ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups

vita value and innovation of advanced therapies programme STD

#VITA – Value and InnovaTion of Advanced therapies

ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups

24 MAY 2022 | 15:00 – 17:00 CEST

EU online training seminar

If you missed the webinar you can find the recording link here

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EUROPEAN PATIENTS’ RIGHTS DAY 2022

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EUROPEAN PATIENTS’ RIGHTS DAY 2022

CONFERENCE ON THE FUTURE OF A HEALTHY EUROPE

Taking part in the decision-making process on health priorities

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#VaccinAction2022

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EU TRAINING SEMINAR

(Watch the recording of the event here)

AGENDA

Moderator: Maddalena D’Urso, Active Citizenship Network

14:30 Opening remarks

Mariano Votta, Director of Active Citizenship Network (read the presentation)

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#VaccinAction2022

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Protecting the value of vaccination during -and after-the COVID-19 pandemic across Europe: impact, experiences and perspectives from citizens’ and patients’ advocacy groups & relevant stakeholders

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AMR Patient Alliance – developing educational repository for patient and caregiver awareness of drug resistant infections

FRAMEWORK

Patients need to play a much bigger role in the fight against antimicrobial resistance (AMR), as they are directly involved in over-prescribing, overuse and self-medication, the scale and effect of which is still unknown. Despite there are many organizations interested in the issue of AMR, and the diversity of expertise and experience is vast, to date, there has been no consolidated effort globally to amalgamate these and provide a coherent guidance and support for patients’ engagement in tackling this global public health threat.

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NIGHTINGALE - Novel Integrated Toolkit for Enhanced Pre-Hospital Life Support and Triage in Challenging and Large and Demanding Emergencies

NIGHTINGALE

The aim of the NIGHTINGALE project is to develop an integrated multi-toolkit for emergency medical response.

This technology will bring together numerous aspects which are involved in the management of medical emergency, which are at the service of emergency medical services and non-medical civil protection agencies (firefighters, police and personal search and rescue, but also volunteers and citizens) and which will work towards the renewal of pre-hospital support and triage.

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#VITA: Value and InnovaTion of Advanced therapies

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The context

The new frontier of personalized medicine (a medical model that proposes the personalization of health, with medical decisions, practices, and products tailored to the patient) is represented by Advanced Therapy Medicinal Products (ATMP), which offer opportunities for innovative treatment and are classified into four groups:

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FACILITATE

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The European project FACILITATE (FrAmework for ClInicaL trIal participants' daTA reutilization for a fully Transparent and Ethical Ecosystem) officially started on January 1st, 2022.

FACILITATE aims to develop an ethical, legal and regulatory framework that allows the return of clinical trial data to trial participants and other health professionals involved in their care, it also wants to create a process that allows the data collected to be reused also in future research.

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Global Health Charter

Salute Globale cosa significa per te

In 1948 the World Health Organization defined health as "a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity”.

Today, after more than 70 years, the WHO definition is more relevant than ever if we think of the holistic approach to "global health” at the time of the health emergency that we have been experiencing for about two years.

The global pandemic confirms the need to recognize a broader scope to health that is no longer the result of a few and circumscribed variables but the result of multisectoral and global factors, such as lifestyle, environment and climate. Health as an integrated approach, unavoidable from the determinants of health connected to it.

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