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Monthly Newsletter edited by Cittadinanzattiva-Active Citizenship Network
Year 11th, number 110 - January 2023



Thanks to Active Citizenship Network's growing accreditation at the European level, Cittadinanzattiva has consolidated a continuity of action never seen before with regard to projects funded by European Union programs. In fact, it has won European projects promoted by nine different funding programs (EuropeAid, Europe for Citizens, Erasmus+, Intelligent Energy Europe, H2020, European Union's 3rd Health Programme, European Union's 4rt Health Programme, IMI-Innovative Medicine Initiative, Fondo Sociale Europeo). Read more.


AHEAD - Action for Health and Equity: Addressing medical Deserts (2021 /2023)
Co-funded by the Health Programme of the European Union. AHEAD addresses the challenge of medical deserts and medical desertification in Europe in an effort to reduce health inequalities. At the civil society and EU level, the ultimate impact is better access to health services, especially in underserved areas, and more equitable access to sufficient, skilled, and motivated health workers, starting with the countries involved in the Project: Romania, Serbia, Moldova, Italy (represented by Cittadinanzattiva/Active Citizenship Network) and the Netherlands. Cittadinanzattiva-ACN is the leader of WP6, which is about the Policy Dialogue at the national and EU level to ensure a joint reflection on practical, feasible, and acceptable policy measures to prevent and counteract medical deserts among national and European key stakeholders and relevant decision-makers. Read more (EN - IT)

Patients' Rights

PROPHET - PeRsOnalized Prevention roadmap for the future HEalThcare (2022/2026)
This project has received funding from the European Union’s Horizon 2020.
PROPHET will develop a Strategic Research and Innovation Agenda (SRIA) for Personalized Prevention to support the definition and implementation of innovative, sustainable and high-quality personalised strategies that are effective in preventing chronic diseases. Prevention is in fact a high priority at the European level: 900,000 people in EU countries die prematurely every year due to risk factors that can largely be prevented through a shift from the treatment of established diseases to a “person-centered” disease prevention and early diagnosis, where citizens and patients are equals and active partners in their care pathway. Cittadinanzattiva is particularly involved in raising awareness among citizens and patients on the potential of Personalized Prevention, specifically on the quality of life and health outcomes improvement, and the possibility of engaging them to define personalized preventive services accepted and used by the public. Read more

PROPHET at work
From 21st to 23rd of September 2022 the first meeting of PROPHET was held in Rome at the Università Cattolica del Sacro Cuore (UCSC). The project has been funded by the European Commission's Horizon Europe programme, cluster 1- destination 1: “Staying healthy in a rapidly changing society" and is part of the International Consortium for Personalised Medicine (ICPerMed). Read more

NIGHTINGALE - Novel integrated toolkit for enhanced pre-hospital life support and triage in Challenging and large emergencies (2021/2024)
This project has received funding from the European Union’s Horizon 2020 research and innovation programme. NIGHTINGALE, started in 2021, is developing and validating an innovative set of integrated tools for significant Medical Emergencies response: a multi-technological toolkit that links the different actors involved in managing the emergency and will serve emergency physicians and non-medical civil protection agencies (firefighters, police, but also volunteers and citizens). The goal is to improve pre-hospital life support and triage substantially. In addition, the tools developed will allow a shared response between emergency medical services, non-medical civil protection personnel, volunteers, and citizens by increasing their "field of vision," information sharing, and communication between teams and those affected. Cittadinanzattiva, mainly through Active Citizenship Network, will bring a civic perspective while ensuring that the developed solutions meet citizens' needs and enhance their skills. Read more (EN – IT) and related pages.

Here you will discover project updates, behind the scenes knowledge and partner insights. Watch the interview with Sabina Magalini from the Italian University Cattolica del Sacro Cuore, and check out the highlights from the first NIGHTINGALE tabletop exercise. This took place at Karolinska University Hospital in Stockholm. Apart from the videos, a new NIGHTINGALE publication is out! Education, training and technological innovation, key components of the ESTES-NIGHTINGALE project cooperation for Mass Casualty Incident preparedness in Europe. Read more

FACILITATE - Framework for Clinical Trial Participants’ Data Reutilization for a Fully Transparent and Ethical Ecosystem (2021/2024)
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU). FACILITATE is a 4-year project; its primary goal is to enable clinical trial participants to access and make use of their, gathered during studies, health data, to facilitate better shared medical decision-making among the health professionals involved in their care while simultaneously developing a method that allows data to be re-used in future research. FACILITATE will ensure that the whole process, from data collection to its destruction or anonymization, including its sharing and re-use, is legally and ethically compliant and aligned with the study participants' but also hospitals', academia, and industries' voices.
In FACILITATE, Cittadinanzattiva-ACN co-leads the WP6, the work package dedicated to communication and dissemination, particularly for coordinating the stakeholders' involvement. Read more (ENIT).

