The event, organized by the Federation of European Scleroderma Associations (FESCA), aims to bring together public, private and civil society stakeholders to discuss the results of new evidence collected on the gaps and practices in diagnosis and care of systemic sclerosis as well as the opportunities offered by ongoing health-related legislative proposals in addressing their root-cause. Special attention will be dedicated to the review of Regulation No 141/2000 of the European Parliament and of the Council on orphan medicinal products and the Proposal for a Regulation on the European Health Data Space.

If you are interested to attend the event, we kindly ask you to register here