Look at some examples of hundred initiatives all around Europe. The European Patients’ Rights Day has become a fixed appointment in to improve patients’ rights in Europe and in each Member State!
Please, if also you would like to add your event for the celebration of the European Patients’ Rights Day in your Country, write to Daniela Quaggia
2024
At European level
Video messages and statements in support of the XVIII European Patients’ Rights Day
As with previous editions of the EPRD, also this year Active Citizenship Network would like to celebrate the European Patients' Rights Day with messages from all the stakeholders who, over the years, have supported our ongoing commitment towards citizens and patients.
Watch the video interviews realized by the journalist Mariam Zaidi on the occasion of the European Patients’ Rights Day 2024 focused on the key role of HCPs for a healthier Europe.
Indeed, 15 million people, 7% of the EU workforce, work in healthcare. Therefore, neglecting the health workforce crisis jeopardises current and future preventive and care options for citizens & patients. Here
Elena Moya, AEM - Asociación Española Contra la Meningitis (Spain), click here
Volunteers of FundacjaSTOMAlife, for better intimate health conditions (Poland): European Patients' Rights Day is not only a symbolic date but also a source of hope for everyone who has ever found themselves a patient. It is a day when every person can feel that they are not just the subject of medical procedures, but a partner in the treatment process. Every patient deserves to be informed about their treatment, to have the opportunity to make decisions and to be treated with respect. Because after all, it's about life - the most precious treasure we have". Click here
Message from Marko Korenjak, European Liver Patients' Association - ELPA (Belgium) here
Inés, Diario de una Mutante - AEAPAF (Spain) here
Associação de Doentes de Dor Crónica dos Açores (Portugal), here
Jasna Karacic-Zanetti, Head of Health Diplomacy Unit, International Council of the Patient Ombudsman, here
2023
At European level
Video messages and statements in support of the XVII European Patients’ Rights Day
As already done at the occasion of the previous editions of EPRD in 2020-2021-2022, also this year Active Citizenship Network celebrated the European Patients' Rights Day with messages from its constituency and partners that, along the years, have supported the constant commitment in favor of the patients. Now more than ever, in this time of health and humanitarian crisis, the celebration of the European Patients’ Rights Day has been an opportunity to send a message of hope and commitment on protecting citizens' health and well-being. Listed below you can find video messages & statements received.
- Sabrina Pignedoli, Member of the European Parliament (N.A.)
- Dr Androulla Eleftheriou, Executive Director - Thalassaemia International Federation
- laria Giannico, Secretary General - European Union of Private Hospitals (UEHP)
- Finka Dubravka, President - Patient's Association ZD Patient (Croatia)
- Marko Korenjak, President - European Liver Patients' Association (ELPA)
- Valeria Gatti - KIDS Bari (the Italian Young Persons Advisory Group)
- Paula Mouta, President of AESEP - Associação Europeia de Saúde Educativa e Preventiva em Epigenética (PT)
At National Level
BELGIUM
La Ligue des usagers des services de santé (Luss) and here and here
Vlaams patienten platform
Patient Empowerment
Universiteit Gent
RainbowHouse Brussels
Hôpital de JOLIMONT
Frank Vandenbroucke -Deputy Prime Minister and Minister of Social Affairs and Public Health
Sint-Andries Hospital
Droits Quotidiens asbl
Healthcare Executive
az West
az Delta (video)
Visie
BULGARIA
Toghether with you Association
The National Patient Organization
PronewsDobrich
Darik
CROATIA
NSK European Documentation Centre
CZECH REPUBLIC
National Association of Patient Organizations
FINLAND
Varha
FRANCE
France Assos Santé and here
Agence nationale de sécurité du médicament et des produits de santé (video)
Institut de Cancérologie de Lorraine
Hôpital Européen
Territorial Professional Community of Health Dracénie Provence Verdon
Chu Clermont-Ferrand
Fondation Œuvre de la Croix Saint-Simon
Ramsay Health-Lambert Clinic
Polyclinique de l'Ormeau
La Clinique Chirurgicale de Martigues
Anticoag-pass-s2d
CHU de Limoges
Centre hospitalier Avranches-Granville and here
Hôpital du Gier
CHU de Saint-Etienne
Mediscoop
GREECE
Hellenic Patients' Union and here and here and here and here and here and here and here and video
Hellenic Cancer Federation-ELLOK and here and here
Affidea
1° TOMY Trikala
Greek Patients’ Association & the new website greekpatientsrights.gr
ITALY
Cittadinanzattiva del Trentino Aps and here
Cittadinanzattiva Treviso
Tribunale del malato della Riviera del Brenta
Trentino Cultura
Cittadinanzattiva-Sardegna & ASL 5 Oristano
LITHUANIA
Office of Public Health of Šakiai District Municipality
LUXEMBOURG
Hôpitaux Robert Schuman
Fédération des Hôpitaux Luxembourgeois (FHL)
CHNP - Centre Hospitalier Neuro-Psychiatrique
Mutualité Chrétienne
POLAND
Fundacja STOMAlife
Association of Patients for Home Ventilation "ONE BREAK!
