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9th European Patients’ Rights Day

May 2015 
European Parliament, rue RueWiertz 60,
1047 Brussels

Active Citizenship Network (ACN) has decided to dedicate the 9th celebration of the European Patients’ Rights Day 2015 (launched by ACN in 2003) to the sustainability of healthcare systems focusing on what concerns chronic diseases.
Chronic diseases represent the major share of the burden of disease in Europe and are responsible for 86% of all deaths. They affect more than 80% of people aged over 65 and represent a major challenge for health and social systems. An estimated € 700 billion per year (it means 70 to 80% of overall EU health care budgets)  are spent on chronic diseases in the European Union. Moreover, we need to keep in mind the increasing demands for expensive medical technology that are made by a society that is ageing rapidly. In this context, the sustainability of our health and social systems is at stake. It is crucial to find new ways of investing in sustainable health systems, moving beyond limiting expenditure to addressing the demand for health and social services, much of which is related to chronic diseases.

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Campaign

Patient Declaration on Medical Research, Innovation and theGlobal Search for Cures

Throughout the world, health outcomes have improved dramatically over the past decade. The key to this global health progress has been and continues to be the advance in science-based, medical innovation, including new procedures, diagnostics, health technologies and medicines.

While progress has been made, there is still an urgent need to accelerate the pace of drug discovery and research for tomorrow’s cures to address unmet health needs and to reduce the global and economic burden of illness and disease.

There is also much that must be done to strengthen health systems to ensure that these advancements reach the patients who need them. As Margaret Chan, Director-General of the World Health Organization (WHO) says, “Health systems are the foundation for better health. All the donated drugs in the world won’t do any good without an infrastructure for their delivery.”  

We, the undersigned, call on national governments around the world to support the global search for new treatments and cures through policies that support, incentivize and promote medical discovery and innovation.

AND

We call on governments around the world to commit to providing sustainable health care delivery, so that people who need treatment and medicines can get them, no matter what their financial standing. Governments should ensure patient and citizen involvement in health policy development and transparency in their decision-making processes.

Let’s sign!

The Declaration is meant to be subscribed by civic and patients’ organizations and all relevant stakeholders.

To subscribe it, please send anemail to: This email address is being protected from spambots. You need JavaScript enabled to view it.

The Document will be presented in the European Parliament in Brussels in 2015 during the 9th edition of the European Patients’ Rights Day with the name/logo of endorsers.

To download it, click here

THE COMMITMENT OF CITTADINANZATTIVA FOR MATERNITY AND NATALITY PROTECTION

Cittadinanzattiva has more than 30 year experience in the citizens’ rights protection in healthcare sector started with its Tribunal for patient’s  rights (Tribunale per i diritti del malato) in 1980 and strengthened  through the National Coordination of  the Association of patients affected by chronic diseases in 1996.
Some of the areas we decided to strengthen in the last years are pregnancy, maternity and fertility protection and defense, intervening particularly on this last topic in order to overcome prejudices and fears, explaining the opportunities given by the current regulatory framework to couples who want to have children but have difficulties in the conception.
The commitment of Cittadinanzattiva can be demonstrated with different kind of activities:

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Network News

Energy and gas: protection for citizens at risk of poverty

After the presentation to the Senate of our dossier in terms of fuel poverty, "Energy and chronically ill", made with Acquirente Unico, the Authority for Electricity and Gas has shown not only to be able to act very quickly on important issues, but also to carefully consider the "civic" information produced by the associations.

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