If you are having trouble viewing this email, click here to view it in a standard browser
Monthly Newsletter edited by Cittadinanzattiva-Active Citizenship Network
ABOUT US | OUR NETWORK | WHAT WE DO | MEDIA | EU POLICY DIALOGUE |
Year 11th, number 114 - May 2023

SPECIAL EDITION ON THE EUROPEAN PATIENTS’ RIGHTS DAY 2023
(XVII EDITION)
&
ITS EU CELEBRATION AT THE EUROPEAN PARLIAMENT

"ATMPs give hope to patients where therapeutic options are currently lacking or non-existent and they must be able to reach patients sooner. Our priority is always to put patients' interest first".Watch the video message of the EU Health Commissioner Stella Kyriakides at the #EPRD23

Highlight

Watch the video interviews realized by the journalist Mariam Zaidi on occasion of the European Patients’ Rights Day and focused on ATMPs.

Focus

European Patientsí Rights Day 2023: Advanced therapies, time to consider them an investment instead of a cost

On the occasion of the 17th European Patients' Rights Day, Active Citizenship Network organized a conference at the European Parliament in Brussels on 26 April 2023, to reflect on Advanced Therapy Medicinal Products (ATMPs) in Europe, together with representatives from citizen and Patient Advocacy Groups, European and national institutions, the World Health Organization, the private sector, and experts and practitioners in the field of ATMPs. The conference was organised with the support of the MEPs Interest Group "European Patients' Rights & Cross-Border Healthcare" and the TRANSFORM MEP Interest Group. Read more.

Panel

Vytenis AndriukaitisThomas Allvin
Thomas Allvin is Executive Director for Strategy and Healthcare Systems at the European Federation of Pharmaceutical Industries and Associations (EFPIA), where his responsibilities include overall strategic coordination and leading EFPIA’s work on health systems policies, including value-based healthcare and strengthening health system resilience. Thomas is also co-chair of the European Alliance for Value in Health, of which EFPIA is a partner. Before joining EFPIA in 2015, Thomas was Health Counsellor at the Permanent Representation of Sweden to the European Union, representing Sweden in the Council working parties for public health and pharmaceuticals & medical devices, and previously worked in several positions in the Swedish Ministry of Health and the Swedish Parliament.

Vytenis AndriukaitisEleni Antoniou
Eleni Antoniou joined the team of the Thalassaemia International Federation in 2017 as a Policy Officer, with a focus on European and International Relations. Since August 2022, she serves as the Federation’s Senior International Affairs Officer, collaborating closely with the World Health Organization, the European Commission and other health-related bodies. An expert public policy advocate, linguist and researcher, Mrs. Antoniou has designed and implemented many activities aimed at bringing thalassaemia to the forefront of international bodies’ agendas. She is a co-author of the Global Thalassaemia Review 2021 and has published articles on the cost of thalassaemia care and the unmet needs and challenges of haemoglobin disorders in Europe.

Vytenis AndriukaitisBrando Benifei
Brando Benifei is an Italian MEP in his second term of office, currently Head of Delegation of the Democratic Party in the European Parliament. He has been working on health issues since the last legislature and is currently Vice-President of the European Parliament's Heart Group. Member of the interest group on Kidney Health and Antibiotic Resistance. Since its establishment in 2015, he has also been a member of the MEPs' interest group on "Patients' Rights and Cross-Border Healthcare", of which he is Co-Chair since 2019.

Vytenis AndriukaitisStefania Bettinelli
Stefania Bettinelli is the President of Le ali di Camilla (Camilla’s wings), an Italian association founded in 2019 to promote research and treatment of rare diseases affecting the skin and other stratified epithelia potentially treatable with advanced therapies based on epithelial stem cells, such as Epidermolysis Bullosa. She has been dealing with rare diseases since 2006 and headed external relations of the Centre for Regenerative Medicine “Stefano Ferrari” of the University of Modena and Reggio Emilia and the university spin-off Holostem Terapie Avanzate until January 2023.

