If you are having trouble viewing this email, click here to view it in a standard browser
Monthly Newsletter edited by Cittadinanzattiva-Active Citizenship Network
Civic Activism | Patients' Rights | Consumers' Rights | Support ACN

Year 4th, number 38 - April 2016


3 & 4 May, 2016
Celebrating the 10th edition of the
European Patients' Rights Day



3 May 2016, “Patients’ rights have no borders”
A European communication campaign on patients' rights in cross-border healthcare kicks off in 14 EU Member States. The initiative is promoted by Active Citizenship Network and will be officially presented to the EU Institutions on 3 May 2016  at the European Parliament in Brussels. The event will take place in room ASP A7H1 from 16:30 to 18:30 and will be hosted by MEP David Borrelli, Co-Chair of the EFDD Group and Co-Founder of the MEPs Interest Group “European Patients' Rights & Cross-border Healthcare”.
At national level, the communication campaign will be coordinated by the following civic & patient associations:

  • Austria: Lower Austrian Patient and Nursing Advocacy
  • Bulgaria: Patients' Organizations “With You” 
  • Cyprus: Cyprus Alliance for Rare Disorders
  • France: Inter-Association on health (CISS)
  • Germany: Bürger Initiative Gesundheit e.V.
  • Hungary: Hungarian Federation of People with Rare and Congenital Diseases
  • Ireland: Irish Patients’ Association
  • Italy: Cittadinanzattiva - Tribunal for patients’ rights
  • Lithuania: Council Of Representatives Of Patients' Organizations Of Lithuania
  • Malta: Malta Health Network
  • Netherlands: European Patients Empowerment for Customised Solutions
  • Poland: Institute for Patients’ Rights & Health Education
  • Slovakia: Society of Consumer Protection
  • Spain: Plataforma de Organizaciones de Pacientes

Read More


4 May 2016, the 10th edition of the European Patients’ Rights Day: “Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care”
It will focus on the fight against waste and inefficiency in the European healthcare systems and the collection of best practices to increase the efficacy and the quality of patient care. It will be held on Wednesday, May 4th from 09:30 to 13:30, in Brussels at the European Parliament, in room ASP A1E2 and will be co-hosted by MEP David Borrelli, co-Chair of the EFDD Group, and MEP Piernicola Pedicini, EFDD ENVI Committee Coordinator. Read the list of confirmed panelists and join us!

Vytenis AndriukaitisVytenis Andriukaitis, European Commissioner for Health
and Food Safety
2014-present: Commissioner for Health and Food Safety.  2014: Vice-President of the World Health Assembly. 2012-14: Minister for Health in his Country. 2001-04: Deputy Speaker of the Lithuanian Parliament. 1999-2000: Party leader of Lietuvos Socialdemokratų Partija (LSDP, Social Democratic Party of Lithuania). @V_Andriukaitis

Lieven Annemans, Ghent University - Senior Professor
Senior Professor of Health Economics at the Faculty of Medicine at Ghent University. Twenty  years of experience in health economics research; published >250 papers on health economic evaluations of prevention programmes, medicines, medical devices and diagnostics. Previously advisor to the Belgian Minister of Health from 2001 to 2003 and president of the Flemish health council from 2003 to 2009.   @LievenAnnemans

Giuseppe Banfi, IRCCS Galeazzi - Scientific Director
Medical Doctor, full professor of Clinical Biochemistry in Vita e Salute San Raffaele University in Milano. Scientific Director from 2007 of the IRCCS Galeazzi, orthopedic hospital accredited by Ministry of Health for research programmes. General Director of Fondazione Centro San Raffaele in Milano and Scientific Director of Gruppo San Donato  Foundation.       

David Borrelli, MEP - Europe of Freedom and Direct Democracy Group (EFDD) -  Co-Chair
Entrepreneur in the IT and catering sector. Computer Technician (2003-2009). Politics: Councillor in Treviso (2008-2013), candidate for President of the Veneto region (2010), Member of the European Parliament and Co-Chair of the EFDD Group (2014-present).   @borrellidavid

Maarten de Wit, European League Against Rheumatism – Vice President
Maarten de Wit (1961) has been active in organizations of patients with rheumatic diseases at local, national and international level for almost 15 years. From 2005 till 2009 he has been the European League Against Rheumatism (EULAR) Vice President representing People with Arthritis/Rheumatism in Europe (Standing Committee of PARE).

