XVI European Patients’ Rights Day: from the Conference on the future of Europe and NRRPs still little participation of citizens in defining health priorities (21st APRIL 2022)
Focus on Italy: little openness of the institutions both in the definition of priorities and in the implementation of the NRRPs.
Civic organizations and social partners not sufficiently involved in the definition of priorities and the implementation procedures of the National Recovery and Resilience Plans (NRRPs): this is generally valid as denounced for some time by the European Economic and Social Committee, and in particular in terms of health public, as emerged from the survey conducted by the European branch of Cittadinanzattiva, Active Citizenship Network, and presented on the occasion of the 16th Edition of the European Patients' Rights Day, which took place online on 20 and 21 April 2022.
Specifically, by questioning 38 patient and rights protection associations from 18 countries, it emerged that in most cases they have not been involved by institutions in the definition of public health priorities. The majority replied that they were not involved at all (35%) or had not been informed of these processes (22%), while 35% responded positively. However, of the latter, only 13% were involved in the consultation processes from the outset, while 11% were very limited.
FIVE PROJECTS AWARDED TODAY AS BEST PRACTICES IN THE 3RD EUROPEAN CIVIC PRIZE ON CHRONIC PAIN PROMOTED BY ACTIVE CITIZENSHIP NETWORK-CITTADINANZATTIVA (17 JUNE 2021)
Five best practices have been awarded today during the event titled “Patients’ right to avoid pain: reducing the burden of COVID-19, promoting best practices across EU”. It has been hold in the framework of the cycle of Eu Webinars «Health at the heart of the future of Europe», which the Italian NGO Cittadinanzattiva-Active Citizenship Network (ACN) will hold to feed the debate of the Conference on the Future of Europe and it included the Award Ceremony of the bi-annual project: “European Civic Prize on Chronic Pain Collecting Good Practices”, la cui terza edizione has been realized with support of Pfizer Inc.
This multi-stakeholder event - which involved civil society, patients, experts, institutions - provided an occasion for demonstrating what the community can offer in terms of good practices, as well as sharing experiences useful for raising awareness about the condition, enhancing the knowledge of positive cases and success, and strengthening the commitment on this topic. Throughout 2020 and 2021, this initiative has allowed us to collect 44 Good Practices coming from 13 different countries: Spain (4), Italy (19), Portugal (5), Belgium (2), Germany (1), The Netherlands (1), Ireland (1),Denmark (1), UK (3), Austria (1), and from extra EU countries: 3 from USA, 2 from Canada, 1 from the Dominican Republic.
The role of civic society and Patients Advocacy Groups for more resilient Health Care Systems. 10 recommendations towards a European Health Union
In the role of needed changes towards more resilient healthcare systems, it is necessary to recognize the key role of Patients' Advocacy groups (PAGs), citizens’ organizations involved in healthcare issues and, more generally, of all actors that promote health as a common good. This is the message that came to light during the European conference of the 15th European Patients’ Rights Day, which started today and will end tomorrow, involving more than 150 civic society representatives from across Europe, members of the European Institutions and key stakeholders.
The event is promoted by Active Citizenship Network, the European branch of the Italian non profit organization Cittadinanzattiva. and has been realized thanks to the unconditional support of: F. Hoffmann-La Roche LTD, Teva Europe, Boehringer Ingelheim International GmbH and Viatris.
Global Health Summit: Active Citizenship Network, the EU branch of the NGO Cittadinanzattiva, send a video message and 10 concrete proposals to the institutions called upon to discuss how to prevent future global health crises - 21st May, 2021
Priority attention to non-Covid patients, especially oncological and chronic, in order not to lose the progress achieved in the last 20 years in terms of prevention and treatment. Ease of access to health services and medicines to reduce inequalities and “leave no one behind”.
Investments to have more resilient health services and to support research for more equitable access to care and to address unmet health needs. Strong reference to the sense of responsibility at all institutional levels in order to transform into acts the spirit of solidarity between countries which is a precondition for dealing with crises worldwide.
These, in summary, are the main messages hosted in the video created by Active Citizenship Network, the European branch of the Italian NGO Cittadinanzattiva, and addressed to the political leaders and experts gathered today in Rome on the occasion of the Global Health Summit, co-organized by the European Commission and Italy as chair of the G20. Here is the link to the video
Sustainable Development Goals: the Inter-Institutional Group promoted by civic organizations for an inclusive and sustainable Europe is born. Tomorrow the launch event!
Rome, 15February 2021
Civil society organizations, together with European Institutions to contribute to the achievement of the Sustainable Development Goals (SDGs): this is the main message of the new political initiative that will be launched at the European level, tomorrow, the 16th February, in the occasion of the conference “Making sustainability an easy choice for EU citizens”.
Promoted by Cittadinanzattiva – through its European branch Active Citizenship Network (ACN) – by the European Consumers Union association (ECU) and by the Italian Alliance for Sustainable Development (ASviS), theInter-Institutional Group “SDG’s for well-being and consumers’ protection” is currently supported by eight Members of the European Parliament (MEPs) from different countries and political groups: Nikos Androulakis (Greece – S&D); Tanja Fajon (Slovenia – S&D); Jose Gusmão (Portugal – GUE/NGL); Aldo Patriciello (Italy – EPP); Sabrina Pignedoli (Italy – NI); Giuliano Pisapia (Italy – S&D); Marcos Ros Sempere (Spain - S&D); Patrizia Toia (Italy – S&D).
- 18-19 november XIV EUROPEAN PATIENTS’ RIGHTS DAY - Fighting paradoxes on AMR in the age of Covid-19: One Health Approach is planned, multiple actions are required
- “WE WERE NOT BORN TO SUFFER ": campaign on the access to palliative care and pain therapy launched by Cittadinanzattiva
- 4 APPS AWARDED TODAY IN BRUSSELS AS BEST PRACTICES IN THE 2ND EUROPEAN CIVIC AWARD ON CHRONIC PAIN PROMOTED BY ACTIVE CITIZENSHIP NETWORK-CITTADINANZATTIVA (06 November 2019)
- XIII EUROPEAN PATIENTS’ RIGHTS DAY 2019, 10th April 2019 European Parliament
- Community PRO (Participation Resilience Organizing)
- ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups
- ENGAGE – Engage Society for Risk Awareness and Resilience
- EUROPEAN PATIENTS’ RIGHTS DAY 2022
- European Pillar of Social Rights & the commitment of Cittadinanzattiva
- European Pillar of Social Rights & chronic pain
- European Pillar of Social Rights & COVID-19 emergency
- European Pillar of Social Rights & childcare and support for minors
- AMR Patient Alliance – developing educational repository for patient and caregiver awareness of drug resistant infections
- The role of the European Pillar of Social Rights ambassadors
- THE ENGAGEMENT OF CITTADINANZATTIVA IN THE FIGHT AGAINST THE COVID-19 PANDEMIC
- NIGHTINGALE - Novel Integrated Toolkit for Enhanced Pre-Hospital Life Support and Triage in Challenging and Large and Demanding Emergencies
- The successful experience of Polart Circle
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