Siedlce Association for Helping People with Alzheimer's Disease
Ministry of Health
Urząd Marszałkowski Województwa Kujawsko-Pomorskiego
Puls Medycyny
City Hall of Warsaw
Beskidzki Medical and Rehabilitation Complex Long-Term Care Hospital
Independent Public Health Care Center in Bielsk Podlaski
Nursing.com
Minds Of Hope
Dr Szycht chirurgia plastyczna
Legionowo District
Gmina Poraj
Naszesprawy
Toiowo
Tygodnik przeglad
PORTUGAL
Português Conferência Dia Europeu dos Direitos dos Doentes
Also this year, on 18 April 2023, the “Associação Europeia de Saúde Educativa e Preventiva em Epigenética”, Portuguese partner of Active Citizenship Network, organized the national celebration of the European Patients’ Rights Day. For the occasion, the event, titled “Oral health and gastrointestinal diseases in Europe: how to prevent?”, has been realized with the participation of the Portuguese Society of Health Literacy within the Coimbra Business School-ISCAC. Active Citizenship Network joined the panel to talk about the topic in the context of Antimicrobial Resistance, and more in general to emphasize the value of this celebration from a citizen and patients’ perspective. To know more about the presentation of the ACN’ Director, click here (EN language). To know more, click here, for the recording of the event, click here (PT language).
Instituto Português de Oncologia de Lisboa
SUCH – Serviço de Utilização Comum dos Hospitais
Sociedade Portuguesa de Medicina Interna (SPMI)
Associação Protectora dos Diabéticos de Portugal
Escola Superior de Saúde de Santa Maria
Ordem Farmaceuticos
Expresso
Executive digest
SLOVAKIA
Association for the Protection of Patients' Rights (AOPP)
Slovenské národné stredisko pre ľudské práva
SPAIN
Spanish Patients’ Forum (FEP) and here
Federación de Asociaciones de Implantados Cocleares de España, Federación AICE
Coordinadora de Usuarios de la Sanidad, Salud, Consum y Alimentación
Somos pacientes
Sociedad Española de Directivos de la Salud (SEDISA)
Sistema Sanitario Público de Andalucía
Escuela de Salud y Cuidados de Castilla-La Mancha
Cosas de Sanidad (video)
Asociación de #Lupus de Madrid
Colegio Enfermería de Sevilla
DentistasSobreRuedas
EnfermerasMadrid
Elmedico interactivo
iXalud
ICQO
VÉLEZ & LOZANO Dental Clinic
Telecinco
Sandoz
Fundación Grünenthal España
Extra eu
France Assos Santé Guyane
PATIENT VOICE PARTNERS (May 8, 2023): European Patients’ Rights Day
2022
At European level
As already done at the occasion of the previous editions of EPRD in 2020 & 2021, also in 2022 Active Citizenship Network celebrated the European Patients' Rights Day with messages from some of the ACN’s partners that, along the years, have supported the constant commitment in favor of the patients.
Now more than ever, in times of health and humanitarian crisis, the celebration of the European Patients’ Rights Day has been an opportunity to send a message of hope and commitment on protecting citizens' health and well-being.
Listed below you can find the video messages received.
- Joe Farrington-Douglas, Network Director - The Heart Failure Policy Network (EU)
- Arnaud Faucon, Indecosa-CGT Secretary, Health Manager (France)
- Penka Georgieva, Patients’ Organization With You (Bulgaria)
- Ilaria Giannico, Secretary General - European Union of Private Hospitals (UEHP)
- Penilla Gunther, FOKUS Patient (Sweden)
- Emete İmge, Universal Patients' Rights Association (Cyprus)
- Marios Kouloumas, Cyprus Federation of Patients’ Associations (Cyprus)
- Ivone Machado, St Michael and Sta Maria Diabetic patients Association (Portugal)
- Jo Maes, Chairman of EPECS (The Netherlands)
- Henry Mamo (10yrs old) representing Maltese Patients, Malta Health Network (Malta)
- Elena Moya - Asociación Española contra la Meningitis (Spain)
- Eduardo Pisani, Chief Executive Officer - All.Can International asbl
- Paola Testori Coggi, Former Director General for Health - European Commission
International Council of The Patient Ombudsman
European Paediatric Translational Research Infrastructure (EPTRI)
At National Level
BELGIUM
Zorgnet-Icuro vzw - umbrella organization of the Flemish general hospitals
BULGARIA
CROATIA
Croatian Association for the Promotion of Patients' Rights and here
Association for the Protection and Promotion of Patients' Rights "Paziente di Zara"
Performances in Sarajevo in Banja Luka and here and here
CYPRUS
Universal Patient Rights Association
Federation of Patients' Associations of Cyprus and here
FRANCE
Assos-sante + all organised events HERE
Les hôpitaux d’Avranches, Granville, Saint-James, Mortain et Saint-Hilaire-du-Harcouët
Centre Hospitalier Alpes-Isère
les Cliniques Mutualistes du Médoc et de Pessac
GREECE
Patients' Association of Greece
President of the Republic Katerina Sakellaropoulou Message
Panhellenic Federation of People with Multiple Sclerosis
Directorate of Public Health and Social Welfare of the Peloponnese Region
Hellenic Anti-Rheumatism Society (EL. E. AN. A.)
