The webinar on the "Right to innovation: understanding personalised prevention", realized in the framework of the EU-funded project PROPFHET, took place on 22 January 2026. It was a great success: more than 130 participants attended! Discussions around innovation, personalised prevention, and the importance for citizens took place.

Few key takeaways messages among others:

• Electronic Health Record (FSE): seen as a key lever but little used/understood by GPs and citizens
• Clarity and usefulness: strong appreciation for concrete examples and plain language
• Difference vs. “traditional” prevention: requests for practical explanations of what changes for patients and how to get started.

Here you can watch the recording (in Italian), and below you can download the speakers' presentations (by clicking on their names).

Diritto all'innovazione. Capire la prevenzione personalizzata

Online information session

22 Gennaio 2026- 18:00 -19:30

• 18:00–18:07|Opening

Valeria Fava (Head of Health, Cittadinanzattiva). Role of civic associations, current events (e.g., BRCA in the new Essential Levels of Care in Italy).

18:07–18:22 Francesco Di Berardino (Catholic University of the Sacred Heart) What is personalised prevention; differences from 'traditional' prevention; how it works in practice (integration of genetic, clinical, environmental and behavioural data); concrete examples (BRCA, cardiovascular risk, pharmacogenomics). Brief introduction to PROPHET.

18:22–18:32|Q&A

18:32–18:52 Antonio Cristiano (Catholic University of the Sacred Heart) Genetic/pharmacogenetic passport: what it is, how to obtain it, how to use it; where it is already a reality; benefits for citizens; state of the art in Italy; barriers and conditions for fair and sustainable implementation.

18:52–19:07 | Q&A

19:07–19:30 | Closing remarks and next steps

Daniela Quaggia e Valeria Fava

 Towards the next European Patients' Rights Day, dedicated to PROPHET and personalised prevention in the EU and Italy.