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Monthly Newsletter edited by Cittadinanzattiva-Active Citizenship Network
Civic Activism | Patients' Rights | Consumers' Rights | Support ACN
Year 10th, number 107 - October 2022

Join our event on ATMPs at the EU Parliament!

Securing Equitable Patient Access to Advanced Therapies across Europe”

24 OCTOBER 2022 | 16:00 – 18:00 CEST Brussels, European Parliament, Room JAN 6Q1

To attend the conference, please register here (registration is mandatory)


Hosted by the Member of the European Parliament Tomislav Sokol (EPP group), co-chair of the MEPs Interest Group European Patients' Rights and Cross-border Healthcare, the initiative is organized by Active Citizenship Network, the EU branch of Cittadinanzattiva, with the aim of contributing to provide a multi-stakeholder vision for equitable patient access to ATMPs.

Together with European institutions, academia, healthcare professionals, citizen organizations & Patient Advocacy Groups (PAGs), the private sector and key stakeholders, we will discuss the disruptive aspects of ATMPs and pay attention to the opportunities and challenges of new advanced therapies, which are expected to increase significantly over the next decade: an encouraging but equally challenging scenario, considering the high costs and public budget constraints faced by several EU countries. Aspects that must be addressed today in order not to be unprepared tomorrow.

The starting point is that the traditional reimbursement and budgeting schemes are unable to amortize the value of ATMPs, whose costs and benefits are not aligned. These types of therapies need new and different payment and accounting methods, which take into account the high initial costs and the large and lasting benefits over time, both for the patients and for the national health systems. It is time for an institutional mindset change to classify ATMPs expenditure as an investment and not a cost.

How can European institutions facilitate this process? What decisions are taken at the level of each Member State to make these therapies accessible to the largest number of eligible patients? What role do PAGs play? On this occasion, the Call to Action “Advanced Therapies Medicinal Products revolution & the respect of the patients’ right to access to care”, so far endorsed by 37 PAGs, will be officially presented at European level.

The conference titled “Securing Equitable Patient Access to Advanced Therapies across Europe” will be held in Brussels on October 24th, 2022 from 16:00 to 18:00 CEST at the European Parliament in room 6Q1. It is realized in the framework of the European activities organized by Cittadinanzattiva with the unconditional support of the #VITA – Value and Innovation of Advanced Therapiescoalition, coordinated by the global law firm LS CUBE.


To know more:

- Rationale of the initiative
- An overall overview about ATMPs
- Technical Policy Report from the #VITA Working Group “The economic evaluation of advanced therapy medicinal products: characteristics and reasons for a new economic and accounting approach” (EN – IT).
- The EU training seminar ATMPs revolution: empowering leaders of EU civic and patients’ advocacy


12 October 2022 | Brussels: Driving the EU’s Non-Communicable Disease Initiative: sharing best practices and empowering equal access to stroke prevention and care
The initiative will bring together key policymakers, researchers, and advocacy organizations with the goal to advance the discussion on how the NCD Initiative can help empower Member States to take decisive action to ensure better pathways for stroke patients, whilst ensuring early prevention measures are scaled up. Invitees can join either via Zoom or in person at the Thon Hotel EU, Rue de la Loi 75, Brussels. The webcast will be available in English and will be translated into French and Spanish.  Interested participants may apply for registration at the following link.

24 November 2022 | Dublin: 14th Citizens' Energy Forum
This year, the Forum will be entirely dedicated to citizens and how they are prepared for winter and what they can still do to control their energy bills and engage in green energy Please save the date for this event in your agendas.
Cittadinanzattiva-Active Citizenship network has been invited to attend the initiative by the DG Energy, in coherence with its long term committment on energy issues and its participation on the EU project “NUDGE”. To know more, click here.


Director and Editor in chief: Mariano Votta
Editors: Daniela Quaggia, Bianca Ferraiolo
Coordination and Production: Giacomo D'Orazio 

To contribute, plase write to: mail@activecitizenship.net

Active Citizenship Network c.o. Cittadinanzattiva - Via Imera 2 - 00183 Roma - Tel. +39 6 367181 - Fax +39 6 36718333
Representative office to the UE: Rue Philippe Le Bon, 46 - 1000 Brussels (Belgium)
Tel: (+39) 340 84 65 097 Mail: brussels@activecitizenship.net