ITALY
Cittadinanzattiva Emilia-Romagna
MALTA
NETHERLANDS
POLAND
The Institute of Patient Rights and Health Education
Ombudsman for Patients' Rights and the University Clinical Center in Gdańsk
Faculty of Law and Administration of UMCS
PORTUGAL
18 April 2022: 16th European Patients’ Rights Day & national celebration in Portugal
The European Association for Educational and Preventive Health in Epigenetics (AESEP), an official partner of Active Citizenship Network, and a supporter of the European Parliament Interest Group on Patients' Rights and Cross-border Healthcare, promoted the celebration of the XVI European Patients' Rights Day at the national level in Portugal, together with the Chronic Pain Association of the Azores, also an official ACN partner. For the occasion, the Director of Active Citizenship Network has been invited in the panel. The national celebration of the 2022 European Patients’ Rights Day took place on the 18th of April in a virtual format. Each year the theme is adapted to the emerging needs of the public health scenario of the country. This year, AESEP focused on “Women's Health - The Future of Health in Europe - Innovating in Prevention and Well-Being”. The program covered ten different themes, where women's health must be considered, respected, and protected. To know more, click here
19 April 2022: 16th European Patients’ Rights Day & local celebration in Azores Islands
Active Citizenship Network’s Portuguese historical partner Associação de Doentes de Dor Crónica dos Açores (Chronic Pain Association of the Azores) celebrated the European Patients’ Rights Day 2022 at the local level in the Azores Islands. The theme chosen was "Mental Health as Prevention of Suffering in Chronic Diseases: strategies and testimonies" and, for the occasion, invited the Patients Association Força 3P from Oporto to the online webinar, which took place on the 19th of April and at 18:00 AZOT.
Associação Europeia de Saúde Educativa e Preventiva em Epigenética Aesep and here
SOCIEDADE PORTUGUESA DE ESCLEROSE MÚLTIPLA
Conselho de Enfermagem Regional
Instituto Nacional de Emergência Médica (INEM)
Escola Superior de Saúde de Santa Maria
Hospital de Santo Espírito da Ilha Terceira, EPER
Unidade de Hospitalização Domiciliária do Centro Hospitalar Gaia/Espinho
ROMANIA
Healthy Living: Reducing the Burden of Noncommunicable Diseases project
SLOVAKIA
Association for the Protection of Patients' Rights of the Slovak Republic - AOPP
SPAIN
Official College of Psychology of Castilla-La Mancha
Democratic Union of Pensioners and Retirees of Spain- UDP
Istituto Espanol de Formadores en Salud
Patient Platform (POP) and here
Alt Penedès-Garraf Health Consortium
SWEDEN
19-21 April 2022: 16th European Patients’ Rights Day & national celebration in Sweden
The Swedish patients’ association FOKUS Patient, which is an official partner of Active Citizenship Network, organized three digital seminars from 19 to 21 April at lunchtime, from 12:00 to 13:00 CEST, dedicated to the right to information and the right to consent, which are Articles 3 and 4 of the European Charter of Patient’s Rights, drafted by Active Citizenship Network in 2002. The aim of the seminars was to address the relationship between access to information and patients’ rights in a Swedish context. To know more on the seminars, please click here (SE language).
EXTRA EU
KOSOVO
Association for Patients 'Rights in Kosovo (PRAK)
2021
At European Level
Video messages and statements in support of the XV European Patients’ Rights Day
In the age of COVID-19, the European Patients’ Rights Day (EPRD) on the 18th of April 2021 represented an opportunity to send messages of hope and commitment, from different healthcare stakeholders partners of ACN, on the protection of the health of European citizens. Listed below you can find the video messages received.
European Patients Forum Read more
All.Can International Read more
IAPO-International Alliance of Patients’ Organizations. Read more
Health Management. Read more
World Federation of Incontinence and Pelvic Problems. Read more
At National level
BELGIUM
Droits Quotidiens Read more
BULGARIA
DNews.bg Read more (BG)
CROATIA
International Council of The Patient Ombudsman © Read more (HR)
Teaching Institute for Public Health "Dr. Andrija Štampar " Read more (HR)
Association for Patients’Rights Zadarski Read more 1-2-3 (HR)
Ordinacija Read more (HR)
Ivan Domac School of Economics and Commerce Vinkovci Read more (HR)
Hrvatsky Radio Vukovar Read more (HR)
HRT Magazine Read more (HR)
CYPRUS
Cyprus Times Read more
Universal Patients’Rights Association, Read more
FRANCE
France Assos Santé Read more 1-2-3-4 (FR)
AMADYS association de personnes atteintes de dystonie Read more (FR)
France Assos Santé Centre-Val de Loire Read more (FR)
France Assos Santé Normandie Read more (FR)
