The #CareforAll 2025 campaign has been launched 
The #CareForAll 2025 campaign, led by Active Citizenship Network (ACN) in collaboration with 13 national patient advocacy groups across Europe, calls on the EU to move towards a comprehensive EU Respiratory Health Plan – one that puts prevention, equity, and resilience at the heart of care.
From Monday, 15 December, the campaign will be disseminated through the social media channels of ACN and its partners in English and eight other languages. Read more

FACILITATE at the European Parliament: a milestone for patient-centred clinical trials
On the 4th of December, supported by the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare” and kindly hosted by MEP Vytenis Andriukaitis, we organized the institutional event presenting the FACILITATE IHI project results and Principles (now endorsed by 50+ patient and civic associations and still growing). A full room in Brussels — with patients, associations, researchers, companies, institutions, nurses etc. — and around 80 online participants made the session lively and interactive, highlighting the momentum behind Returning Individual Participant Data (RoIPD) “by design.” The discussion showcased why RoIPD matters for trust, health literacy, and research quality across Europe. Slides and the full recording will be available soon on ACN’s and FACILITATE’s websites. Read more here, here and here.

VaccinAction2025: civic voices in Brussels
On 3 December in Brussels, we brought together 16 ACN’s partners associations from 12 countries to examine vaccines from a crucial angle: research. From the development pathway to what’s next.
The debate focused on new platforms and delivery methods, as well as the idea of “future vaccines”.
We also explored how giving clinical trial participants access to their own data can build trust and understanding. To know more, click here for all the materials presented, here, and here to see some pictures from the day.

ACN supporting personalised medicine in Europe 
Active Citizenship Network took part in the ICPerMed & EP PerMed Joint Conference on 26-27 Nov 2025 in Prague, an important European forum dedicated to the future of personalised medicine. We recently joined the People Engagement Board of EP PerMed, the European Partnership for Personalised Medicine. This marks an important recognition and a valuable opportunity to actively contribute to the implementation of the EP PerMed Strategy to Foster People Engagement in Personalised Medicine: improving public and patient understanding, awareness, and empowerment AND strengthening meaningful engagement. We thank EP PerMed for welcoming us on board. We look forward to working together and contributing to fruitful discussions and impactful collaborations in the years ahead. Read more

Adult Immunization Board at work in Portugal
An inspiring two days in Lisbon gathering that brought together national institutions, international experts, and key stakeholders committed to advancing adult vaccination.
Materials from the meeting are available online on the Adult Immunization Board - AIB website (background document, agenda and presentations.
The Director of Active Citizenship Network, AIB advisor, provided the citizens' perspective to the ongoing efforts to strengthen evidence-based immunization strategies across the life course. To know more, click here & here.

COLLABORATE for rare diseases at work in Spain
Also this year, Cittadinanzattiva-Active Citizenship Network joined the annual COLLABORATE Summit, once again demonstrating the power of what a united rare disease community can achieve. Along two days in Madrid, leaders of patients’ advocacy groups across the globe reflected on the progress made in 2025, receiving a strong endorsement by the Member of the European Parliament Andriukaitis. In particular, the Director of Active Citizenship Network presented a concrete initiative to be leveraged at the EU level. Read more.

Active Citizenship Network keeps growing, and not only in European Union. In this newsletter we are going to report a series of agreements formalized in this last period, which testify a growing interest in our work on the one hand, and - on the other hand - our willingness to collaborate in synergy with the many actors of civil society, media, HCPs and researches who pursue common purposes.

Media partnership with Pubtexto Publishers, the editor of Journal of Medical and Clinical Studies
Active Citizenship Network is delighted to announce the signing of an official Memorandum of Understanding with Pubtexto Publishers, the editor – among the others - of Journal of Medical and Clinical Studies (ISSN: 2582-0869), the new media partner of Active Citizenship Network. Pubtexto Publishers mission is to raise the permeability, availability, accessibility, usage and impact of qualitative communications with peer-reviewed auditing process following editorial manager framework, open access scholarly research journals internationally, regardless discipline geography or language. Read more about ACN's new media partner.

Official agreement with the European Medical Association (EMA)
Active Citizenship Network is delighted to announce the signing of an official Memorandum of Understanding with the European Medical Association (EMA), created in 1990 by doctors from the 12 member states. It is a unique, independent non-profit organisation, which offers every European Community doctor the opportunity to join a European network of doctors, and add a European dimension to their professional and social life. The Association today has a much broader perspective, it is made up of associate members in all the states of the European Union, and in many non-EU states, in Asia, Africa and, to a lesser extent, the Americas and Oceania. Read more about ACN's new partner.

