In the framework of the European project #VITA and as a follow-up to the training on ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups ACN have launched the call to actionATMPs revolution & the respect of the patients’ right to access to care (for further information download the complete call to action).
Across Europe, a patient who wants to access an ATMPs (a reality of cure for patients suffering from serious diseases who have not yet found a concrete therapeutic answer) may face various obstacles of a social nature: lack of scientific knowledge, lack of regulatory uniformity and transparency, regional inequalities of access, and lack of public funds for this type of therapy.
For this reason, the following organizations have decided to endorse this Call to Action which is aimed at national and European Institutions first, but also at the whole health ecosystem including civic & patient associations, and citizens.
These are the associations that support the initiative:
International
International Council of The Patient Ombudsman | ||
International Patient Organisation for Primary Immunodeficiencies |
||
European
European Paediatric Translational Research Infrastructure (EPTRI) | ||
National organizations
Albania |
||
Albania | Together for life | |
Bulgaria |
Association of Reproductive Health, Pregnancy and Childcare "Smile" |
|
Bulgaria |
||
Bulgaria |
||
Bulgaria |
Patients’ Organizations “With you” | |
Bulgaria | The Innovations Institute | |
Croatia | Centar za edukaciju i informiranje potrošača | |
Croatia | Croatian Association for the Promotion of Patients' Rights | |
Croatia | Zadarski pacijent | |
Cyprus |
||
France |
|
|
Italy | A.L.I.Ce | |
Italy | A.M.O.R | |
Italy | Associazione Nazionale Alfa 1-At | |
Italy |
AS.MA.RA | |
Italy |
Cometa ASMME | |
Italy |
Comitato Macula | |
Italy |
||
Italy |
||
Italy |
Società Italiana Attività Regolatorie, Accesso, Farmacovigilanza |
|
Italy | Parkinson Italia | |
Kosovo |
||
Malta | Malta Health Network | |
Malta | National Patients' Organisation - Malta | |
Netherland | Orphans Feeding FoundationOrphans Feeding Foundation | |
Netherland | EPECS | |
Poland | The Institute for Patient Rights and Health Education | |
Portugal | MOG Movimento Oncológico Ginecológico | |
Portugal |
|
|
Republic of Macedonia | Studiorum | |
Spain |
||
Spain |