A gence régionale de santé de Normandie Read more (FR)
Cancer Contribution Read more (FR)
HAD Saint Sauveur Read more (FR)
Pharmacie Meysen Read more (FR)
Centre Hospitalier Regional Universitaire CHRU Read more (FR)
L’Union de syndicats de pharmaciens d’officine – USPO Read more (FR)
Le Centre Hospitalier D'Embrun Read more (FR)
La Veille des acteurs de la Santé Read more (FR)
Centre Henri-Becquerel Read more (FR)
La ligue contre le cancer – Gironde Read more (FR)
Groupe de Santé CLINIFUTUR Read more (FR)
GREECE
Hellenic Patients' Association Read more - 2 -
National Confederation of People with Disabilities Read more (GR)
Hellenic Anti-Rheumatic Luggle Association (EL.EANA) Read more
Lefkada Hospital Read more
The Panhellenic Federation of People with Multiple Sclerosis (POAMSKP) Read more
The Federation of Patients 'Associations (OSAK) Read more - 2
ITALY
Cittadinanzattiva Video on the European Charter of Patients’ Rights
Cittadinanzattiva Umbria Read more (IT)
LITHUANIA
Jurbarkas District Municipality Public Health Bureau, Read more
Femmes pour toujours, Read more
The European Institute of Health and Sustainable Development. Read more
MALTA
Malta Health Network (MHN) Read more (EN) 1, 2, 3
POLAND
The Institute of Patient Rights and Health Education, Read more (PL)
Hematoonkologia, Read more (PL)
Infowire, Read more (PL)
PORTUGAL
Portugal celebrates 15 years of the European Patients' Rights Day
The new Europe's Beating Cancer Plan, 2021-2024, has a primary objective where preventionis the greatest gain in health. According to Portuguese MEP Sara Cerdas, it is necessary to act on the known causes of cancer and in all the forms already determined by science as responsible for the development of the disease.The European Union aims to eradicate bad living habits and promote healthy and sustainable diets, as well as the adoption of other habits with a focus on environmental agents, which promote quality of life at all stages of the disease. This theme is the pillar of the celebration of the 15th anniversary of the European Patients 'Rights Day in Portugal, organized by AESEP (Associação Europeia de Saúde Educativa e Preventiva em Epigenética) and supported also by Active Citizenship Network. Read and listen the contribution of Mariano Votta, Director of ACN. Here you can find a selection of the press review’ portuguese initiative:
- STATTO (24 March 2021): Portugal Celebra os 15 Anos da Carta Europeia dos Direitos dos Doentes (PT)
-
DIÁRIO DE COIMBRA (18 Apr. 2021): Fórum Europeu discute prevenção do cancro em tempo de pandemia (PT)
-
ASSOCIAÇÃO EUROPEIA DE SAÚDE EDUCATIVA E PREVENTIVA EM EPIGENÉTICA (18 Apr 2021): 3º Fórum Anual Europeu de Saúde Preventiva e Epigenética (PT)
-
SERVIÇO DE SAÚDE DA RAM (18 Apr. 2021): Dia Europeu dos Direitos dos Doentes (PT)
-
OBSERVADOR (18 Apr 2021): Direitos dos doentes oncológicos (PT)
-
INSTITUTO NACIONAL PARA A REABILITAÇÃO (18 Apr. 2021): Dia Europeu dos Direitos dos Doentes (PT)
-
ESCOLA SUPERIOR DE SAÚDE DE SANTA MARIA (18 Apr. 2021): Dia Europeu dos Direitos dos Doentes (PT)
-
ATLAS DA SAÚDE (18 Apr. 2021): Dia Europeu dos Direitos dos Doentes (PT)
-
SERVIÇO NACIONAL DE SAÚDE (18 Apr. 2021): Dia Europeu dos Direitos dos Doentes (PT)
-
LUSOJORNAL (18 Apr. 2021): Dia 18 de abril, Dia Internacional dos Monumentos e Sítios, Dia Europeu dos Direitos dos Doentes e Dia Nacional de Sensibilização para o fenómeno do Stalking (PT)
-
CORREIO DOS AÇORES (17 Apr 2021): Dia Europeu dos Direitos dos Doentes celebra -se amanhã assinalado com programa em Ponta Delgada (PT)
-
AÇORIANO ORIENTAL (17 Apr. 2021): Mas Saúde – respeitando os Direitos dos Doentes (PT)
-
SAPO-LIFESTYLE (16 Apr. 2021): COVID-19: Fórum Europeu vai discutir a prevenção do cancro em tempo de pandemia (PT)
-
NOTÍCIAS AO MINUTO (16 Apr. 2021): Fórum Europeu vai discutir a prevenção do cancro em tempo de pandemia (PT)
-
CANAL S+ (16 Apr 2021): Covid-19: Fórum Europeu vai discutir a prevenção do cancro em tempo de pandemia (PT)
-
MUNICIPIO DE LEIRIA (16 Apr. 2021): Fórum Europeu de Saúde e Epigenética | “Dia Europeu dos direitos dos Doentes” (PT)
-
RADIO REGIONAL DO CENTRO (16 Apr 2021): Dia Europeu dos Direitos dos Doentes (PT)
OTHER INITIATIVES IN PORTUGAL
Núcleo de Estudos de Bioética da Sociedade Portuguesa de Medicina Interna, Read more (PT), 1
CESPU, Read more (PT)
Ordem enfermeiros Madeira, Read more (PT)
Serviço de Saúde da RAM, Read more (PT)
Sagrado Coração de Jesus recorded a video (PT)
Técnicos de Medicina Nuclear, de Radiologia e de Radioterapia, Read more (PT)
SLOVAKIA
Association for the Protection of Patients' Rights of the Slovak Republic - AOPP, Read more (SK)
Commissioner Stavrovska's office, Read more (SK)
SLOVENIA
Alzheimer Slovenia, Read more (SI)
SPAIN
La Plataforma de Organizaciones de Pacientes, Read more (ES)
Somos Pacientes, Read more (ES)
Salud Castilla y Leon, Read more (ES)
