X
The new platform aims to define and establish priorities in the provision of services for tuberculosis, to develop a joint plan for sustainability of services; and to ensure the integration and coordination of activities between existing and new civil society organizations. The initiative was organized by the Center for medicine, ecology and research MERC who is experienced in the field of prevention, education, advocacy and research on tuberculosis in Macedonia. MERC is a partner of the STOP TB partnership (WHO) and member of the TB Coalition Europe.
The aim of the agreement signed between the Italian Medicines Agency and the European Academy of patients on the Therapeutic Innovation is the investing on the empowerment and the education of the patient to promote the qualified participation in the experimental way, development and the monitoring of the medicines.
Last 20-21 July, in Canmore, Alberta (Canada), the Canadian Organization for Rare Disorders organized “High Level Summit to Craft Canada’s Orphan Drug Access Framework” to build on the results from the forums on a Canadian Strategy for Rare Diseases held during spring 2014. Antonio Gaudioso, Secretary General of Cittadinanzattiva, attended the meeting.
If you’re a patient living with disease, or a patient advocate acting on the behalf of someone or for a patient group with a medical condition, BMJ ‘d like to invite you to take part in a unique initiative to improve the patient centredness of BMJ research, education, and analysis articles by asking patients to comment on them.
A Patient Group Submission Template is intended to act as a guide for HTA organizations that they can amend to suit their specific needs. It should be offered to patient groups to enable them to submit information to an HTA. Patient groups and industry can use it to understand how patients' experiences can have most impact in HTA, support training and encourage its use by HTA organizations in their own country or region.
A Patient Group Submission Template is intended to act as a guide for HTA organizations that they can amend to suit their specific needs. It should be offered to patient groups to enable them to submit information to an HTA. Patient groups and industry can use it to understand how patients' experiences can have most impact in HTA, support training and encourage its use by HTA organizations in their own country or region.
Last June, during the 11th Annual Meeting HTAI at the Grand Hyatt Washington in Washington DC, USA, Cittadinanzattiva presented a speech titled “Multi-stakeholder partnership as a tool of citizens¹ empowerment to build a participatory HTA model in Italy”.
The research shows the weakness of the measures enacted to sustain the average Italian family which during the years has become more and more a weak subject squeezed between the economic crisis and a welfare system no longer adequate for the needs of a deeply changed society. The study led by Cittadinanzattiva was presented in April in Rome and in June in Romania too, during the EU conference “Civil Society and Solidarity in Times of Crisis. Addressing the Challenges of the Romanian and European Political Crisis”.
Improving the quality of life of older people is a priority for the European Commission, that has realised a new video on the importance of active and healthy ageing and targets a larger public.
The Health Commissioner Tonio Borg recorded a video message in occasion of the VIII European Patients’ Rights Day. He highlighted the important role of patients’ organisations and stated that although there is no consensus among EU countries about patient empowerment, it means ensuring they are fully informed and in control of their own health care.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
