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8th European Patients’ Rights Day

May 12-13 2014
VM3 (2nd floor) Van Maerlant Bulding, 2, rue Van Maerlant, 1040
Brussels

Active Citizenship Network (ACN) has decided to dedicate the 8th celebration of the European Patients’ Rights Day 2014 (launched by ACN in 2003) to:

“The role of citizens' organisations in the empowerment of patients with chronic diseases”.

The patient empowerment does have two different but complementary dimensions:
1. Improvement of a person’s capabilities to effectively self-manage his/her chronic disease;
2. Enhancement of patient groups’ capacities to participate efficiently in health policies.  
In both cases, citizens’ organisations – which include self-help groups, associations of patients with a chronic disease, networks and umbrella organisations - play an essential role. Patients’ organisations educate and support individual patients and their families, while networks and umbrella organisations contribute to build their capacities to participate in the policy-making. 

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Campaign

Joint Citizen Action for a Stronger, Citizen-Friendly Union (JoiEU)

The EU project coordinates citizen debate and action in 11 EU member states, one candidate and one potential candidate countries on a set of issues focused on increased and better informed citizen participation in the democratic life of the EU and aims at strengthening the citizen base of deeper European integration. The project is funded by the European Union through the Europe for Citizens Programme and is implemented by a group of civic organizations.
JoiEU comprises of a series of transnational debates mobilizing citizen participation and the use of innovative communications and advocacy strategies and tools culminating in joint policy initiatives for greater citizen participation in the decision-making process in the EU.

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European Charter of Active Citizenship

The Charter aims to bridge the gap existing in the Community rules about the rights, duties, powers and responsibilities of civic organisations acting in the public policies cycle. The Charter was drawn up on the basis of an analysis of 50 good practices in the relationship between citizens' organisations and institutions gathered in 10 European Union countries and of the comments, feedback and suggestions of scholars, citizens' organisations, and public institutions.

Download the European Charter of Active Citizenship (English version) – (Italian version)

Rationale of the project
The role of citizens and citizens' organizations as actors in public policy making in Europe is growing in the last 30 years.
Nevertheless, neither the Constitution nor the European legal systems of nation-states define exactly their role as participants in the political life as a fundamental right of the citizens themselves.
For this reason Active Citizenship Network together with Active Citizenship Foundation-FONDACA have decided to promote the drafting of a European Charter of Active Citizenship, which sets out the rights and duties of civic organizations that participate in the decision-making processes related to public policies.

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Network News

Energy and gas: protection for citizens at risk of poverty

After the presentation to the Senate of our dossier in terms of fuel poverty, "Energy and chronically ill", made with Acquirente Unico, the Authority for Electricity and Gas has shown not only to be able to act very quickly on important issues, but also to carefully consider the "civic" information produced by the associations.

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