Observatorio Nacional de Enfermedades Raras Oculares (ONERO), Read more (ES)
Colegio Oficial de la Psicología de Castilla-La Mancha, Read more (ES)
Escuela de Salud Castilla la Mancha, Read more (ES)
Mejorconsalud, Read more (ES)
blogs.publico, Read more (ES)
Somosdisca,Read more (ES)
TelefarmaciaApp, Read more (ES)
Administración de Justicia en Euskadi, Read more (ES)
Federación Española de Enfermedades Neuromusculares (Federación ASEM), Read more (ES)
Clínica Activa Mutua, Read more (ES)
Enfermeria Malaga, Read more (ES)
Lacerca noticias, Read more (ES)
Extra EU
Republic of MOLDOVA
Primariaselemet, Read more (MD)
Ministerul Sănătății, Muncii și Protecției Sociale (MSMPS), Agenția Națională pentru Sănătate Publică (ANSP), Read more (MD)
Oficiul Avocatului Poporului-Ombudsman, Read more (MD)
2020
In the age of COVID-19, the European Patients’Rights Day (EPRD) on the 18th of April 2020 represented an opportunity to send messages of hope and commitment, from the different healthcare stakeholders partners of ACN, on the protection of the health of the European citizens. Here below you can find the all the realized videos.
Statement from MEPs Interest Group “European Patients' Rights and Cross-border Healthcare
Initatives at European Level
HEALTH EUROPA (20 April 2020): European Patients’ Rights Day: nurses delivering direct patient care
Initatives at National level
BELGIUM
LUSS Ligue des usagers des services de santé Read more
BULGARIA
HERA Read more (BG)
Blagoevgrad Read more (BG)
CROATIA
Trend TV Read more (HR)
Association for the Promotion and Protection of Patients' Rights' Zadar Patient ' Read more (HR) & Read more (HR)
Croatian Union of Nurses - Medical Technicians Read more (HR)
FRANCE
Conférence régionale de la santé et de l'autonomie des Hauts-de-France Read more (FR)
Psytoyens Asbl – Concertation Des Usagers En Santé Mentale Read more (FR)
Maison médicale Trooz Santé ASBL Read more (FR)
Village de la Justice Read more (FR)
Centre Jean Perrin Read more (FR)
HUNGARY
Vedem - Civilian for Vaccination
LITHUANIA
Asociacija Ausvis Read more (LT)
POLAND
Fondazione Nutricia Read more (PL)
Rakoniewicki Read more (PL)
PORTUGAL
Entidade Regulaora de Saude Read more (PT)
DIARIO AS BEIRAS (16 Apr 2020): Covid-19: Fórum europeu debate pandemia, direitos dos doentes e saúde educativa (PT)
RADIOATLANTIDA (17 Apr 2020): Fórum Europeu de Saúde e Epigenética arranca sábado em formato online (PT)
SERBIA
Pharmaceutical World Read more (SR)
SLOVAKIA
AOPP Read more (SK)
Liga Proti Rakovine (Lpr) Read more (SK)
SPAIN
Somos Pacientes Read more (ES)
SomosDisca Read more (ES)
Ministerio de Asuntos Exteriores, UE y Cooperación Read more (ES)
Autismo Galicia Read more (ES)
Junta De Castilla Y León - Consejería De Sanidad Read more (ES)
Diainternacionalde Read more (ES)
DEBRA Read more (ES)
Plataforma de Afectados de Hepatitis C de Madrid (PLAfHC Madrid) Read more (ES)
La Rioja Read more (ES) and Read more (ES)
Escuela del Salud y cuidados Read more (ES)
ILERNA on line Read more (ES)
A voces de carabanchel Read more (ES)
En familia AEP Read more (ES)
FEDOP Read more (ES)
Happylegs Read more (ES)
Texum Fisioterapia Read more (ES)
SAE Read more (ES)
Prevensystem Read more (ES)
20 MINUTOS Read more (ES)
Emerita Neuro Read more (ES)
Embajada de España en Chile Read more (ES)
GNdiario Read more (ES)
Junta de Andalucia Read more (ES)
Manifiesto Por Una Medicina Más Humana, Que Mira A Los Ojos Y Escucha Read more (ES)
IVI Global Education Read more (ES)
ConSalud (18 Apr. 2020): Sanidad y Europa: el difícil camino hacia un modelo sociosanitario europeo (ES)
THE NETHERLANDS
EPECS-European Empowerment for Customised Solutions - Message of the Board:
Dear Citizens, you and I are hit by a virus, spreading world wide on our tiny planet. It urges of all of us to play an active role. As citizens we run the risk to attract the virus and if vulnerable to become patients and eventually to die. On Patients' Rights Day 2020 especially we have a right as patients and citizens to ask of all governments, NGO’s and all companies all over the world to implement long term policies in which citizens as potential patients are much better protected. This includes implementing all over the world Corporate Social Responsibility and the SDG’s of the United Nations. The virus makes clear that viruses and bacteria are a very serious threat to mankind if we go on the way we did it up to now. It was a money making market in China where the virus this time jumped from animals to man. It are the rough mechanisms of the free market that makes us using large amounts of antibiotics in the meat industry worldwide, killing ourselves in the long run with resistant bacteria. We focus to much on Profit, forgetting the Planet and the People. Let's stop this insane behaviour of ours, ruining our Planet and the People!
