9th European Patients’ Rights Day

12 May 2015 
European Parliament, rue RueWiertz 60,
1047 Brussels

Active Citizenship Network (ACN) has decided to dedicate the 9th celebration of the European Patients’ Rights Day 2015 (launched by ACN in 2003) to the sustainability of healthcare systems focusing on what concerns chronic diseases.
Chronic diseases represent the major share of the burden of disease in Europe and are responsible for 86% of all deaths. They affect more than 80% of people aged over 65 and represent a major challenge for health and social systems. An estimated € 700 billion per year (it means 70 to 80% of overall EU health care budgets)  are spent on chronic diseases in the European Union. Moreover, we need to keep in mind the increasing demands for expensive medical technology that are made by a society that is ageing rapidly. In this context, the sustainability of our health and social systems is at stake. It is crucial to find new ways of investing in sustainable health systems, moving beyond limiting expenditure to addressing the demand for health and social services, much of which is related to chronic diseases.



The 9th edition of the European Patients’ Rights Day has been heald  in Brussels on 12 May 2015. Below is a list of the first organizations which have given us their support for the institutionalization:


8th European Patients’ Rights Day

May 12-13 2014
VM3 (2nd floor) Van Maerlant Bulding, 2, rue Van Maerlant, 1040

Active Citizenship Network (ACN) has decided to dedicate the 8th celebration of the European Patients’ Rights Day 2014 (launched by ACN in 2003) to:

“The role of citizens' organisations in the empowerment of patients with chronic diseases”.

The patient empowerment does have two different but complementary dimensions:
1. Improvement of a person’s capabilities to effectively self-manage his/her chronic disease;
2. Enhancement of patient groups’ capacities to participate efficiently in health policies.  
In both cases, citizens’ organisations – which include self-help groups, associations of patients with a chronic disease, networks and umbrella organisations - play an essential role. Patients’ organisations educate and support individual patients and their families, while networks and umbrella organisations contribute to build their capacities to participate in the policy-making. 


8th European Patients’ Rights Day - Conference Materials

"The role of citizens' organisations in the empowerment of patients with chronic diseases".
8th  European Patients’ Rights Day

May  12-13  2014

Conference Materials

The Program

Opening Remarks:
Tonio Borg,  Health Commissioner  (Video Message)
Ingrid Kössler, European Economic and Social Committee
Mariano Votta,  Director of Active Citizenship Network

Keynote Presentations about the empowerment concept in its complementary dimensions
Katja Neubauer, Deputy Head of Unit, Healthcare Systems Unit, DG SANCO
Rosa Suñol, EMPATHiE: the Study on "Empowering patients in the management of chronic diseases"
Birgit Beger, Secretary General, The Standing Committee of European Doctors (CPME)

 Keynote Presentations about different successful models to networking:
Mark Lawler, European Cancer Concord and Queens University Belfast
Tonino Aceti, National Coordinator, Italian Coalition of Associations for Patients suffering Chronic Diseases, CNAMC
Catherine Hartmann, European Chronic Disease Alliance (ECDA)
Kevin Walker, “Partnership to Fight Chronic Disease”,USA

Empowerment in chronic diseases: best practices
The REPORT:  Best practices on Chronic Patients and Organizations’ empowerment

Examples of National Best Practices from different EU Countries
Manuel Serrano, EUGENIE, Spain
Janet Mifsud, Caritas Epilepsy Association, Malta
Ugo Viora, National Association Rheumatic Patients, Italy

“Empowered patients are a resource”

The role of patient organizations in promoting and supporting life changing and life- saving research into treatments or cures for chronic diseases
David Taylor, UCL School of Pharmacy, UK (Moderator)
Patients' Needs, Medicines Innovation and the Global Public's Interests

Sustaining innovation and access
Nathalie Moll, Secretary General of EuropaBio

For further information please write to This email address is being protected from spambots. You need JavaScript enabled to view it.

Read the article ”European Patients’ Rights Conference – The role of citizens’ organizations in the empowerment of patients with chronic diseases” published by www.patientsandresearch.org and written by Rosemary Colucci on May 29, 2014.

Read the article ”European Patients’ Rights Conference – The role of citizens’ organizations in the empowerment of patients with chronic diseases” published by www.patientsandresearch.org and written byRosemary Colucci on May 29, 2014.

With the support of:
eu flag europe
The European Union,
in the framework of the Health Programme (2008-2013)

European Economic and Social Committee

This event has been made possible also thanks to an unrestricted educational grant from:

 novartis logo pharma logo 2014   pfizer logo





Good practices concerning mobility from a civic point of view

The reduction of mobility is not an option, but at the same time the transport sector is not sustainable, as reported by the European Commission itself. In this scenario, Active Citizenship Network, with the European project “Mobility, a paradigm of European citizenship” raises a new mobility pattern matching to more effective protection of the rights of travelers, a real involvement of all stakeholders, without which you can not hit the ambitious objectives set at European level.

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