Cross-border healthcare and centres of excellence to enhance patients’ rights: access, information and innovation

27 February 2018, 15.00-17.00
Room (ASP 3H1)
European Parliament, Brussels

Programme

14:30 – 15:00 Registration & Accreditation
Meeting point: Altiero Spinelli (ASP) entrance from Place du Luxembourg

Chair: Stephen McMahon – Irish Patients’ Associations

15:00 – 15:15 Welcome address and keynote presentation

• MEP Patrizia Toia (Italy) Group of the Progressive Alliance of Socialists and Democrats in the European Parliament
• Mariano Votta – Director of Active Citizenship Network

15:15 – 15:50 ERNs and centres of excellence: a challenge beyond borders

• Nora Kajtar – Policy Officer, European Commission - Cross-Border Healthcare & eHealth Unit
• Maurizio Scarpa – Coordinator European Reference Network for Hereditary Metabolic Diseases (MetabERN), Chair of the ERN Coordinators Working Group
• Luca Sangiorgi –  Coordinator, European Reference Network on Rare Bone Diseases (ERN BOND)

15:50 – 16:45 Experiences & perspective concerning cross-border healthcare. Proposals on how to contribute to improving patients’ access and information

• Beatrice De Schepper – European Huntington Association - Patient representative in the ERN RND (Rare Neurological Diseases) 
• Gábor Pogány – President of Hungarian Rare Diseases Federation, member of the EURORDIS Patient Advocacy Group (E-PAG) on ERNs
• Jasna Karacic – Croatian Association for the Promotion of Patients' Rights
• Pascal Garel – European Hospital and Healthcare Federation (HOPE)
• Giuseppe Banfi - Scientific Director Istituto Ortopedico Galeazzi
• Scott Pescatore – General Manager for Rare Disease EU, Novartis Oncology
• Brian Kennedy – Global Alliance for Patient Access

16:45 – 17:00 Debate