A lot has happened along 2022: all the objectives have been reached and due deliverables sent to IHI, research activities are ongoing, legal, ethical, and regulatory studies are underway, internal meetings are held regularly, and expert decision-making committees have been set up. All this progress was successfully discussed at the first General Assembly meeting, which has been held in Modena, Italy last November 2022, under the banner of optimism and awareness that the project is growing and making progress within all work packages. A first public webinar – “Let’s FACILITATE” has been held last 27 January 2023. Read more on the website and join our pool of stakeholders here!

Consumers' Rights

BIORECER - Biological Resources Certifications Schemes (2022/2025)
This project has received funding from the European Union’s Horizon research and innovation programme. BIORECER aims to ensure the environmental performance and traceability of the biological feedstock used by bio-based industries by deploying guidelines to strengthen the current certification procedures. Through this approach, bioproducts' added value, use, as well as social acceptance will be increased. In this project, Cittadinanzattiva-Active Citizenship Network is mainly involved in coordinating and supporting the stakeholders' involvement process. Read a suitable article.

BIORECER at work
Starting last 13 September 2022 with the online kick off meeting the project had its first face to face general meeting in Santiago de Compostela with the description of the main case studies. Thanks to Universidade de Santiago to host us at Pazo de Fonseca. Read more

NUDGE - Nudging consumers towards Energy efficiency through behavioural science (2020/2023)
NUDGE has received funding from the European Union’s Horizon 2020 research and innovation programme. NUDGE aims to systematically evaluate and fully unleash the potential of behavioural interventions toward achieving higher energy efficiency by paving the way for the generalized use of such interventions as a worthy addition to the policy-making toolbox. The project, which has a planned duration of 36 months, is carried out by a multidisciplinary team of 10 partners and trials that will take place in 5 different EU countries. Taking into consideration the Italian situation on matters concerning renewable energies and also given the EU's position on the importance of energy efficiency, Cittadinanzattiva as the only Italian participant, decided to join the NUDGE consortium intending to contribute to achieving the adoption of behaviourally tested policy interventions at the local, regional, national, and EU level. Read more (EN – IT).

More information:

- The energy transition and you

NUDGE at work

Nudges: what they are and some examples in a new comprehensive poster
Nudging is a soft push, that can make people act or react — and consume less energy — because they are told their neighbours or peers do so for instance or by changing the default settings of energy devices. The different kind of nudges are presented here, gathered by the NUDGE project, funded by the European Horizon 2020 programme, aiming at investigating the potential of behavioural interventions towards achieving higher energy efficiency, paving the way to the generalized use of such interventions as a worthy addition to the policy-making toolbox. Cittadinanzattiva is the only Italian entity officially involved in the consortium. Discover more in our new poster!

Profiling and nudging energy consumers to heat efficiently
Aside from measures such as using more energy-efficient appliances or renovating homes, understanding & changing user behaviour is an essential & impactful part of reducing energy consumption. Read the policy brief realized in the context of NUDGE project, funded by the European Horizon 2020 programme, in which Cittadinanzattiva is the only consumer organization officially involved in the consortium.

Civic Activism

BLISS - Boosting health LIteracy for School Students (2022/2024)
The Erasmus project BLISS wants to respond, with an integrated intervention from both the educational and social point of view, to the "need for health" and the related need to have the digital tools necessary to find, analyze, and understand the news about health. BLISS aims at responding to the horizontal priority related to the promotion of innovative pedagogical strategies in the context of digital transformation, offering a training course aimed primarily at teachers but which will then benefit students of secondary schools in six European countries. Read more

BLISS at work
On December 15 and 16 in Rome, the kick-off meeting was held to officially launch the BLISS project, funded by the European Union within the Erasmus+ program. In addition to Cittadinanzattiva and Egina for Italy, the project involves universities and student associations from Cyprus, Greece, Germany, Romania and Belgium, partners who will work together to address the need for tools to find, analyze and understand news about health. The project will run for 24 months and will include training on "digital health literacy," initially involving teachers and then benefiting secondary school students from 6 European countries, and then expanding to an even broader context through the planned project outcomes. BLISS is intended to contribute to the development of Digital Health Literacy in Europe through targeted training, documentation and piloting actions in the school sector. Read more (IT)