Vytenis AndriukaitisSilvio Brusaferro
President of the Italian National Institute of Health – Rome; Full Professor of Hygiene and Public Health at the University of Udine. Member of the EU Scientific Advice Platform on Covid-19 and Co-chair of the Global Health Summit Scientific Panel. Member and Coordinator of the OECD Bureau of Expert Group on the economics of Public Health. His professional experiences, at national and international level, have been focused on Public Health. Research and education issues of specific interest include: quality in healthcare, clinical risk and patient safety, infection prevention and control, antimicrobial resistance, best practices and core competences in public health, development of social networks to support health care systems and to orient the evolution of complex organizations in Public Health.

Vytenis AndriukaitisJo De Cock
Jo De Cock, class of 1955, is a lawyer by background. During his professional career he held the position of Social Counsellor to the Prime Minister of Belgium for eight years, from 1985 to 1993. Then, from 1995 to 2021, he was Chief Executive Officer of the Belgian National Institute for Health and Disability Insurance (INAMI - RIZIV). Since 2021, he has been Chair of the Joint Network of Senior Budget and Health Officials at the Organisation for Economic Co-operation and Development (OECD) and advisor for the WHO European Region's Novel Medicines Platform.

Vytenis AndriukaitisThanos Kosmidis
Thanos Kosmidis is cofounder and CEO of CareAcross, a digital health company focusing on cancer. CareAcross is a member of All.Can International, a multi-stakeholder not-for-profit organisation working to improve the efficiency of cancer care by focusing on what matters to patients. Thanos’ role at CareAcross includes shaping personalised services to cancer patients and clinicians, and the company’s partnerships with industry, researchers, academia and non-profit organisations, including All.Can.
Beyond the contributions to several digital health and entrepreneurship communities, he has been supporting several European Commission initiatives to enhance healthcare in cancer and beyond.

Vytenis AndriukaitisStella Kyriakides
Stella Kyriakides is the European Commissioner for Health and Food Safety. She has been leading the Commission’s work to coordinate the EU’s health response to COVID-19. She is responsible for the establishment of a strong European Health Union and Europe’s Beating Cancer Plan. She is leading the new ‘Farm to Fork’ strategy for sustainable food. Her responsibilities include enforcing EU food, animal welfare, animal and plant health laws. Previously, she was a clinical psychologist for the Cyprus Ministry of Health. In 2006-2019, she served in the Cyprus Parliament for the Democratic Rally party, of which she was the Vice-President. She was appointed Head of the Cyprus Delegation to the Parliamentary Assembly of the Council of Europe (PACE). In 2017, she was elected President of the PACE.

Vytenis AndriukaitisAnna Lisa Mandorino
Anna Lisa Mandorino is, since 2021, the Secretary General of Cittadinanzattiva. With a master’s degree in Literature, she specialised in European Public Relations and Corporate Social Responsibility. At Cittadinanzattiva she was first in charge of Communication, then of General Management through the coordination of activities and projects for the promotion of civic activism and participation. She works with particular attention to public policies on health, services, education and training, human and civil rights, in order to affirm new forms of civic action and governance of public processes, especially related to the empowerment of local communities, stakeholder involvement and institutional dialogue. In addition to other roles, in 2022 she was also appointed as member of the National Ethics Committee for clinical trials related to ATMPs at AIFA (Italian Medicines Agency).

Vytenis AndriukaitisFrancesco Saverio Mennini
Francesco Saverio Mennini, is currently Professor for Health Economics and Microeconomics (Business Administration Course) at University of Rome "Tor Vergata”, (Faculty of Economics). He is also Professor for Political Economics at University of Rome "Tor Vergata”, Faculty of Science. Visiting Professor, Institute of Leadership and Management in Health, Kingston University, London, UK (from 2011) and the President of SiHTA (Italian Society of Health Technology Assessment). In February 2023 he has been appointed as Expert in Health Economics to the Minister of Health and, since 2017 is a member, as an Expert in Economics, of Consiglio Superiore di Sanità and a member of the Working Group "Vaccines and anti-COVID-19 vaccinations" at Ministry of Health since 2020. He works also as Research Director at the Centre for Economic Evaluation and HTA (EEHTA), CEIS - Faculty of Economics, University of Rome “Tor Vergata”. He is author of numerous publications (more than 150), national and international, of Health Economics, HTA and Economic Evaluation.