On behalf of the Board of EPECS, Jo Maes, Chairman, 18th of April 2020
Extra EU
ARGENTINA
Fundación Argentina del Tórax Read more (ES)
2019
- RADIO RTE DUBLIN (14 May 2019): "It's not all about money"
- EUROPEAN ACADEMY OF NEUROLOGY (1 May 2019): European Patients’ Rights Day 2019
- EUROPEAN ONCOLOGY NURSING SOCIETY (May 2019): MEP candidates answer key questions
- LA SICILIA (26 Apr. 2019): Domani 13ª giornata europea dedicata ai diritti del malato (IT)
- GIORNALE L'ORA (24 Apr. 2019): XIII Giornata europea dei diritti del malato. Comunicato alla cittadinanza (IT)
- TOGETHER FOR LIFE (19 Apr. 2019): Sfidat e Pacientëve me Hemofili në Shqipëri/Challenges of Hemophilia Patients in Albania? (Albanian)
- QUOTIDIANO DI SICILIA (19 Apr. 2019): Giornata dei diritti del malato, iniziative anche in Sicilia (IT)
- THE MALTA INDIPENDENT (19 Apr. 2019): European Patients’ Rights Day: Rights which should not be taken lightly
- CN24 (18 Apr. 2019): Giornata Europea dei diritti del malato: le liste di attesa (IT)
- LAC NEWS 24 (18 Apr. 2019): Sanità, conoscere i propri diritti è il primo passo per il loro rispetto (IT)
- TV SCAN (18 Apr. 2019): Dita Evropiane e të Drejtave të Pacientit/European Day of the Patient's Rights (Albanian)
- QUOTIDIANO SANITÀ (18 Apr. 2019): Liste di attesa. Cittadinanzattiva-Tdm, organizzate oltre 50 iniziative per incontrare e informare i cittadini sui loro diritti e doveri (IT)
- IL FARMACISTA ONLINE (18 Apr. 2019): Liste di attesa. Cittadinanzattiva-Tdm, organizzate oltre 50 iniziative per incontrare e informare i cittadini sui loro diritti e doveri (IT)
- ANSA.IT (18 Apr. 2019): Giornata europea diritti del malato, tema liste d'attesa (IT)
- GIORNALE DI SICILIA (18 Apr. 2019): Giornata europea diritti del malato, tema liste d'attesa (IT)
- HELP CONSUMATORI (18 Apr. 2019): Giornata diritti malato, Cittadinanzattiva mette al centro le liste di attesa (IT)
- MALTA HEALTH NETWORK (18 Apr. 2019): European Patients’ Rights Day
- ORDEM DOS ENFERMEIROS CENTRO (17 Apr 2019): Dia Europeu dos Direitos dos Doentes - 18 de Abril (PT)
- EFANET (18 Apr. 2019): Delivering patient value discussed at EU Parliament
- ESPRIU FOUNDATION (17 Apr. 2019): Health cooperatives are a clear commitment to patients’ rights
- AÇORIANO ORIENTAL (15 Apr. 2019): Saúde - Os Direitos dos Cidadãos e as Eleições para o Parlamento Europeu (PT)
- AÇORIANO ORIENTAL (10 Apr. 2019): 13º Dia Europeu Dos Direitos Dos Doentes (PT)
- EU REPORTER (10 Apr. 2019): Conference, Digital Day 3, and the rights of patients
- EURONEWS (9 Apr. 2019): How the EU fails patients trying to access critical medicines
- GLOBAL COALITION ON AGING (9 Apr. 2019): How the EU fails patients trying to access critical medicines
- PATIENT FOCUSED MEDICINES DEVELOPMENT (9 Apr. 2019): XIII EUROPEAN PATIENTS' RIGHTS DAY
- NAVARRA EN EUROPA (8 Apr. 2019): Join us for the XIII European patients' rights day 2019! 9th & 10th april 2019, European Parliament, Bruxelles
Albanian Patients’ Rights Day 2019
Last 18 April, in occasion of the European Patients' Rights Day, Mrs. Arlinda Shehu, Program Manager at Association "Together for Life", historic partner of Active Citizens Network, talked for TV SCAN about the respect of the patients' rights in Albania and the work done by "Together for Life" for the protection of such rights. Listen the interview in national language.
Arlinda Shehu, Program Manager at Association "Together for Life"
Albania: Respect for patient's rights, respect for life
The Albanian Charter of Patient’s Rights was approved by Order of the Minister of Health in December 2010. In the framework of the European Day of Patients 'Rights, "Together for Life", historic partner of Active Citizens Network, presented the Study on Patient Challenges with Hemophilia, and supported a media campaign to raise the voice of respecting patients' rights. To know more, click here (video in national language).
