three shared issues: 1) the need to support the development of HTA as a tool of government qualified public spending in a context of strong reduction of resources, 2) the absence in Italy of the citizens' involvement in the processes of evaluation, and 3) the lack of civic leadership aware and sufficiently informed.
- Community PRO (Participation Resilience Organizing)
- ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups
- ENGAGE – Engage Society for Risk Awareness and Resilience
- EUROPEAN PATIENTS’ RIGHTS DAY 2022
- European Pillar of Social Rights & the commitment of Cittadinanzattiva
- European Pillar of Social Rights & chronic pain
- European Pillar of Social Rights & COVID-19 emergency
- European Pillar of Social Rights & childcare and support for minors
- AMR Patient Alliance – developing educational repository for patient and caregiver awareness of drug resistant infections
- The role of the European Pillar of Social Rights ambassadors
- THE ENGAGEMENT OF CITTADINANZATTIVA IN THE FIGHT AGAINST THE COVID-19 PANDEMIC
- NIGHTINGALE - Novel Integrated Toolkit for Enhanced Pre-Hospital Life Support and Triage in Challenging and Large and Demanding Emergencies
- The successful experience of Polart Circle
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