Vytenis AndriukaitisPaolo Morgese
Paolo Morgese leads European public affairs activities at ARM. A patient access, healthcare policy and investment professional with more than 20 years of experience in both assessing and supporting access to innovative healthcare technologies. Before joining ARM in 2017, Paolo worked for 5 years at Deerfield Management, a healthcare investment company. Prior to that, he worked at Merck Serono, Kyphon (which became Medtronic) and also spent several years with the Italian HTA Agency AGENAS. Paolo’s interests and expertise are centred on cell and gene therapy value assessment, healthcare system modernization and financing healthcare innovation.

Vytenis AndriukaitisAttila Német
Vice President of HUFERDIS (RIROSZ), educated as an economist for foreign affairs, working as an international marketing and commuication leader in Hungary, has a daughter with Turner syndrome. Turner syndrome, a condition that affects only females, results when one of the X chromosomes (sex chromosomes) is missing or partially missing. This syndrome can cause a variety of medical and developmental problems, including short height, failure of the ovaries to develop and heart defects. He fights to end the disadvantage of rare disease patients compared to other patients and to make their lives easier and better. He also fights to ensure that rare disease patients receive the best possible social and health care, and that the demands of Hungarian rare disease patients are heard by the highest levels of public authorities.

Vytenis AndriukaitisAlessandra Renieri
Alessandra Renieri is Full Professor of Medical Genetics at the University of Siena and Director of Medical Genetics at Azienda Ospedaliero-Universitaria Senese. Her main research interest is the study of the genetic basis of rare diseases, especially Rett syndrome and other conditions with intellectual disability, Alport syndrome and rare cancers. Since 2017 she focused on the translation of gene editing using CRISPR/Cas9 to clinical practice. She is running different gene editing projects related to Rett syndrome, Parkinson and Alport syndrome. Since 2019 she is Member of the EMA Committee for Advanced Therapies (CAT).

Vytenis AndriukaitisTomislav Sokol
Tomislav Sokol was born in Zagreb in 1982. He obtained his first degree in law at the Faculty of Law, University of Zagreb, in 2006, magna cum laude. He then obtained a Masters of Law (LL.M.) specialising in European Union Law at the Katholieke Universiteit Leuven (KUL), Belgium, in 2009, magna cum laude. He defended his PhD at KUL, dealing with free movement of cross-border health care services in the EU and its impact on national health insurance systems in 2014. He was a Member of the Croatian Parliament until July 2019, when he became a Member of the European Parliament. He is a Member of the Committee on the Internal Market and Consumer Protection (IMCO), Special Committee on the COVID-19 pandemic: lessons learned and recommendations for the future (COVI) and also EPP Vice Coordinator in COVI Committee, and a Substitute Member of the Committee on the Environment, Public Health and Food Safety (ENVI) and Committee on Regional Development (REGI) in the European Parliament.

Vytenis AndriukaitisDomenica Taruscio
Domenica Taruscio, MD, is the former Director of the National Center for Rare Diseases at the Istituto Superiore di Sanità (Rome, Italy) and President of ICORD from 2010 to 2012 and from 2021 to date. Dr. Taruscio is an active contributor to the development of the European scientific and institutional framework on rare diseases and orphan medicinal products. She has been the Italian representative at the Committee for Orphan Medicinal Products (COMP, EMA) (2000 – 2009); scientific coordinator of several national and European projects; member of the Funders Constituent Committee of IRDiRC; she has been the Italian Representative at the Board of Member States for European Reference Networks at the EU Commission; co-founder of the Undiagnosed Diseases Network International (UDNI). She organized several International Conferences, Congresses, Courses and Webinars on rare diseases and orphan drugs. She is co-author of more than 210 publications listed in PubMed.

