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CONFERENCE ON THE FUTURE OF A HEALTHY EUROPE: “Taking part in the decision-making process on health priorities” (14:30 – 16:00 CEST)
Given the current situation of uncertainty, the conference will be organized in a digital format. To virtually attend the conference, please register here (registration is mandatory).
Active Citizenship Network has recently signed a new Memorandum of Understanding with its historical Polish partner Instytut Praw Pacjenta i Edukacji Zdrowotnej, an association aimed at improving the situation of patients, increasing civic awareness of pro-health attitudes and influencing the shaping of national health policy. The Institute also works to integrate the community of patients' organizations, organizes regular meetings with key experts in healthcare, takes an active part in social consultations, and conducts advocacy in cooperation with patients' organizations, among other activities. I
Active Citizenship Network has recently formalized an agreement with the Cyprus Federation of Patients' Associations (CyFPA), an umbrella organization representing all the organizations of people with chronic and other diseases. CyFPA aims at supporting patients with a strong voice in the Cypriot community and ensuring that patients have access to holistic and equitable social health care, with quality and patient-centeredness. In this regard, Active Citizenship Network and the Cyprus Federation of Patients' Associations have welcomed the opportunity to collaborate to support each other’s initiatives on the empowerment and protection of patients, in particular those affected by chronic and rare diseases. Moreover, ACN and CyFPA will commit to raise awareness on the needs surrounding patient care and patients’ quality of life.
Active Citizenship Network is glad to announce an official new partnership with euPrevent, a Euroregional network that focuses on promoting cross-border health and sustainable partnerships to increase the quality of life of residents in the border region between the Netherlands, Belgium and Germany. In this regard, ACN and euPrevent have agreed to collaborate to increase protection of patients’ rights, diminish health inequalities among European Member States, and raise awareness on the needs surrounding patient care and patients’ quality of life.
Active Citizenship Network is happy to announce that it has recently signed a new Memorandum of Understanding with EPECS, a non-profit Dutch foundation that wants to give a voice to the citizens of the EU and wants to engage them in policy development processes. Active Citizenship Network and EPECS will support each other’s initiatives with the objective to promote and accelerate the empowerment and engagement of citizens and patients and their participation in European public policies, activities, and dialogues as a key step towards a more inclusive Europe.
Active Citizenship Network has signed an official agreement with the European Network of Fibromyalgia Associations(ENFA), whose aim is to promote fibromyalgia awareness among politicians, physicians, scientists and the general public at the European level. The primary goal of the network is to get fibromyalgia as a key topic in the European Health Programme. ACN and ENFA have agreed to cooperate to educate and provide training to citizens, patients, physicians, and all the other relevant stakeholders regarding chronic conditions of patients and have strengthened their partnership to enable advocates to confidently brief policymakers in the field of pain relief.
Active Citizenship Network is pleased to announce that a Memorandum of Understanding has been signed with the Asociación Española contra la Meningitis, which is currently the only non-profit organization fighting to defeat meningitis in Spain to protect the entire population from the consequences of this terrible disease.
In 2022 Cittadinanzattiva, through its European branch Active Citizenship Network, is engaged in an EU project to promote at the European level the importance of access to Advanced Therapy Medicinal Products (ATMPs), which development presents new opportunities for the treatment and prevention of a variety of diseases (gene diseases, oncological diseases and diseases with long prognosis) or for restoring, correcting or modifying compromised physiological functions in humans, including by correcting mutations acquired on a genetic basis. The relevance of these innovative therapies, however, places them at the centre of the discussion on health and health policy choices for the future and the sustainability of the health service. This will pose very delicate problems of choice and rationing in terms of access to treatment for patients, which could result in the treatment of fewer patients than eligible and therefore potentially treatable. A solution in terms of identifying the resources with which to finance them must therefore be tackled today so as not to arrive unprepared.
The "Italian proposal" provides for an installment of the cost of advanced therapies which at the moment are considered current expenses, but which, to be sustainable, should be considered as investments. The project will be developed through an EU training seminar, a policy dialogue with the main EU institutions, and a call to action aimed at European decision-makers to provide greater access to ATMPs.
This project will be carried out with the unconditional contribution of #VITA which includes: Celgene – Bristol-Myers Squibb, Gilead Sciences, PTC, Roche.
Cittadinanzattiva, through its European branch Active Citizenship Network (ACN), has become involved, together with the Spanish association ALCER, in the AMR Patient Alliance, developed by IAPO P4PS Observatory, with the aim to gather the voice of patients and involve all the relevant stakeholders around the issue of antimicrobial resistance (AMR). Patients need to play a much bigger role in the fight against antimicrobial resistance (AMR), as they are directly involved in over-prescribing, overuse and self-medication, the scale and effect of which is still unknown. In order to this global public health threat, ACN has committed to undertake three main activities: a training seminar on the topic; contribution to the development of a repository of AMR-related educational, informative, and awareness-raising materials for patient organizations, patients and caregivers; support to the course “Antimicrobial Resistance: Patient Role in Rational Use” accessible to all EU citizens and developed by IAPO P4PSO and PAIR Academy.
The drafting process of a Global Health Charter, promoted by Cittadinanzattiva, has started and will be presented by the end of 2022. The Global Health Charter, focused on the three central themes of health and well-being, environment, and social justice, wants to be a useful tool in pursuing the goal of global health, with the aim to sanction and protect concrete and enforceable rights and commitments, both by citizens and institutions in every context and territory. The work began with a survey carried out by Cittadinanzattiva at the national (Italy) and, thanks to its EU branch Active Citizenship Network, at the European level too, which involved citizens and associations from 24 different countries to sound out their level of awareness and perception on the theme of global health and to succeed in delimiting a perimeter of macro areas in order to decline the Charter in the most effective way possible. The project is carried out with the unconditional support of Janssen Italia, the pharmaceutical company of the Johnson & Johnson Group.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
