Advanced Therapies Medicinal Products revolution & the respect of the patients’ right to access to care: a call to action

In the framework of the European project #VITA and as a follow-up to the training on ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups ACN have launched the call to action ATMPs revolution & the respect of the patients’ right to access to care (for further information download the complete call to action).

Across Europe, a patient who wants to access an ATMPs (a reality of cure for patients suffering from serious diseases who have not yet found a concrete therapeutic answer) may face various obstacles of a social nature: lack of scientific knowledge, lack of regulatory uniformity and transparency, regional inequalities of access, and lack of public funds for this type of therapy.

For this reason, the following organizations have decided to endorse this Call to Action which is aimed at national and European Institutions first, but also at the whole health ecosystem including civic & patient associations, and citizens.

These are the associations that support the initiative:

International

     

 

IAPO Patients for Patient Safety Observatory

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International Alliance of Patients’ Organizations (IAPO)

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International Patient Organisation for Primary Immunodeficiencies

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Thalassaemia International Federation

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European

     

 

euPrevent

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European Liver Patients’ Association – ELPA

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AESEP

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National organizations

Albania

AMAD Center

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Albania Together for life pagina associazioni VITA copia 2 html e667bf3c39a99b69

Bulgaria

Together for Life

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Bulgaria

Association of Reproductive Health, Pregnancy and Childcare "Smile"

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Bulgaria

Alliance of Transplanted and Operated ATO "Future for All"

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Bulgaria

Association of Patients with Cardiovascular Diseases

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Bulgaria The Innovations Institute home vpWesF hzD4e j
Croatia Centar za edukaciju i informiranje potrošača pagina associazioni VITA copia 2 html f1892d6245fa0f58

Cyprus

Cyprus Federation of Patients' Associations and Friends

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Italy

CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE

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Italy

Società Italiana Attività Regolatorie, Accesso, Farmacovigilanza

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Kosovo

Patients' Rights Association in Kosovo

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Malta Malta Health Network pagina associazioni VITA copia 2 html 30c1ec8be0a74138
Poland The Institute for Patient Rights and Health Education The Institute for Patient Rights and Health Education
Portugal MOG Movimento Oncológico Ginecológico pagina associazioni VITA copia 2 html 21287fe77700af93

Portugal

Observatório Saúde dos Povos

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Republic of Macedonia Studiorum logo studiorum

Spain

Foro espanol de pacientes

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Spain

ASOCIACION GALEGA ASPERGER

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