Vytenis AndriukaitisMariano Votta
Mariano Votta is responsible for EU Affairs of the Italian NGO Cittadinanzattiva and the Director of its EU branch called “Active Citizenship Network” (ACN). Mariano has over 20 years of experience in advocacy, stakeholder engagement, European projects, communication, and civic information. In 2015 he led the launch of the MEP Interest Group "EU Patients' Rights & Cross-Border Healthcare," endorsed by nearly 100 organisations across Europe, and the MEP Interest Group "SDGs for wellbeing and consumer protection” in 2021. In 2016 Mariano has won the Efhre International University Excellence Awards on patients’ rights and in 2017 he was appointed as Secretary-General at European Consumer Union. Along the mandate 2016/2019, he was also appointed by the EU Commission to represent Italian Consumer Associations in the EU Consumer Consultative Group. Mariano holds an MSc in Political Science and two post-graduate courses in EU Public Relations and Corporate Social Responsibility.


Vytenis AndriukaitisMariam Zaidi
Mariam Zaidi is an international news presenter, reporter and expert on the EU. Also specialising in politics and foreign affairs she has more recently steered coverage on the Ukraine war and the energy crisis for Euronews. As a seasoned moderator and master of ceremonies for Euractiv, EU institutions and global corporate clients she is a master of many trades. A law grad with an MA in Journalism she has worked for the BBC, ITV, CGTN, APTN and CNBC.

Click here to read the Conference’s programme
Click here to download the speakers’ biographies
Read the press release (EN - IT languages)
Click 
here to watch the photo gallery on Active Citizenship Network FB page.
Click 
here to read the concept note of the 17th European Patients' Rights Day. To know more, click here.

 

Press review

TrendSanità (3 May, 2023): Terapie avanzate: è tempo di considerarle un investimento anziché un costo (IT)
All.Can International (2 May, 2023): All.Can International at the 17th European Patients’ Rights Day
European Union of Private Hospitals (27 Apr. 2023): UEHP supports the 17th European Patients’ Rights Day
REDATTORE SOCIALE (26 Apr. 2023): Cittadinanzattiva, al via la XVII Giornata europea dei diritti del malato (IT)
HELP CONSUMATORI (26 Apr. 2023): Terapie avanzate, oggi al centro della Giornata europea dei diritti del malato (IT)
FEDERFARMA (26 Apr. 2023): Disponibili in Europa 20 terapie avanzate, 6 contro i tumori Al Parlamento Europeo la Giornata europea dei diritti del malato (IT)
SANITÀ33 (26 Apr. 2023): Terapie avanzate in Ue tra sostenibilità e innovazione. Evento al Parlamento europeo (IT)
ORDEM DOS FARMACÊUTICOS (26 Apr. 2023):  17º aniversário do Dia Europeu dos Direitos dos Doentes (PT)
AGENPARL (26 Apr. 2023): La XVII Giornata europea dei diritti del malato oggi al Parlamento Europeo: Terapie Avanzate in Europa tra sostenibilità, innovazione e diritti dei pazienti (IT)
NEWS FARMA (24 Apr. 2023): A Medicina Interna associa-se à comemoração do Dia Europeu dos Direitos do Doente (PT)
Programma Mattone Internazionale Salute – ProMIS (20 Apr. 2023): Giornata Europea dei Diritti del Malato, convegno del Parlamento Europeo per l’occasione (IT)
HEALTH EUROPA (24 Apr, 2023): European Patients’ Rights Day and ATMPs: Combining sustainability, innovation and respect for patients’ rights
TrendSanità (24 Apr, 2023): Terapie Avanzate in Europa tra sostenibilità, innovazione e diritti dei pazienti (IT)
SOMOS PACIENTES (18 Apr. 2023): Terapias avanzadas: sostenibilidad, innovación y respeto por los derechos de los pacientes (ES)
European Alliance for Transformative Therapies (17 Apr. 2023): XVII European Patients’ Rights Day
HEALTH EUROPA QUARTERLY (31st Jan. 2023, issue 24, pag. 124-127): The value of investing in Advanced Therapy Medicinal Products
HEALTH EUROPA (5th January 2023): The value of investing in Advanced Therapy Medicinal Products

The conference is realized thanks to the unconditional support of:

