On 9 June, Prof. Johanna Blom, FACILITATE Coordinator, and Daniela Quaggia from Cittadinanzattiva – Active Citizenship Network (ACN) presented the work and progress of the FACILITATE project to the Industry Pharmacogenomics Working Group (I-PWG), following an invitation from the group’s co-chair.

The meeting offered the opportunity to provide an overview of FACILITATE’s achievements to date, its next steps and future direction, with a particular focus on the project’s approach to the Return of Individual Participant Data (RoIPD) “by design”. As part of the presentation, ACN also introduced the FACILITATE Principles: a short, plain-language summary of the project’s work, drawn from the FACILITATE White Paper, designed to make RoIPD easier to understand, communicate and implement across different stakeholder communities.

I-PWG is an association of pharmaceutical and biotech companies actively engaged in the field of pharmacogenomics (PGx) research, a key area for advancing more participant-centred, transparent and trustworthy data practices.

The participation in the I-PWG meeting represents another important step in the dissemination of FACILITATE’s work across the clinical research ecosystem, helping to foster discussion with industry stakeholders and support the practical implementation of RoIPD in future research.