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Monthly Newsletter edited by Cittadinanzattiva-Active Citizenship Network
ABOUT US | OUR NETWORK | WHAT WE DO | MEDIA | EU POLICY DIALOGUE |
Year 12th, number 130 - November 2024
Highlight

World AMR Awareness Week and our commitment to the topic
On the occasion of World Antimicrobial Resistance Awareness Week and European Antibiotic Awareness Day, we are excited to share our latest article: ‘Italy's opportunity to stop superbugs, from the National Action Plan on Antimicrobial Resistance to the Italian G7 Presidency’. It highlights Cittadinanzattiva's ongoing commitment to the fight against antimicrobial resistance at national and EU level. Read more. To download the article,click here.

Focus

ACN policy paper on ATMPs published
ACN published a new policy paper entitled ‘Strengthening the European ecosystem for equitable patient access to Advanced Therapy Medicinal Products’, based on a multi-stakeholder roundtable discussion held on 4 July 2024. The backbone of the discussion was the study conducted by the #VITA consortium, which includes a concrete proposal to make spending on advanced therapies no longer a current expense but an investment. The ACN paper garnered interesting insights from independent experts from Belgium, the Czech Republic, France, Italy, the Netherlands, Spain and the UK, also reflecting on which direction we should move and how the newly elected European institutions should act to make the right to care enforceable in the context of ATMP.To download the document, click here.

Network News

SPECIAL SECTION ON NEW OFFICIAL PARTNERSHIP AGREEMENTS

Active Citizenship Network keeps growing. In this newsletter, we report new agreements formalised at national level, which testify on the one hand to the growing interest in our work and on the other hand to our willingness to work in synergy with the many civil society actors and PAGs pursuing common goals in all Member States.

Signed an official agreement with Sociedade Portuguesa de Literacia em Saúde (SPLS)
Active Citizenship Network is pleased to announce the signing of the Memorandum of Understanding with the Portuguese Health Literacy Society, a non-profit association established in 2022 with a scientific and educational character. It pursues scientific, educational, technical, organisational, ethical and human aims in the promotion, development and improvement of Health Literacy practice. As a result of the agreement, the ACN invited the SPLS to partner to submit a concrete proposal in the framework of the call for increasing health literacy for cancer prevention and treatment.Read more about ACN's new partner.

Official agreement with the Council of Representatives of Lithuanian Patient Organizations Founded in 2002, the main objective of the Council (Lietuvos pacientų organizacijų atstovų tarybos pirmininkė) is to represent the civil, social and economic rights of patients, to protect their freedoms and dignity by implementing the principle of full participation of patients in society on the basis of the European Social Charter and legal acts adopted by the United Nations, the European Union and the Republic of Lithuania, other international documents and universally recognised moral standards. Consistent with the recent agreement, the Council leader participated in the ACN-led EU initiative on vaccination policy on 25 and 26 June 2024. Read more about ACN's new partner.

New partnership with Prometheus, Hellenic Liver Patient Association
Active Citizenship Network is delighted to announce the signing of an official Memorandum of Understanding with Prometheus, founded in Greece in 2021 with the mission to ensure that beneficiaries of health services have universal access to care, timely diagnosis, adequate health care and respect for their inalienable rights. Read more about ACN‘s new partner.

Signed an official agreement with Drustvo Kultlab Celje from Slovenia
Active Citizenship Network is happy to announce the signing of a Memorandum of Understanding with its historic Slovenian partner. The purpose of Kultlab Celje is to group, promote and organise activities in the fields of social integration, volunteering, culture, the elderly and youth, education and the transmission of cultural, moral and ethical values. It is also a member of the international network promoting volunteering, active citizenship and social justice. Read more

Signed an official agreement with Impact 2040 from Latvia
ACN signed a memorandum of understanding with the Latvian NGO Impact 2040, which is committed to consumer and health issues. The association is also a member of the European Consumers Union and - invited by Cittadinanzattiva-ACN - a representative of Impact 2040 participated in the Biorecer Stakeholder Meeting on 2 October 2024 in Milan (Italy). Read more

New partnership with the Slovenian NGO Association for Justice and Control
Active Citizenship Network is glad to announce that an official memorandum of understanding was signed with the Slovenian Association for Justice and Control (Združenje Za Pravičnost In Nadzor) and that its representative participated in the ACN EU training and advocacy workshop ‘Empowering & mobilising PAGs on COVID-19 and long COVID’ held in Brussels in October. Read more