News
Patients' Rights

Video messages and statements in support of the XVII European Patients’ Rights Day
As already done at the occasion of the previous editions of EPRD in 2020-2021-2022, also this year Active Citizenship Network celebrated the European Patients' Rights Day with messages from its constituency and partners that, along the years, have supported the constant commitment in favor of the patients.
Now more than ever, in this time of health and humanitarian crisis, the celebration of the European Patients’ Rights Day has been an opportunity to send a message of hope and commitment on protecting citizens' health and well-being. Listed below you can find video messages & statements received.
Sabrina Pignedoli, Member of the European Parliament (N.A.) (IT)
Dr Androulla Eleftheriou, Executive Director - Thalassaemia International Federation
Ilaria Giannico, Secretary General - European Union of Private Hospitals (UEHP)
Finka Dubravka, President - Patient's Association ZD Patient (Croatia)
Marko Korenjak, President - European Liver Patients' Association (ELPA)
Valeria Gatti - KIDS Bari (the Italian Young Persons Advisory Group)
Paula Mouta, President of AESEP - Associação Europeia de Saúde Educativa e Preventiva em Epigenética (PT)

 

European Patients’ Rights Day 2023: Initiatives Across Europe
The European Patients’ Rights Day has become a regular appointment to improve patients’ rights in Europe and in each Member State. Below are listed some examples of all the initiatives organized all around Europe. If you wish to add an event dedicated to the celebration of the European Patients’ Rights Day in your country, please write to: d.quaggia@activecitizenship.net. To know more, click here.

At European Level
FH Europe
The European Times

At National Level

BELGIUM
La Ligue des usagers des services de santé (Luss) and here and here
Vlaams patienten platform
Patient Empowerment
Universiteit Gent
RainbowHouse Brussels
Hôpital de JOLIMONT
Frank Vandenbroucke -Deputy Prime Minister and Minister of Social Affairs and Public Health
Sint-Andries Hospital
Droits Quotidiens asbl
Healthcare Executive
az West
az Delta (video)
Visie

BULGARIA
Toghether with you Association
The National Patient Organization
PronewsDobrich
Darik

CROATIA
NSK European Documentation Centre

CZECH REPUBLIC
National Association of Patient Organizations

FINLAND
Varha

FRANCE
France Assos Santé and here
Agence nationale de sécurité du médicament et des produits de santé (video)
Institut de Cancérologie de Lorraine
Hôpital Européen
Territorial Professional Community of Health Dracénie Provence Verdon
Chu Clermont-Ferrand
Fondation Œuvre de la Croix Saint-Simon
Ramsay Health-Lambert Clinic
Polyclinique de l'Ormeau
La Clinique Chirurgicale de Martigues
Anticoag-pass-s2d
CHU de Limoges
Centre hospitalier Avranches-Granville and here
Hôpital du Gier
CHU de Saint-Etienne
Mediscoop

GREECE
Hellenic Patients' Union and here and here and here and here and here and here and here and video
Hellenic Cancer Federation-ELLOK and here and here
Affidea
1° TOMY Trikala

ITALY
Cittadinanzattiva del Trentino Aps and here
Cittadinanzattiva Treviso
Tribunale del malato della Riviera del Brenta
Trentino Cultura

LITHUANIA
Office of Public Health of Šakiai District Municipality

LUXEMBOURG
Hôpitaux Robert Schuman
Fédération des Hôpitaux Luxembourgeois (FHL)
CHNP - Centre Hospitalier Neuro-Psychiatrique
Mutualité Chrétienne

POLAND
Fundacja STOMAlife
Association of Patients for Home Ventilation "ONE BREAK!
Siedlce Association for Helping People with Alzheimer's Disease
Ministry of Health
Urząd Marszałkowski Województwa Kujawsko-Pomorskiego
Puls Medycyny
City Hall of Warsaw
Beskidzki Medical and Rehabilitation Complex Long-Term Care Hospital
Independent Public Health Care Center in Bielsk Podlaski
Nursing.com
Minds Of Hope
Dr Szycht chirurgia plastyczna
Legionowo District
Gmina Poraj
Naszesprawy
Toiowo
Tygodnik przeglad

