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On 26 April 2023, Active Citizenship Network organized at the European Parliament in Brussels the 17th European Patients' Rights Day - entirely dedicated to the topic of access to treatment for Advanced Therapy Medicinal Products. On that occasion, the EU Health Commissioner Stella Kyriakides stated that “ATMPs give hope to patients where therapeutic options are currently lacking or non-existent, and they must be able to reach patients sooner. Our priority is always to put patients' interest first".
A year later, on 4 July 2024, Active Citizenship Network organized - in continuity with its commitment to the topic - a high-profile European closed-door meeting starting from that statement, aiming at understanding how to provide eligible patients with faster but also broader access to care.
Brussels, Belgium
EU training seminar
25 June 2024 – Bruxelles- 14.30 – 18.50
This training event brought together representatives from civic and patients’ associations in 12 European countries (see Here the participants’list) to discuss key topics in immunization.
The EU workshop “Towards country-observatories for vaccination promotion: the role of civic and patient organisations” organized in Brussels by Cittadinanzattiva-Active Citizenship Network on 26 June in the framework of the EU-funded project co-OPERATOR, aimed at laying the groundwork for the involvement in the project of civic and patient organisations committed to vaccination policies at European level. To this end, good practices implemented in this field by the Netherlands, Cyprus, Greece, Italy, Bulgaria, Malta, Croatia, Ireland and Poland were presented.
Look at some examples of hundred initiatives all around Europe. The European Patients’ Rights Day has become a fixed appointment in to improve patients’ rights in Europe and in each Member State!
Please, if also you would like to add your event for the celebration of the European Patients’ Rights Day in your Country, write to Daniela Quaggia
The Mission Board on Vaccination in Europe (MBVE) is a multi-disciplinary, multi-stakeholder thought leadership group established in 2023 under the chairmanship of Professor Walter Ricciardi. It has adopted a “mission approach” to the strengthening of immunisation systems across Europe.
MBVE is a pan-European collaboration, comprising multi-disciplinary academic experts, healthcare and public health professionals, civil society organisations (including Active Citizenship Network) and patient group representatives, as well as Vaccines Europe. Academics participating in the work include public health experts, vaccinologists, and health economists from Austria, Belgium, Germany, Hungary, Italy, Lithuania, The Netherlands, Poland, Portugal, Slovakia, and Spain.
The key role of HCPs for a healthier Europe
Combining the protection of patients' rights with skills shortage,
medical desertification and job strain
20 March 2024 | 16:30 – 18:30
Room ASP 3H1 | European Parliament, Brussels
PROGRAMME
Click on the names to download the presentations
We're looking for you to share your thoughts on an important initiative! Public and patient engagement plays a critical role in shaping the future of healthcare and research, particularly in preventing chronic diseases. We're excited to introduce you to PROPHET, an EU-funded project focusing on personalized prevention. Personalized prevention tailors healthcare interventions based on individual characteristics, combining factors such as genetics and lifestyle. PROPHET aims to gather insights from patients and citizens like yourself to optimize engagement in personalized prevention. For these reasons, we would like to invite you to participate in an (online) group discussion to share your unique perspective and experience.
14 February 2024 | 10:30 – 12:00
Room Spinelli 3H1 | European Parliament, Brussels
Programme
Knowing your territory is fundamental, it means awareness, it means being prepared for risk. Knowledge of the territory is a form of prevention in an extended form. It means being capable of a greater response, less conditioned by improvisation and the unexpected. Click to watch episode 1, episode 2 and episode 3 in the English subtitled version. To know more, click here.
As part of the exploitation activities carried out and promoted by Cittadinanzattiva within the EU-funded NUDGE project, four articles were published by the media partner Innovation News Network. To read them, click here: A – B – C -D.
They will also be included, along with other content, in a special issue entitled "Exploiting behavioral insights for energy transition" that will be published in the coming months.
Here is the video, produced as a follow-up to events held in Brussels in October and November.
In addition, Cittadinanzattiva has applied to realize a policy session - in the context of European Sustainable Energy Week (EUSEW) 2024 - entitled "Fostering EU citizen action for the energy transition: from recommendations to concrete experiences."
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