Antonio Gaudioso, Cittadinanzattiva - Secretary General
He is currently General Secretary of Cittadinanzattiva, an Italian civic organization that promotes civic participation and protects citizens' rights. He started his collaboration with Cittadinanzattiva in 1996. In 2002 he contributed to the drafting of the European Charter of Patients’ Rights promoted by Active Citizenship Network, the European branch of Cittadinanzattiva. @anto_gaudioso

Pamela Mazzocato, Karolinska Insitutet -  Leader of the Clinical Management research group
PhD in Medical Management, Pamela Mazzocato leads the Clinical Management research group at the Medical Management Center, Karolinska Insitutet (KI). In her research she focuses on how the management of clinical operations and healthcare organizations influences the ability to meet the needs of patients and healthcare professionals. Since 2012, she is co-directing and running courses in Healthcare Management for master students in Health Economics, Policy and Management, KI.

Cristiana Montani Natalucci, Cittadinanzattiva, Tribunal for Patients’Rights  - Senior Communications and Project Manager
Extensive experience in National and International communications projects in healthcare sector. She works for the Tribunal for Patients’ Rights of Cittadinanzattiva. She is an expert in technical, conceptual and content development with a thorough national and international knowledge of corporate, institutional and association decision making processes.

Virginia Minuogue, England National Health System- Research, evidence and knowledge lead
Research, evidence and knowledge lead for the NHS Future Focused Finance programme: a five year vision for NHS finance professionals, clinicians and patients. She also led a theme group looking at patient engagement in reducing waste.
She has several years’ experience of management in the public sector and as Chair of a voluntary sector mental health organisation with an active service user involvement project.

Piernicola Pedicini, MEP -  Europe of Freedom and Direct Democracy Group -  Coordinator
Piernicola took a Degree on Physics in 1998 and a Medical Physics Specialisation in 2006 at the University Federico II of Naples and he worked as Medical Physicist at the Department of Radiation Oncology in Rionero in Vulture, Potenza, Italy, since 2008 as health Director until his recent election as Member of the European Parliament. He is member of the ENVI (Environment, Public Health and Food Safety) committee of the European Parliament and coordinator for the EFDD political group. @PediciniM5S

Bert Van Caelenberg, Health First Europe – Vice President
Before entering the work at European level, he worked as a trade union delegate and trade union secretary at regional and national level in the sectors Ministries, Local and Regional Authorities and Health for ACV Public Services, Belgium’s largest public service trade union. For over 15 years now, Bert Van Caelenberg has occupied the position of Secretary General of the European Federation of Employees in Public Services (Eurofedop).

Paul Vincke, European Healthcare Fraud and Corruption Network - Managing Director
Director of  Staff at the Service of Medical Evaluation and Control of the National Institute for Health and Disability Insurance in Belgium and Managing Director of the European Healthcare Fraud and Corruption Network (EHFCN). Within EHFCN  Paul Vincke has been Treasurer and Deputy Director-General since October 2005. He was elected  President in 2007 and continued to represent the Network in this function until he was appointed Managing Director of EHFCN on 1 January 2013.  @ehfcn15

Mariano Votta, Active Citizenship Network - Director
Director of Active Citizenship Network and Responsible for European Affairs at Cittadinanzattiva. He has more than 10 years of experience in the field of protection of citizens’ rights, stakeholder engagement, communication and civic information. His was the idea to encourage and promote the Member of the European Parliament Interest Group “European Patients' Rights & Cross-Border Healthcare” at the European Parliament during 2015. @marianovotta


ACN is happy to welcome Nicola Caputo  as new MEP Supporter
Active Citizenship Network is glad to welcome MEP Nicola Caputo as a new supporter of the MEP Interest Group “European Patients' Rights & Cross-Border Healthcare”. He is an Italian member of the S&D group and member of several Committees as the Committee on the Environment, Public Health and Food Safety (ENVI) and the Committee on Agriculture and Rural Development (AGRI). To read the updated list of the MEPs supporters, please click here.