ENGAGE - Engage Society for Risk Awareness and Resilience (2020/2023)
The ENGAGE project received funding from the European Union's Horizon 2020 research and innovation programme. ENGAGE addresses research and innovation on resilience as an organisation's intrinsic capacity to adjust its operations during adverse change events and actively support operations before, during and after disasters. The project aims to deliver solutions to support citizens, communities and authorities' engagement through an integrated approach, starting from the knowledge, skills and social capital existing at all societal levels. It connects the everyday resilience inherently part of citizens with the formal work done by authorities to prevent, prepare for, respond to, and recover from disasters. As part of the ENGAGE project's research activities, Cittadinanzattiva played a crucial role in interviewing citizens from Aquila, in Abruzzo (Italy) who experienced the 2009 earthquake, aiming to contribute to the study by finding the best solutions to offer European societies to make their communities more prepared and therefore safer, for facing adverse change events. Read more (ENIT).

ENGAGE at work
What role can citizens play in disaster management? During disasters, citizens react in various ways. Some will try to flee the situation immediately while others will wait for help or indications from the authorities. In many cases, there are also citizens that spontaneously try to help others. They can form a valuable resource in disaster management. However, they can also aggravate the situation. In ENGAGE we have been looking at case studies in which different citizen actions were analysed and evaluated on various levels. Sometimes citizen actions were the key to mitigating a situation and sometimes they were actually hindering the work of first responders. This makes the topic of citizen involvement during disaster risk management a controversial one. The question is, can citizens help or are they putting themselves in danger, which consequently increases the pressure on first responders? When is it good to help and what kind of help is needed? How can citizens be a resource in disaster situations, helping first responders resolve the imminent danger quicker? Read more

Clippings, Interviews, Web & Press Articles

HEALTH EUROPA (11th January 2023): Towards the ‘Global Health Charter’ from a citizen’s perspective

INNOVATION NEWS NETWORK (6th January 2023): How can we ensure citizens are safeguarded from rising energy prices?

HEALTH EUROPA (5th January 2023): The value of investing in Advanced Therapy Medicinal Products

BREAKING LATEST NEWS (January 5, 2023): The solution of the generics. “But the doctors are holding back”

BREAKING LATEST NEWS (December 21, 2022): The electronic prescription expires, the doctors: ‘Awaiting extension’ – Medicine

THE NEWS DEPT (December 21, 2022): Life-saving newborn screening, examinations, advanced tools

BREAKING LATEST NEWS (December 20, 2022): Electronic prescription, doctors against the stop from 2023: extension needed

THE NEWS DEPT (December 13, 2022): Chronically ill, more than ten years before a diagnosis in one in three patients

THE NEWS DEPT (December 13, 2022): Chronically ill, one in three waits up to 10 years for a diagnosis

BREAKING LATEST NEWS (December 11, 2022): On a stretcher 5 days before hospitalisation

BREAKING LATEST NEWS (December 1, 2022): Covid, prevention is increasingly done in the pharmacy

THE NEWS DEPT (December 1, 2022): Pharmacies, not just medicines: in more than 1 in 3 screening and vaccines

THE NEWS DEPT (November 30, 2022): Papillomavirus only 32% of eleven-year-olds completed vaccination

YAHOO FINANCE (November 21, 2022): Shionogi, Active Citizenship Network and MEPS Advocate for Urgent Policy Implementation in EU Member States at EU Parliament Event to Address the Growing Threat of Antimicrobial Resistance

BREAKING LATEST NEWS (November 11, 2022): How much are genomic tests used? Cittadinanzattiva asks the Regions for data


14 March 2023 | 14:30-17:00 CET – Join our new EU training seminars
ACN is pleased to invite you on next March 14, 2023 to a double EU training event on the following topics: “Improving health literacy & protecting the value of access to care for better public and patient involvement in mitigating COVID. Register here (registration is free but mandatory)
This activity – realized in the framework of two projects: “Improving health literacy for better public and patient involvement in mitigating COVID-19 pandemic using interactive and intuitive educational tools” & “Protecting the value of access to care during - and after - the COVID-19 pandemic across Europe: focus on antivirals is addressed to representatives of Patients Advocacy Groups (PAGs) & civic associations coming from the EU. It will allow to provide a common set of updated information, share information, identify lessons learned but also to obtain feedback from PAGs.


Director and Editor in chief: Mariano Votta
Editors: Daniela Quaggia, Bianca Ferraiolo
Coordination and Production: Giacomo D'Orazio 

To contribute, plase write to: mail@activecitizenship.net

Active Citizenship Network c.o. Cittadinanzattiva - Via Imera 2 - 00183 Roma - Tel. +39 6 367181 - Fax +39 6 36718333
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Tel: (+39) 340 84 65 097 Mail: brussels@activecitizenship.net