Bulgarian Patients’ Rights Day 2019
Bulgarian Association for Patients' Defense, partner of Active Citizenship Network, published in national languages communication material regarding the European Charter of Patients' Rights. To download the documents click here.
Cyprus Patients’ Rights Day 2019
The Minister of Health, on behalf of the President of the Republic, addressed the event organized by the Cyprus Federation of Patients’ and Friends’ Associations, on the occasion of the European Patients’ Rights Day, at the Presidential Palace. To know more, click here.
Irish Patients’ Rights Day 2019
In occasion of the Irish Patients’ Rights Day organized in Dublin last May 14th by the Irish Patient Organization, Antonio Gaudioso, Secretary General of Cittadinanzattiva, received a special award for his substantial work and commitment for Patients’ Rights. Read the programme of the initiative and listen a radio-interview of Gaudioso.
Antonio Gaudioso together with Stephen A. McMahon, Co-founder and Director of the Irish Patients Association
Italian Patients’ Rights Day 2019
Over 50 initiatives throughout Italy promoted by Cittadinanzattiva-Tribunal for Patients' Rights on the subject of waiting lists. To know more, click here (IT language).
Azienda Usl Toscana centro. Read more
Vita (18 April, 2019): Giornata europea dei diritti del malato: oltre 50 iniziative in tutta Italia (IT)
CataniaMedica (24 April, 2019): Il 27 Aprile la Giornata europea dei diritti del malato (IT)
Ansa (18 Apr. 2019): Giornata europea diritti del malato, tema liste d'attesa (IT)
2018
At European Level
European Committee for Standardization (CEN) Read more
European Federation of Nurses Associations Read more
At National level
Italy
Cittadinanzattiva in more of 40 cities Read moreSanità informazione, Read more (IT)
Belgium
La LUSS, la Ligue des usagers des services de santé Read more
Vlaamspatienten platform Read more
H. Hartziekenhuis Mol Read more
Lokeren Market Read more
Christelijke Mutualiteit Read more
Bosnia
Kap Read more
Bulgaria
Ombudsman Read more
Lex Medica Read more
Health Forum Read more
MOreto.net Read more
RHIF Read more
Center for Reproductive Health "Dr. Vasil Daskalov" – Plovdiv Read more
Croatia
Prava pacijenata - ogranak Zadar Read more
Ljekarna Pharmacy Read more
Hrvatski Radio Read more
Ombudsman Read more
Coalition of Health Associations & Europa Donna Croazia Read more and Read more
Cyprus
Pancyfian Federation of Patient and Friends Associations (PPSFF) Read more
Health Minister Read more
Finland
Diabetesliitto Read more
Helsinki e Uusimaa Hospital District (HUS) Read more
District Hilkka Manner Read more
Soite Read more
France
France Assos Santé Read more
ASL Liga – Ligue SLA Read more
Clinique Charcot Read more
Conférence Régionale de la Santé et de l'Autonomie des Hauts de France Read more
La Maison des Usagers du CHPA-CHIAP Read more
Agences régionales de santé du Nord-Pas-de-Calais et de la Picardie Read more
Hôpitaux du Pays du Mont-Blanc Read more
Hospices Civils de Lyon Read more
Groupe Hospitalier Mutualiste Les Portes Du Sud Read more
Centre Hospitalier Victor Jousselin de Dreux Read more
Clinique Saint Antoine Read more
Concours national « Droits des usagers de la santé » Read more
Greece
General Hospital of Imathia Read more
General Hospital "George Papanikolaou Read more
General Hospital Papageorgiou Read more
General Hospital of Tolemaide Read more
Lithuania
State Center for Mental Health Read more
Malta
Malta Medicines Authority Read more
Malta Health Network & No Pain Foundation Read More
Poland
Ombudsman Read more
Portugal
Jornal Universitário Do Porto Read more (PT)
Ordem Dos Enfermeiros Centro Read more (PT)
Serviço Nacional de Saúde Read more
National School of Public Health della New University of Lisbon (ENSP-NOVA) Read more
Ordem Sao Francisco do Porto Read more
Alzheimer Portugal Read more
Slovacchia
Hon Medik Read more
Spain
Plataforma de Pacientes Read more
Pediatria social Read more
AENOR Read more
Clinicas Vitaudio Read more
Organizazion medica collegial de Espana Read more
Escuela de Salud y Cuidados de Castilla-La Mancha Read more
Sindicato de Enfermería (Satse) Read more
Asociación Pheipas Read more
INCIBE Read more
Hospitales San Roque Read more
Asociación Española de Portadores de Válvulas Cardíacas y Anticoagulados Read more
Federación Española de Cáncer de Mama (FECMA) Read more
EAM Hospital Read more
Federación Española de Diabetes (FEDE) Read more
Hospital Guadarrama Read more
Terapia Psicológica Read more
And much more….
