XIII European Patients’ Rights Day 2019 (9th April 2019)

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Delivering patient value throughout the healthcare system.
A Debate on citizens' expectations
9th April 2019, 12:30 - 15:00  Room JAN 4Q2

At the occasion of the XIII European Patients' Rights Day, on the 9th of April, a selection of candidates for the new EU Parliament - to be voted at the end of May 2019 - will be invited to discuss different priority topics linked to healthcare policies at EU level, including health promotion & disease prevention, value of and access to innovation.

To attend the conference, please register here by March 30th (registration is mandatory).

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XIII European Patients’ Rights Day 2019 (10th April 2019)

xiii european patients rights day 2019 10th april 2019

“Focus on Digital Health and Personalized Medicine”
10th April 2019, 10:00 - 12:30 Room PHS 7c050

At the occasion of the XIII European Patients' Rights Day, on the 10th of April there will be a dedicated event on Digital Health and Personalized Medicine to go into this topic that is related to several Patients’ Rights listed in the in the EU Charter of Patients’ Rights: the right to preventive measures (1st), the right to the observance of quality standards (8th), the right to safety (9th), the right to innovation (10th).

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TOWARDS HIGHER PATIENT SAFETY IN EUROPEAN HOSPITALS. Innovation in hygiene and sanification to reduce healthcare associated infections and antimicrobial resistance

5th February 2019
10.00 -12.00
European Parliament - Room ASP1E3
Hosted by MEP Brando Benifei, S&D

Agenda

 

Moderator: Brian Maguire, Journalist, EURACTIV

10:00 - 10:20 Welcome address
MEP Brando Benifei,
Group of the Progressive Alliance of Socialists and Democrats in the EP
Mariano Votta, Director of Active Citizenship Network

10:20 – 10:40 Overview
Charles Price,
Policy Officer for Antimicrobial Resistance and Healthcare-associated infection, European Commission Directorate for Public Health
Daniele Celotto, European network to promote infection prevention for patient safety (EUNETIPS)

10:40 – 11:00 The role of innovation in hygiene & sanification: a multicentre, prospective, intervention study
Elisabetta Caselli,
PhD - Section of Microbiology - Dept. of Medical Sciences, University of Ferrara
Luca Arnoldo, Hygiene and Public Health - Department of Medicine – University of Udine

11:00 – 11:45 PANEL DISCUSSION:
Denis Herbaux,
European Hospital and Healthcare Federation (HOPE)/Director PAQS
Giuseppe Banfi, European University Hospital Alliance (EUHA)/IRCCS Ospedale San Raffaele
Esther Calbo, European Regional and Local Health Authorities (EUREGHA)/Infection Control Program of Catalonia (VINCAT)
Melina Raso, Health First Europe

11:45 – 12:00 Comments from the floor and conclusions
Antonio Gaudioso,
Secretary General, Cittadinanzattiva

Read the Final remarks of Mariano Votta

To know more about the event click here

 

The event is realized thanks to the unconditional support of COPMA.

TOWARDS HIGHER PATIENT SAFETY IN EUROPEAN HOSPITALS. Innovation in hygiene and sanification to reduce healthcare associated infections and antimicrobial resistance

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On February 4th, 2019, Active Citizenship Network organized a European training seminar on patient safety & healthcare-associated infections (HAIs), opened to a selected number of leaders of patients’ associations and advocacy groups coming from twelve EU Member States plus an Extra EU Member State (Kosovo). During the seminar, the following topics were presented and discussed:

  • The overall public and private engagement on the topic;
  • The role of innovation to improve hygiene in the healthcare sector;
  • The case history of the innovative sanitation system PCHS®;
  • New strategies to advocate in this field of action.

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AGENDA

Facilitator: Brian Maguire, Journalist, EURACTIV

15.00 Welcome and Introduction
Mariano Votta, Director Active Citizenship Network

15.15 Infections and antimicrobial resistance and their impact on public health
George Griffin, President of the Federation of European Academies of Medicine (FEAM)

15.35 The commitment of the EU Commission on patient safety
Flora Kontopidou
, EU Joint Action on Antimicrobial Resistance and Healthcare Associated Infections

15.55 The case history of the innovative sanitation system PCHS®
Elisabetta Caselli
, PhD - Section of Microbiology - Dept. of Medical Sciences, University of Ferrara
Paola Antonioli, Specialist  in  Public  Health  -  Hospital  Hygiene  &  Healthcare  Associated  Infection  Risk  Management, Azienda Ospedaliero - Universitaria of Ferrara

16.45 - 16.55 Coffe Break  

17-10 Global infection prevention and control priorities 2018–22: a call for action
Daniele Celotto
, European network to promote infection prevention for patient safety

17.30 How can civic society be engaged on patient safety?
Daniela Quaggia
, Senior Project Manager, Cittadinanzattiva

17:45 Final discussion/questions

 

Documents and further information:

Download the speakers’ biographies and the minutes of the event.

To see all the pictures, visit our FB page.  