New media partnerships with two peer-reviewed journals
Cittadinanzattiva-Active Citizenship Network has signed an official agreement with the publisher AMO, specialised in publishing scientific journals and books. In particular, the media partnership refers to two bi-monthly peer reviewed open access journals: European Journal of Theoretical and Applied Sciences (ISSN 2786-7447) and European Journal of Medical and Health Research (ISSN 2786-8524). Read more

Events

25 - 27 November 2024 I Madrid (Spain): kick off meeting of the EU-funded "OH-FINE" project
Organic Farming Innovations Network Europe (OH-FINE) is a 48-month EU-funded project that aims to empower farmers and smallholders in the EU through the definition, enhancement and transfer of competitive and efficient organic farming knowledge and alternatives that respond to farmers’ capacities, consumers’ needs and changes in the food market. As a member of the consortium - representing the views of citizen-consumers - Cittadinanzattiva-Active Citizenship Network will participate in the kick-off meeting of the project, scheduled from 25 to 27 November in Madrid. Read more

27 November 2024 I EU Webinar: “Advancing bio-based products certification: a collaborative path towards sustainability”
As a member of the consortium of the EU-funded BioReCer project, Cittadinanzattiva-Active Citizenship Network is pleased to invite you to a unique opportunity to learn about progress in the certification of biobased products and help shape a more sustainable future. The initiative is the 2nd multi-stakeholder meeting of the BioReCer project and will take place on 27 November 2024, from 12:00 to 14:00 CET, in the form of an online webinar.
For the registration (free but mandatory), click here. For further information, click here. For an introductory article, click here.

29 November 2024 I Barcelona (Spain) & online: 9thLife Course Immunisation Summit 2024
The 9th Life Course Immunisation Summit aims to address critical challenges of ensuring vaccination equity and preventing respiratory infections in all age groups. The summit consists of two focused working group meetings, bringing together experts to explore the vital need for accessible vaccinations at every stage of life and examine strategies to prevent RSV infection. Invited by its partner, Excellence in Pediatrics Institute, the director of Active Citizenship Network was invited as a speaker with a presentation titled “Grassroots Mobilisation: Leveraging Civil Society and Community Leadership to Bridge Gaps in Vaccine Coverage”. Read more. For the programme, click here.

4-5 December 2024 I Helsinki (Finland): AIB country meeting - Adult Immunization in Finland: successes, lessons learnt and perspectives for the future
One of the main objectives of the meeting is to review the structure of the healthcare system in Finland, focusing on how adult immunization programmes are integrated into the national immunization plan, analyzing current policies and strategies for adult immunization.
As an advisory member of the Adult Immunization Board, the Director of ACN will attend the meeting in Finland. For the programme, click here.

5 December 2024 I Budapest (Hungary): 16th Citizens' Energy Forum
In line with its long-standing commitment to energy issues, the Cittadinanzattiva network was invited by the European Commission to participate in the annual ‘Citizens’ Energy Forum'. The Citizens' Energy Forum provides a platform for consumers, regulators and industry to exchange on consumer rights in the EU energy market. Launched in 2008, the annual forum directly feeds into the Commission's work on energy and consumer policy. Read more

10 December 2024 I Chronic Disease Management, Life Course Immunization, and Healthy Aging in Europe
Organized by the Global Coalition on Aging, the expert online roundtable discussion – which has been invited the ACN’ Director – will bring together European and global experts from across noncommunicable disease areas (NCDs), life course immunization and vaccination, healthy aging policy, economic and fiscal policy, and patient advocacy. The goal of the roundtable will be to arrive at expert consensus on a core set of priority actions to leverage immunization for adults as a strategy for NCD management, making healthy aging more accessible for adults across Europe. Read more

11 December 2024 I Understanding the secondary use of clinical trial data: you are invited to the 2nd LET's FACILITATE 2024 webinar
Active Citizenship Network is pleased to invite you to the second LET's FACILITATE 2024 webinar, an interesting exploration and panel discussion focused on the EU-funded FACILITATE project and the perspectives of the various stakeholders involved in clinical trials. This session will focus on the importance of the secondary use of data collected during trials. Date: 11 December 2024 - Time: 14:30 to 16:00 CET. To find out more, click here. Register here to secure your place.

 


Director and Editor in chief: Mariano Votta
Editors: Daniela Quaggia, Bianca Ferraiolo
Coordination and Production: Giacomo D'Orazio 

To contribute, plase write to: mail@activecitizenship.net
www.activecitizenship.net ; www.cittadinanzattiva.it

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