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Active Citzenship Network has recently published, on 11 April 2022, a new manuscript dealing with the topic of therapeutic adherence entitled “Encouraging Across Europe the Civic & Patient Advocacy Groups’ Engagement in The Implementation of National Resilience and Recovery Plans to Reduce the Burden of Covid-19 Pandemic on NCDs Patients’ Therapeutic Adherence”on the International Journal of Epidemiology and Public Health Research, a peer-reviewed journal that encompasses all aspects of epidemiology and community health. The article examines the data emerged from the EU civic survey “The impact of the Covid-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe”, conducted by ACN in the second half of 2021, which show the inadequate attention of institutions and the main stakeholders in relation to access and continuity of care for non-Covid-19 patients.
Active Citizenship Network has published in March 2022 a manuscript entitled "Supporting Non-Communicable Disease Patients in Time of The Covid-19 Pandemic: From Motivating Them to Qualifying the Role of Their Caregivers"on the international peer-reviewed Journal of Women Health Care and Issues, that aims to publish scholarly articles describing clinical examinations, investigative studies and practices related to etiology, diagnosis, treatment and prevention. In this context, the article published by ACN explores the impact of the pandemic on patients suffering from non-communicable diseases (NCDs). More in particular, the article discusses about the role of caregivers across Europe as invisible actors who informally help patients in the shadow, with considerable expenditure of physical and mental energy.
Last 10 January 2022, Active Citizenship Network has published a new article entitled “The National Recovery & Resilience Plans According to Citizens’ Perspective: From the Italian Case History to the XVI European Patients’ Rights Day” on the international peer-reviewed journal Clinical Research and Clinical Trials, which publishes original research, reports, editorials, reviews and commentaries on all aspects of pharmaceutical, clinical trials, researches and related medical research methodologies. The newly published manuscript discussed about the significance of the engagement and empowerment of all European citizens, Patients' Advocacy Groups (PAGs), citizens organizations involved in healthcare issues and, more generally, to all actors that promote health as a common good, as a way to improve the health system. More in particular, the article focuses on the promotion of civic participation in the drafting and implementation process of National Recovery and Resilience Plans (NRRPs).
In the framework of the media partnership with Epidemiology and Public Health Research (EPHR), a journal focused on research and reports discussing about public health, epidemiology and progress that have been made to enhance societies' healthcare internationally, Active Citizenship Network has published, last December 2021, a manuscript entitled “Influenza vaccination at the time of Covid-19: From the Italian case history to the “EU Flu Day”, discussing about how the national (Italian) and European contexts managed the administration of flu vaccination during the Covid-19 pandemic. To do this, the article puts forward the results emerged from the civic survey on the supply of flu vaccine doses conducted by Cittadinanzattiva in September 2020 across Italy and introduces the second EU survey entitled "Addressing the challenges of concomitant deployment of COVID-19 and influenza vaccination" launched by ACN on the occasion of the EU Flu Day 2021.
The XV European Patients’ Rights Day has been celebrated with a virtual event by Active Citizenship Network with its traditional format of a big multi-stakeholder conference focused on the role played by key actors in the decision-making process on health priorities. In particular, just before the end of the Conference on the future of Europe, the expectations and requests of citizens and Patients Advocacy Groups (PAGs) addressed to the institutions have been analysed. The first day of the 2022 conference was dedicated to the presentation to the EU Institutions of the outputs of the themes that emerged from health-related initiatives organized in the framework of the Conference on the Future of Europe. During the second day the discussion focused on analysing the actual level of citizen involvement by the Member States close to the approval by the European Commission of most of the NRRPs and their implementation at national level. Read more
The Swedish patients’ association FOKUS Patient, which is an official partner of Active Citizenship Network, organized three digital seminars from 19 to 21 April at lunchtime, from 12:00 to 13:00 CEST, dedicated to the right to information and the right to consent, which are Articles 3 and 4 of the European Charter of Patient’s Rights, drafted by Active Citizenship Network in 2002. The aim of the seminars was to address the relationship between access to information and patients’ rights in a Swedish context.
Active Citizenship Network’s Portuguese historical partner Associação de Doentes de Dor Crónica dos Açores (Chronic Pain Association of the Azores) celebrated the European Patients’ Rights Day 2022 at the local level in the Azores Islands. The theme chosen was "Mental Health as Prevention of Suffering in Chronic Diseases: strategies and testimonies" and, for the occasion, invited the Patients Association Força 3P from Oporto to the online webinar, which will take place on the 19th of April at 18:00 AZOT.
The European Association for Educational and Preventive Health in Epigenetics (AESEP), an official partner of Active Citizenship Network, and a supporter of the European Parliament Interest Group on Patients' Rights and Cross-border Healthcare, promoted the celebration of the XVI European Patients' Rights Day at the national level in Portugal, together with the Chronic Pain Association of the Azores, also an official ACN partner. For the occasion, the Director of Active Citizenship Network has been invited in the panel. The national celebration of the 2022 European Patients’ Rights Day took place on the 18th of April in a virtual format. Each year the theme is adapted to the emerging needs of the public health scenario of the country. This year, AESEP focused on “Women's Health - The Future of Health in Europe - Innovating in Prevention and Well-Being”.
DRIVE-Development of Robust and Innovative Vaccine Effectiveness is an Innovative Medicines Initiative focus on vaccination. A multistakeholder approach in health-related studies is an upward trend. Patient groups' engagement and involvement have particularly become important in vaccine research not only to ensure equity, accountability, and transparency but also to develop partnerships and networks and to include their perspective and need in the analysis. Active Citizenship Network (ACN) - as DRIVE patient collaborator representative - answered some key questions on the impact of Covid-19 in their work and the importance of their involvement in a project such as DRIVE.
As Member of the EU-Russia Civil Society Forum, Active Citizenship Network will join its next General Assembly that will take place online on 24 May 2022. In the past days the forum has launched an anti-war initiatives of Forum members and partners. For further information please consult their website.
Cittadinanzattiva APS
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