ACTIVE CITIZENSHIP NETWORK
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Events

1 March 2017, 10:30 - 12:30 AM
Room ASP 7H1 -
European Parliament, Brussels

Programme

10:00 – 10:30 Registration & Accreditation
Meeting point: Altiero Spinelli (ASP) entrance from Place du Luxembourg

Chair: Lucie Robson – Senior Editor HealthManagement.org

10:30 – 10:50 Welcome address and keynote presentation

  • MEP David Borrelli (Italy) EFDD Group – Co-founder of the MEPs Interest Group “European Patients' Rights and Cross-Border Healthcare”
  • Mariano Votta – Director of Active Citizenship Network

10:50 – 11:20 Towards a collaborative approach amongst NCPs, ERNs and patient organizations: exploring benefits and challenges of a joint cooperation

11:20 – 11:30 First assessment of the European communication campaign “Patients’ rights have no borders”

  • Sonia Belfiore – Project Manager European Affairs, Active Citizenship Network

11:30 – 12:20 Experiences & perspective concerning collaborations in cross-border healthcare. Proposals on how to cooperate efficiently with the other relevant stakeholders

  • Zsuzsa Almasi – Romanian National Alliance for Rare Diseases (RONARD)
  • François Houÿez – Treatment Information and Access Director EURORDIS
  • Ilaria Giannico – Secretary General UEHP (European Union of Private Hospitals)
  • Magdalena Rutkowska – President of Medical Travel Partner

12:20 – 12:30 Debate & closing remarks

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