Cittadinanzattiva-Active Citizenship Network is a full member of the BBMRI-ERIC Stakeholder Forum
The Stakeholder Forum “Patients and Citizens’ Pillar” is an advisory body to BBMRI-ERIC European Research Infrastructure for biobanking and biomolecular resources established in 2013, and it is the main interface for European patients’ organisations, citizens, industry, and academia to interact with the biobanking universe. Read more

Cittadinanzattiva-Active Citizenship Network joined the People Engagement Board of EP PerMed
Cittadinanzattiva APS-Active Citizenship Network recently joined the People Engagement Board of EP PerMed, the European Partnership for Personalised Medicine. This marks an important recognition and a valuable opportunity to actively contribute to the implementation of the EP PerMed Strategy to Foster People Engagement in Personalised Medicine: improving public and patient understanding, awareness and empowerment, strengthening meaningful engagement. EP PerMed established on 2024 a Citizen Engagement Board to advise on matters related to Citizen Engagement in Personalised Medicine. Read more

Official agreement with the National Consumer Confederation from Lithuania
Active Citizenship Network is pleased to announce the signing of a Memorandum of Understanding with Nacionalinė Vartotojų Konfederacija/National Consumer Confederation (NCC), established in Lithuania in 2003. Its members are 10 consumer associations working in different consumer protection policy fields (health, education, IT information, nutrition, energy, antimonopoly, environment protection, and vulnerable consumer groups). NCC and its members are non-profit NGOs, aiming to provide legal representation and advocate for the various interests of Lithuanian consumers. Read more about ACN's new partner.

Official agreement with the Lithuanian National Consumer Federation
Active Citizenship Network is delighted to announce the signing of an official Memorandum of Understanding with Lietuvos Nacionalinė Vartotojų Federacija / Lithuanian National Consumer Federation (LNCF), a non-governmental organization established in 2000. It is particularly focused on consumer consultation, mediation in resolving consumer complaints, and protection of consumer rights in out-of-court dispute resolution institutions. Read more about ACN's new partner.

Book “Vaccines and Vaccinations for Adults: A European Textbook” now available!
This textbook provides a comprehensive reference on adult vaccines and immunization practices tailored to the European context. It has been promoted and edited by the Adult Immunization Board (AIB), of which Cittadinanzattiva-Active Citizenship Network is a member, an international board of experts aiming at spreading the culture of adult immunisation and promoting its implementation in Europe. In particular, the ACN’ Director is co-author of the chapter “Adult Vaccination Policy in Europe: Governance and Key Stakeholders”. Read more

Bridging the Confidence Gap: Towards A Multistakeholder Alliance to Strengthen Equitable Vaccination in Central and Eastern Europe
Vaccine confidence and equitable access remain pressing challenges in Central and Eastern Europe (CEE), where socio-economic disparities, poor health literacy, disinformation, misinformation, and structural barriers continue to impact vaccination uptake. Vaccine hesitancy remains a significant barrier to achieving high vaccination coverage in CEE. This paper – led by COPAC and realized also thanks the commitment of Active Citizenship Network - explores the multifaceted nature of vaccine hesitancy in the region, identifies key barriers, and provides actionable recommendations derived from a regional multistakeholder alliance representing key actors in vaccination policy. To read and download the article, click here.

22 January 2026| Online | Right to Innovation: understanding personalised prevention with PROPHET
On Thursday, 22 January 2026, 18:00–19:30, join our online session (in Italian) “Right to Innovation: Understanding Personalised Prevention.” In 90 minutes—plain language, real examples—we’ll explore what personalised prevention is, why it matters for every citizen, and how it’s being developed within the PROPHET project. We’ll look at everyday cases (breast cancer, cardiovascular risk, pharmacogenomics, targeted vaccinations) and the idea of a “genetic/pharmacogenetic passport”—what it is, how to get it, where it’s already used, what’s happening in Italy, and the benefits and barriers to fair adoption. There will be time for questions, and we’ll collect ideas for future meetings. We’d love to have you with us: the more we are, the more we learn.
Online (Zoom) in ITA — registration required: here.

European Parliament, Brussels | EUROPEAN PATIENTS’ RIGHTS DAY 2026, 20th Edition: Empowered citizens, personalised care: a new era for prevention in Europe
To date, EU member states dedicate 97% of their healthcare budgets to treatment, while spending an average of 2.8% on preventive care. In a scenario of tighter budget constraints, the value of prevention becomes immeasurable. By reducing disease prevalence and avoiding costly treatments, prevention plays a crucial role in ensuring the long-term sustainability of healthcare, social care and welfare systems. For this reason, the 2026 edition ofEuropean Patients’ Rights Day (EPRD), promoted as always by Cittadinanzattiva/Active Citizenship Network, will recognise personalised prevention as a human right, directly linked to the“Right to Preventive Measures”, the first principle stated in the European Charter of Patients’ Rights. Read more