To know more please write to: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

The initiative has been realized with the unconditional support of Copma


Making Patients voice matter: the role of value added medicines EU workshop co-organized by Medicines for Europe and Active Citizenship Network

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On November 20th, 2018, in line with their increasing cooperation in the field of patients' rights, Cittadinanzattiva Onlus, through its international branch the Active Citizenship Network, and Medicine and for Europe, through its Value Added Medicines Group, co-organized an European workshop in Brussels on value added medicines. Starting from the Patients’ Right of Access, the Patients’ Right to Innovation and the Patients’ Right to Personalized Treatment, the initiative provided a selected number of leaders of patients’ organizations and advocacy groups across Europe with an updated overview about value added medicines and facilitated an exchange of views on key policy developments linked to them.

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Making visible the invisible on Chronic Pain: sharing successful experiences from Spain to Europe

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Pain Euro-Mediterranean Coalition Annual Meeting 2018

6 May 2018 from 09:00 - 11:00
Location: Hotel Occidental Menorca

PROGRAMME

08:30 Registration & Accreditation

Chair
Alfonso Vidal Marcos, Jefe de servicio anestesiología reanimación y director de la unidad del dolor Hospital Quirón salud Sur Alcorcón Madrid. Profesor asociado de anestesióloga de la universidad complutense de Madrid

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Active Citizens in Europe advocate for vaccination

Action plan to improve the awareness on vaccine benefit across Europe

Active Citizenship Network strongly believe that vaccination is a right and an extraordinary tool of public health, which must be known, valued, spread and used in the interests of individuals and the community. However, it is necessary to work and contribute to a proper vaccine culture. In addition, it is necessary to ensure rigor and transparency, in order to recover confidence in science.

For this reasons, after the successful event “The challenges of life-course vaccination to enhance public health protection in Europe: a multi-stakeholder approach", ACN will organize a new public event to reflect, in a multi-stakeholder environment, on the commitment of EU Institutions to the topic and to produce a proposal of positioning to strengthen the cooperation among all relevant actors. It would contribute to a more integrated policies cooperation to the theme, avoiding any silos approach.

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From local to global: promoting societal impact of pain “SINE DOLORE WORLD PARK”

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From local to global: promoting societal impact of pain
“SINE DOLORE WORLD PARK”

26 April 2018
11.00 - 12.30
Room “Loyola de Palacio” (JAN 6Q1), European Parliament, Brussels

 

The event was hosted by the MEP Rosa Estaràs Ferragut and organized by Sine Dolore European Pain Foundation in partnership with Active Citizenship Network.
The aim of the initiative was to present to the EU Institutions and relevant stakeholders the unique experience of the SINE DOLORE WORLD PARK, the first theme park in the world against pain and for the quality of life. During the event were shared and discussed other awareness experiences, gathered across Europe, and their contribution to promote a societal impact of pain.

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The challenges of life-course vaccination to enhance public health protection in Europe: a multi-stakeholder approach.

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28th  February 2018
ASP A1E201
11.00 -13.00
European Parliament 

Draft Programme

 

10:30 Registration & Accreditation
Meeting point: Info Point on the left of Altiero Spinelli (ASP) entrance from Place du Luxembourg

Moderator:  Suzanne Wait, Health Policy Partnership

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Cross-border healthcare and centres of excellence to enhance patients’ rights: access, information and innovation

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27 February 2018, 15.00-17.00
Room (ASP 3H1)
European Parliament, Brussels

Programme

14:30 – 15:00 Registration & Accreditation
Meeting point: Altiero Spinelli (ASP) entrance from Place du Luxembourg

Chair: Stephen McMahon – Irish Patients’ Associations

 

15:00 – 15:15 Welcome address and keynote presentation

  • MEP Patrizia Toia (Italy) Group of the Progressive Alliance of Socialists and Democrats in the European Parliament
  • Mariano Votta – Director of Active Citizenship Network

 

15:15 – 15:50 ERNs and centres of excellence: a challenge beyond borders

  • Nora Kajtar – Policy Officer, European Commission - Cross-Border Healthcare & eHealth Unit
  • Maurizio Scarpa – Coordinator European Reference Network for Hereditary Metabolic Diseases (MetabERN), Chair of the ERN Coordinators Working Group
  • Luca Sangiorgi –  Coordinator, European Reference Network on Rare Bone Diseases (ERN BOND)

 

15:50 – 16:45 Experiences & perspective concerning cross-border healthcare. Proposals on how to contribute to improving patients’ access and information

  • Beatrice De Schepper – European Huntington Association - Patient representative in the ERN RND (Rare Neurological Diseases) 
  • Gábor Pogány President of Hungarian Rare Diseases Federation, member of the EURORDIS Patient Advocacy Group (E-PAG) on ERNs
  • Jasna Karacic – Croatian Association for the Promotion of Patients' Rights
  • Pascal Garel – European Hospital and Healthcare Federation (HOPE)
  • Giuseppe Banfi - Scientific Director Istituto Ortopedico Galeazzi
  • Scott Pescatore – General Manager for Rare Disease EU, Novartis Oncology
  • Brian Kennedy – Global Alliance for Patient Access

 

16:45 – 17:00 Debate

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