Also this year, the Director of ACN has been invited to the annual COLLABORATE Rare Disease Multistakeholder Summit, an unique initiative putting together patients, patient advocacy groups (PAGs), caregivers, healthcare professionals (HCPs) and policy experts to discuss how to drive change in adult-onset rare disease. Download the COLLABORATE expert consensus paper “Challenges & Opportunities in Adult-Onset Rare Diseases: Perspectives from a Global Multi-Stakeholder Expert Group”, realized also with the contribution of ACN. To know more about the past edition, click here.