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SUPPORT THE EUROPEAN PATIENTS’ RIGHTS DAY!

The 9th edition of the European Patients’ Rights Day has been heald  in Brussels on 12 May 2015. Below is a list of the first organizations which have given us their support for the institutionalization:

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Campaign

Active for Young Professionals

Since 2014, Active Citizenship Network has launched both in Italy and abroad an action and awareness programme called “Active for Young Professionals”, whose main targets are university students and graduates. This led us to:

  • host interns and volunteers from different Universities;
  • support and collaborate with the student’s dissertation, for example:
    • “Citizenship in transformation: the process of horizontal ‘Europeanization’ in the healthcare sector. The case of patients’ rights protection of CittadinanzattivaOnlus”, discussed in October 2014 at the University of Bologna (Italy).
    • Application de la méthode d'analyse stratégique à une organisation non lucrative d'utilité sociale italienne: exemple d'une reforme qui a 'securisé une zone d'incertitude”, completed at the University SciencesPo Paris (France), postgraduate degree in European Affairs, course of “Théorie des organization”.
  • stipulate a triennial agreement, on 8 September 2014, with John Cabot University regarding internships. John Cabot University is an American institution in the heart of Rome with students coming from 60 different countries.  John Cabot University and Cittadinanzattiva Onlus both share the common goal to facilitate the intern’s professional choice by providing direct knowledge of the labor market and provide a complete training with appropriate study and work. For further information please click here.

Internal and external goals of the agreement
The agreement between John Cabot University and Cittadinanzattiva is especially significant  as it gives the opportunity to:

  • offer students and graduates a work experience to develop their knowledge on European policies;
  • promote new skills in the tertiary sector;
  • spread in a professional manner and at the international level the “the culture of civic participation and civic rights protection”;
  • provide young citizens the opportunity to contribute, interact and participate in the construction of a “closer” Europe that should be more democratic, open, richer and united in spite of its cultural differences, in order to develop a “European Union citizenship”;
  • develop among young people a sense of a European identity based on common values, history and culture;
  • spread among young people the activities that Cittadinanzattiva accomplishes in Italy and abroad, such as through the “Career Fair”, periodically organized by John Cabot University;
  • bolster the activities organized by the European Branch of Cittadinanzattiva, Active Citizenship Network, which deals with European and international policies;
  • strengthen the collaboration with John Cabot University’s professors on topics related to Active Citizenship Network’s activities.

Biannual internships starts from 2015!
On 12 January  2015, began the first biannual internship at Cittadinanzattiva Onlus. Active Citizenship Network  welcomes at its headquarters in Rome preselected interns by John Cabot University, with a preference for students in Business Administration, Communications, Economics and Finance, International Affairs, International Business or Political Science.

  • Under the Italian law, the internship does not represent any working or collaboration contract;
  • During the internship, the training and orientation activity is followed and checked by a tutor chosen by Cittadinanzattiva Onlus;
  • Each intern is assigned a project which aims to use the skills related to the work that Cittadinanzattiva Onlus deals with at the European and international level;
  • The intern will be integrated in the Active Citizenship Network’s staff.

For more information on the internships in Rome and Brussels, send an email to: This email address is being protected from spambots. You need JavaScript enabled to view it.

Patient Declaration on Medical Research, Innovation and theGlobal Search for Cures

Throughout the world, health outcomes have improved dramatically over the past decade. The key to this global health progress has been and continues to be the advance in science-based, medical innovation, including new procedures, diagnostics, health technologies and medicines.

While progress has been made, there is still an urgent need to accelerate the pace of drug discovery and research for tomorrow’s cures to address unmet health needs and to reduce the global and economic burden of illness and disease.

There is also much that must be done to strengthen health systems to ensure that these advancements reach the patients who need them. As Margaret Chan, Director-General of the World Health Organization (WHO) says, “Health systems are the foundation for better health. All the donated drugs in the world won’t do any good without an infrastructure for their delivery.”  

We, the undersigned, call on national governments around the world to support the global search for new treatments and cures through policies that support, incentivize and promote medical discovery and innovation.

AND

We call on governments around the world to commit to providing sustainable health care delivery, so that people who need treatment and medicines can get them, no matter what their financial standing. Governments should ensure patient and citizen involvement in health policy development and transparency in their decision-making processes.

Dear participants of the next European Patients'Rights Day conference,

Active Citizenship Network would like your opinion, before the conference, on one of the document we would like to produce as output of this European Day: the “Patient Declaration on Medical Research, Innovation and the Global Search for Cures”.

It's objective is to raise awareness about the importance of incentivize medical research and innovation that addresses unmet patient needs and to show that there is support among patient organizations. In fact, throughout the world, health outcomes have improved dramatically over the past decade. The key to this global health progress has been and continues to be the advance in science-based, medical innovation, including new procedures, diagnostics, health technologies and medicines. While progress has been made, there is still an urgent need to accelerate the pace of drug discovery and research for tomorrow’s cures to address unmet health needs and to reduce the global and economic burden of illness and disease.

This is a Declaration open to your comments, change and suggestions. Please let us know your opinion. We will include your feedback in the final document that will become a Joint Declaration.

The Document will be presented in the European Parliament in Brussels in 2015 during the 9th edition of the European Patients’ Rights Day with the name/logo of endorsers.

For further information and to subscribe it, please send an email to: This email address is being protected from spambots. You need JavaScript enabled to view it.

To download it, click here

Thank you in advance
ACN staff

Network News

Energy and gas: protection for citizens at risk of poverty

After the presentation to the Senate of our dossier in terms of fuel poverty, "Energy and chronically ill", made with Acquirente Unico, the Authority for Electricity and Gas has shown not only to be able to act very quickly on important issues, but also to carefully consider the "civic" information produced by the associations.

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