PORTUGAL
Instituto Português de Oncologia de Lisboa
SUCH – Serviço de Utilização Comum dos Hospitais
Associação Protectora dos Diabéticos de Portugal
Escola Superior de Saúde de Santa Maria
Expresso
Executive digest

Português Conferência Dia Europeu dos Direitos dos Doentes
Also this year, on 18 April 2023, the “Associação Europeia de Saúde Educativa e Preventiva em Epigenética”, Portuguese partner of Active Citizenship Network, organized the national celebration of the European Patients’ Rights Day. For the occasion, the event, titled “Oral health and gastrointestinal diseases in Europe: how to prevent?”, has been realized with the participation of the Portuguese Society of Health Literacy within the Coimbra Business School-ISCAC. Active Citizenship Network joined the panel to talk about the topic in the context of Antimicrobial Resistance, and more in general to emphasize the value of this celebration from a citizen and patients’ perspective. To know more about the presentation of the ACN’ Director, click here (EN language). To know more, click here, for the recording of the event, click here (PT language).

SLOVAKIA
Association for the Protection of Patients' Rights (AOPP)
Slovenské národné stredisko pre ľudské práva

SPAIN
Spanish Patients’ Forum (FEP) and here
Federación de Asociaciones de Implantados Cocleares de España, Federación AICE
Coordinadora de Usuarios de la Sanidad, Salud, Consum y Alimentación
Sociedad Española de Directivos de la Salud (SEDISA)
Sistema Sanitario Público de Andalucía
Escuela de Salud y Cuidados de Castilla-La Mancha
Cosas de Sanidad (video)
Asociación de #Lupus de Madrid
Colegio Enfermería de Sevilla
DentistasSobreRuedas
EnfermerasMadrid
Elmedico interactivo
iXalud
ICQO
VÉLEZ & LOZANO Dental Clinic
Telecinco
Sandoz
Fundación Grünenthal España

EXTRA EU
GUYANE FRANÇAISE
France Assos Santé Guyane

KOSOVO
In Kosovo, the European Patients' Rights Day is marked in Kosova

The historical partner of Active Citizenship Network PRAK-The Patients' Rights Association in Kosovo, in cooperation with AQH Project, the Ministry of Health supported by the Swiss Office in Kosovo (SDC), in honor of the European Patients' Rights Day, has organized last 18 of April 2023 a discussion table on the topic "Choosing a doctor, the right to everyone". At this table, it was discussed about the plan of the Ministry of Health to pilot the project of creating Patient Lists in 4 municipalities of Kosova. Mr. Arsim Berisha, Deputy Minister of Health told the audience about the activities of this Ministry in terms of creating lists of patients or choosing a family doctor. He said that through the choice of a family doctor, we strengthen the best doctor-patient communication, and the treatment of patients, so we ensure a better connection that enables the permanent follow-up of the patient's health status and increased satisfaction. Present at this table were representatives of NGOs, Patient Councils, representatives of health institutions, family doctors, etc. #PRAKKosova. To know more, click here.

Events

5-7 June 2023 |Rome (Italy): EHMA 2023 Annual Conference
Cittadinanzattiva/Active Citizenship Network has been invited to join the panel discussion of the session ‘Unveiling the potential of vaccination registries in Europe’ that is organised in the framework of the EHMA 2023 Annual Conference. The session is scheduled on Tuesday, 6 June 2023 from 13.35 to 14.50 in Rome, Italy at Università Cattolica del Sacro Cuore. The goal of the session is to bring forward the perspective of citizens alongside other experts including representatives of academia, regional authorities, industry, and health managers. To know more, please contact Zachary Desson from EHMA- European Health Management Association.

