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In the framework of the European project #VITA and as a follow-up to the training on ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups ACN have launched the call to actionATMPs revolution & the respect of the patients’ right to access to care (for further information download the complete call to action).

Across Europe, a patient who wants to access an ATMPs (a reality of cure for patients suffering from serious diseases who have not yet found a concrete therapeutic answer) may face various obstacles of a social nature: lack of scientific knowledge, lack of regulatory uniformity and transparency, regional inequalities of access, and lack of public funds for this type of therapy.

For this reason, the following organizations have decided to endorse this Call to Action which is aimed at national and European Institutions first, but also at the whole health ecosystem including civic & patient associations, and citizens.

These are the associations that support the initiative:

International

     

Global Alliance for Patients Access

cropped GAfPA Logo sm

IAPO Patients for Patient Safety Observatory

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International Alliance of Patients’ Organizations (IAPO)

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International Patient Organisation for Primary Immunodeficiencies

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Thalassaemia International Federation

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European

     

euPrevent

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European Liver Patients’ Association – ELPA

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AESEP

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National organizations

Albania

AMAD Center

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Albania Together for life

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Bulgaria

Together for Life

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Bulgaria

Association of Reproductive Health, Pregnancy and Childcare "Smile"

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Bulgaria

Alliance of Transplanted and Operated ATO "Future for All"

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Bulgaria

Association of Patients with Cardiovascular Diseases

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Bulgaria The Innovations Institute

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Croatia Centar za edukaciju i informiranje potrošača

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Cyprus

Cyprus Federation of Patients' Associations and Friends

img 12

France

Indecosa CGTIndecosa CGT

 

INDECOSA copia

Italy A.L.I.Ce

INDECOSA copia

Italy A.M.O.R

INDECOSA copia

Italy Associazione Nazionale Alfa 1-At

INDECOSA copia

Italy

AS.MA.RA

AS.MA .RA ONLUS ULTIMISSIMISSIMO

Italy

Cometa ASMME

AS.MA .RA ONLUS ULTIMISSIMISSIMO

Italy

Comitato Macula

AS.MA .RA ONLUS ULTIMISSIMISSIMO

Italy

CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE

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Italy

FAIS

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Italy

Società Italiana Attività Regolatorie, Accesso, Farmacovigilanza

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Kosovo

Patients' Rights Association in Kosovo

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Malta Malta Health Network

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Netherland Orphans Feeding FoundationOrphans Feeding Foundation

Orphans Feeding Foundation

Netherland EPECS

Orphans Feeding Foundation

Poland The Institute for Patient Rights and Health Education

The Institute for Patient Rights and Health Education

Portugal MOG Movimento Oncológico Ginecológico

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Portugal

Observatório Saúde dos Povos

 pagina associazioni VITA copia 2 html 27475f4e1435e298

Republic of Macedonia Studiorum

logo studiorum

Spain

Foro espanol de pacientes

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Spain

ASOCIACION GALEGA ASPERGER

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