Cittadinanzattiva is engaged in a project to promote at the European level the importance of access to advanced therapies by the highest possible number of patients in the light of the fact that by 2030 there could be as many as 60 advanced therapies that could change the life of 350 thousand patients, but to do this, the accounting system must be changed.
To raise awareness of this need, which is at the same time a great opportunity, Cittadinanzattiva, thanks to its EU branch Active Citizenship Network, will organize the following events: a training webinar, a call to action aimed at European decision-makers, and a policy dialogue with the EU Institutions and the involvement of the key stakeholders.
The general objective is to promote the importance of advanced therapies bringing the issue of access to the attention of the patient and civic associations and create consensus regarding the "Italian solution", that is, the fact of accounting for expenditure as a multi-year investment and not as a current expenditure (like a drug that runs out of results in the very short term). Stimulating widespread awareness of the rights to personalized treatments, innovation, and access. Promoting empowerment on the issue of advanced therapies. Strengthening, on the subject, the coalition between Patient and Citizen Associations in Italy and Europe. For further information consult the LinkedIn page or the project webpages (EN – IT versions).
Our recent press articles (all in IT language)
- Entro il 2030 in arrivo 60 nuove terapie geniche
- Terapie avanzate, serve cambiare le politiche di bilancio europee
- Le opportunità e le sfide delle nuove terapie avanzate (1 – 2)