7 June 2023 | Info session on European Flu Day (online)
The Steering Group on Influenza Vaccination of which ACN is member, is organizing an Info Session on Wednesday 7 June 2023 from 11.30-12.00 to prepare the campaign for the European Flu Day which will be celebrated on 11 October 2023. This webinar, hosted by the Secretariat of the Steering Group on Zoom Platform, aims to introduce participants to the EU Flu Day project and this year's campaign toolkit which will take place on the topics of empowering health workers, with the aim of raising awareness of the need to ensure that doctors, nurses and pharmacists are equipped to not only administer but also communicate about seasonal influenza vaccines and immunization, to their patients and colleagues. The initiative will take place exclusively in English without translation and/or interpretation. During the webinar, the materials made available by the Steering Group for the realization of events and campaigns at local level in the context of the annual #EUFluDay campaign will be shown. Join this initiative and register for the EU Flu Day Info Session by clicking on this link. Once registered, the Secretariat will follow up by sharing the link to the Zoom webinar. For further information, please contact the Secretariat by email: sginfluenza@acumenpa.com.

8-9 June 2023 |Paris (France): FACILITATE Semi-Annual Meeting
Cittadinanzattiva, as a project partner, will be present at the next project meeting which will be also the occasion to discuss the Patient needs and expectations that are at the centre of the project: FACILITATE, in fact, is a project built on a patient-centred vision: it focuses on the needs and rights of the patients who take part in a clinical trial to dispose of their own data, Its main goal is to develop a process to return data originating from a clinical trial to study participants for their use and re-use. The whole data process, from the collection of data to its destruction or anonymization, including its sharing and re-use, will be legally and ethically compliant and aligned with the patient's voice. To be updated join FACILITATE's pool of stakeholders here!

28 June 2023 | Brussels (Belgium): Europe’s Tomorrow: Vaccination and Prevention Summit
Building up on our health-focused research and impact programmes, this year Think Young decided to organize the first European Vaccination and Prevention Summit which will be an opportunity for policymakers, health experts and civil society organisations to come together and discuss the challenges in the area of vaccinations and prevention both at European and Member State Level. The Summit – planned in Brussels at the Museum of Natural Science on 28 June - will also aim to spotlight youth voices with respect to vaccines and prevention, connecting the concerns and views of young people with high-level stakeholders in the healthcare industry and related policy fields.
The Summit will consist of a series of panel discussions which will be held in different breakout rooms. At the same time, there will be an exhibition space where we would like to have different stands from start-ups that work on vaccination and prevention. There will also be a moment for Q&A and for school involvement. Active Citizenship Network has been invited in the panel to show its activity on vaccination.
To know more about the initiative and for the registration, click here.

29 June 2023 | Brussels (Belgium): The Mission Board on Vaccination in Europe
Cittadinanzattiva/Active Citizenship Network has been invited to take part the second multi-stakeholder meeting of the “Mission Board on Vaccination in Europe”. The meeting will include updates and group discussions related to each working group, as well as contributions from external speakers, including the European Commission, European Parliament and Council of the EU. To know more about the CAN commitment at the EU level on vaccination policy, click here.

30 June 2023 | Brussels (Belgium): HERA Civil Society Forum
Cittadinanzattiva/Active Citizenship Network has been invited for the next meeting of the HERA Civil Society Forum that will take place on Friday 30 June 2023 in the morning. HERA Civil Society Forum is the expert group of the HERA Advisory Forum, led by the European Health Emergency preparedness and Response Authority (HERA). The Civil Society Forum makes the interactions between interested parties easier and acts as a contact point between HERA and stakeholders representing patients, consumers and healthcare professionals. It provides views, observations and opinions from civil society stakeholders to the HERA Advisory Forum on matters of health preparedness and response, with a focus on medical countermeasures. To know the Civil Society Forum members list, click here.


 


Director and Editor in chief: Mariano Votta
Editors: Daniela Quaggia, Bianca Ferraiolo
Coordination and Production: Giacomo D'Orazio 

To contribute, plase write to: mail@activecitizenship.net
www.activecitizenship.net ; www.cittadinanzattiva.it

Active Citizenship Network c.o. Cittadinanzattiva - Via Imera 2 - 00183 Roma - Tel. +39 6 367181 - Fax +39 6 36718333
Representative office to the UE: Rue Philippe Le Bon, 46 - 1000 Brussels (Belgium)
Mail: brussels@activecitizenship.net