Some of the clippings and articles about the conference:
Observatory of Adherence to Treatment from Spain Read more (ES)
Italia Oggi Read more
IAPO Read more
EHMA Read more
Juponline Read more
Atlas dasaude Read more
2017
At European Level
The International Federation for Spina Bifida and Hydrocephalus. Read more
International Diabetes Federation Read more
In Italy
Cittadinanzattiva and its 108 events Read more
In France
Le Collectif Interassociatif Sur la Santé Read more
Clinique du Parc France Read more
Agence régionale de santé (ARS) Provence-Alpes-Côte d’Azur (Paca) Read more
Centre hospitalier du val d’Ariège) et le CHPO (Centre hospitalier du pays d’Olmes) Read more
Centre Hospitalier de Valence France Read more
Federation De L'Hospitalisation Privee (Fhp) Read more
Hôpital Européen Read more
Saint Thomas Read more
Polyclinique les Fleurs Read more.
Polyclinique des Alpes du Sud Read more
Centre Hospitalier du Haut Bugey Read more
In Belgium
LUSS Read more or
Le SPF Santé publique Read more
Droits Quotidiens Read more
Cliniques del Europe Read more
Jolimont Group Read more
Clinique Bénigne Joly Read more
Centre Hospitalier du Haut Bugey Read more
Chu Brugmann Read more
Christian Mutuality (CM) Read more
In Spain
La Plataforma de Organizaciones de Pacientes Read more
Federación Nacional de Enfermos y Trasplantados Hepáticos, Read more
Consejo General de Colegios de Fisioterapeutas de España Read more
Generación Elsevier Read more
Residencia Sierra de las nieves Read more
INNOMEDYX knowledge in action Read more
Europe Direct Region De Murcia Read more
LA NUEVA CRÓNICA (17 Apr 2017): Poco que celebrar en el Bierzo en el Día Europeo de los Derechos del Paciente (ES)
In Croatia.
Croatian Association for the Promotion of the Rights of Patients Read more
KUZ-u Read more
Parents of young diabetics Read more
In Greece
Ιησώ Read more
In Slovakia
WHO Slovakia Read more
In Portugal
A news from the NHS Read more
Acoriano Oriental 20-05-2017
A Enfermagem e as Leis Read more (PT)
In Finland
Tietosuojavaltuutetun toimisto Read more
In Kosovo
Kosovapress Read more
In Bosnia-Erzegovina
Kliničkog centra Univerziteta u Sarajevu (KCUS) Read more
In Ukraina
Diabetes Federation Ukraina Read more
2016
Spain
PyDeSalud, Read more (ES).
France
Infirmiers, Read more (FR).
2015
Italy
ASL-Cagliari & Cittadinanzattiva (8 May, 2015): IX Giornata Europea dei Diritti del Malato. Ospedale aperto: un modo per migliorare l’accoglienza (IT)
France
CISS Rhône-Alpes, based in Lyon, decided to celebrate the European Day of Patients’ Rights in the region. Since the first edition in 2011, this event is constantly growing. For the 5th edition which took place on April the 9th, 2015, over 100 health facilities participated and more than 4500 people were sensitized. Hospitals, clinics, associations, volunteers, doctors and directors were mobilizing to make known the patient’s rights. The “European day of patient’s right” has become an emblematic day in the whole region. In 2015, the event also overcame the barriers of the region and took place in more than 7 other regions in France. Overall, this day-long event to raise awareness about the patients’ rights gathered together almost 200 hospitals and clinics, 500 volunteers and more than 8000 citizens who came to inquire about their rights. Download the press book
2014
At the European level
European Public Health Alliance, Read more here.
ECDA-The European Chronic Disease Alliance (12 May, 2014): ECDA delivered a presentation at the 8th European Patients’ Rights Day in Brussels
In Portugal
JUSTNEWS (12-13 May 2014) Doentes com doenças crónicas estarão em foco no 8º Dia Europeu dos Direitos dos Doentes (PT)
European Patient Right Day: local initiatives in Italy
As every year, the European Patients 'Rights Day was celebrated by the local branches of the Tribunal for Patients' Rights in about 70 Italian cities. The European Charter of Patients' Rights has been distributed in different events (seminars, street meetings, open days of the local headquarters etc..). The Italian celebration has been realized also thanks to an unrestricted educational grant from Johnson & Johnson Medical. Download the press coverage
2013
Italy
Trentino Cultura (18 April 2013): Giornata europea dei diritti del malato (IT)
Malta
Gozo News (15 May 2013): 10 benefits for EU patients – European Patients’ Rights Day
Malta Independent (12 Apr. 2013): European Patients’ Rights Day
At the international level
AMERICAN ACTIVIST AGENCY (March 13, 2013): European Patients’ Rights Day
2012
Italy
Comune di Napoli (Published date: 18 April 2012): VI Giornata Europea dei diritti del malato
Azienda Ospedaliera Brotzu-Regione Sardegna (18 April 2012): VI Giornata Europea dei Diritti del Malato. Il Consenso informato e la Cartella clinica: due strumenti di tutela del cittadino
2011
Malta
Times of Malta (18 April 2011): Malta ranks below EU average
At the European level
Health First Europe (13 April 2011): HFE attends 5th Annual Patients’ Rights Day: Putting citizens at the centre of EU policy
Extra eu
Pittsburgh Post-Gazette (21 mar 2013): Promoting success in any language
2010
Italy
TECNICA DELLA SCUOLA (16 April, 2010): Giornata europea per i diritti del malato (IT)
2008
Malta
Times of Malta (18 Apr 2008): European Patients’ Rights Day
And much more….