The Italian MEP Giovanni La Via on the EU Institutions' commitment on patients’ rights and the coming 10th celebration of the European Patients’ Rights Day
From the European Charter of Patients’ Rights, through the Interest Group “European Patients’ Rights & Cross-Border Healthcare” to the European Patients’ Rights Day. In his video message MEP Giovanni La Via recalls the commitment of the European Institutions, of the civil society and in particular of Active Citizenship Network in promoting and protecting patients’ rights. Watch the video

Civic Activism

#Iparticipate: share your views on active democracy! 
The FutureLab Europe programme aims to bridge this gap by empowering the voice of young people. Aged 20 to 30, the 105 participants of FutureLab Europe from 30 countries – EU and non-EU – contribute their young and innovative ideas to current European topics: democratic values in Europe, equal opportunities and European identity.
FutureLab Europe's will collect all the inputs and discuss them with high level EU policy makers at the upcoming Spring Conference 2016 “Citizens First! How to revive democratic participation for a citizens-led Europe” , which will take place on 22 April 2016 in Brussels. To learn more about this initiative, click here.

A local and Regional Vision of Europe 2030
The Council of European Municipalities and Regions Congress 2016 will take place in Nicosia, Cyprus, next April 20-22. The CEMR is the largest organisation of local and regional governments in Europe. Its members are composed by 60 associations of local governments from 41 countries. These associations, all together, represent more than 150.000 municipalities, cities and regions. Read more

Democratic Participation in a Citizen’s Europe: What Next for the EU?
The ECI Campaign is organising an interactive conference in Liverpool, next 5 May 2016, that will bring together activists and academics who believe passionately in the need
for more democratic participation in the EU and have ideas for how to make this a
reality. Read more

European Citizenship in Challenging Times
Active Citizenship Network - officially recognized in the EU platform dealing with civic participation “Active Citizenship Structured Dialogue Group”, led by the EU Commission-DGMigration and Home Affairs - will participate to the annual meeting organized by the European Commission. The conference, title “European Citizenship in Challenging Times” will be held on 31 May and 1 June 2016, in Barcelona, Spain. Read more


April 19 Nicosia (Cyprus): “Patients' Voice” Project launch event
Universal Patients Rights Association in partnership with Active Citizenship Network are about to launch the European Project “PATIENTS’ VOICE” in the northern part of Cyprus. The initiative is supported by EU Commission in the framework of the European Programme EuropeAid. The aim is to raise awareness on patients’ rights, starting from the European Charter of Patients’ Rights, and to contribute in improving the quality of health care provision for the wider public in the Turkish Cypriot community. For further information: info@ehhd.eu

May 5-8 Island of Menorca (Spain): Sine Dolore World Park
Pain Meeting is a multidisciplinary international event that year by year gives to the professionals of pain treatment the opportunity to meet new treatments and advances in the field.
Doctors and specialists from all around the world will take part in the presentations and panel discussions of this forum, where latest techniques and innovative experiences in the treatment of pain will be presented. Pain is a condition that affects 20% of the population, according to the World Health Organization (WHO) and, in the recent decades, the progressive aging of the population has become a challenge for medical institutions, since it requires the development of new therapies for the treatment of painful conditions such as arthritis, back pain, cervical pain, headache, neuralgia and painful scars. The director of Active Citizenship Network will participate as panelist. Read more

May 23-24 Brussels (Belgium): “Societal Impact of Pain” (SIP) 2016 “Time for action”
The 6th event of the Societal Impact of Pain (SIP) will address anyone involved in pain policy e.g. healthcare professionals, politicians, representatives of pain advocacy groups, insurances, health authorities, regulators and budget holders. Four are the topics for discussion: Pain as a quality indicator for health care; Chronic Pain: a disease or multi-morbidity?; The relevance of pain in cancer care and rehabilitation; Pain, rehabilitation and reintegration of workers in the working force. The scientific framework of SIP platform is under the responsibility of the European Pain Federation EFIC. Cooperation partners for SIP 2016 are Pain Alliance Europe and Active Citizenship Network. The pharmaceutical company Grünenthal GmbH is responsible for funding and nonfinancial support (e.g. logistical support). You can find more information under Events / SIP 2016. Please register by using this link. After receipt of application for registration you will be notified on the status of your registration. For further information please visit the SIP website.


Director and Editor in chief: Mariano Votta
Editors: Daniela Quaggia, Bianca Ferraiolo & Sonia Belfiore
Coordination and Production: Giacomo D'Orazio 

To contribute, plase write to: mail@activecitizenship.net

Active Citizenship Network c.o. Cittadinanzattiva - Via Cereate 6 - 00183 Roma - Tel. +39 6 367181 - Fax +39 6 36718333
Representative office to the UE: Rue Philippe Le Bon, 46 - 1000 Brussels (Belgium)
Tel: (+39) 340 84 65 097 Mail: brussels@activecitizenship.net