Evidence collected during the crisis show that COVID-19 has had a significant impact – for instance - on non-communicable diseases (NCDs): indeed, oncological and chronic patients have been left almost alone for several months. From the point of view of an organization which promotes citizens’ activism for the protection of everyone’s rights, offering support to people in vulnerable conditions, it was not acceptable to respond to the immediate needs of citizens facing the Covid-19 pandemic simply by closing services. Instead, alternative organizational solutions are needed to guarantee continuity and quality of care, as well as a resilient health workforce.
The project idea is in line both with our contribution to the fight against COVID-19 and with our long-term commitment in the field of NCDs & therapeutic adherence.
To summarize all, the project idea envisages the realization of 4 main milestones:
A - EU training session: thanks to the support of external experts, this activity - open to a selected number of leaders of Patients Advocacy Groups (PAGs) & civic associations coming from the EU Member States – will allow to provide a common set of updated information, share information, identify lessons learned but also to obtain feedback from PAGs on their understanding of the risk of viral infections, including COVID for their patient communities. Read more
B – Social media campaign. As a follow-up of the EU Training session, leaders of the associations and PAGs will be encouraged with the support of an external communication agency, to co-develop key messages starting from their concrete experience during the pandemic and focused on the value of the patients’ right to timely access to care in the post-COVID area. Read more
C – Policy Recommendations. Drafted by experts & PAGs involved in the A & B activities, the activity will be finalized to the draft of a common policy document dedicated to changes needed to improve patient access to care in the post-COVID area. In particular, the Policy Recommendations will be tailored for EU and National Institutions, HCPs, PAGs focused on the value of access to care during - and after- the COVID-19 pandemic across Europe, with a specific focus on antivirals.
D – Policy Dialogue with the EU Institutions. A public event at the EU Parliament in Brussels, hosted by the MEPs Interest Group focused on patients’ rights, will be organized in order to present and share to the EU Institutions, starting from the EU Commission, the Policy Recommendations in the meantime endorsed by the associations involved right from action A and other interlocutors made aware thanks to action B. The final aim is to ask to the EU Institutions and governments to take commitment for pandemic preparedness and to prevent the danger of the next wave, acting with particular attention to the patients with need of acute care and treatment.
The project has a duration of 12 months and started in January 2023.
Learn more about Cittadinanzattiva's engagement against COVID-19 here.
For more information, please feel free to contact
The project has been realized thanks to the unconditional support of Pfizer