The speakers examined the different chronic disease networkssuccessful experiences and their impacts on political decision making with examples of activities and objectives European networks can develop and achieve with a unified voice of different organisations.
One of the objective of the conference was to share best practices (BP) of different citizens and patients’ organisations on the two dimensions of patient’s empowerment, as defined by ACN:
- Improvement of a person’s capabilities to effectively self-manage his/her chronic disease;
- Enhancement of patient groups’ capacities to participate efficiently in health policies.
The Associations who participated in the conference called for new Members of the European Parliament and all European Institutions to support civic and patient organizations in their activities of Self-management & Education, Participation & Evaluation, Cooperation, Innovation, Information & Communication by producinga Joint declaration to improve the empowerment of citizens with chronic and rare diseases and their organizations.
The panel and discussion of the second day of the conference considered the importance of engaging the patient voice in the formulation and support of national and international policies that promote pharmaceutical and other medical research that leads to new preventions, treatments and cures for chronic diseases for which there are few, if any adequate treatments and cures.
By David Taylor, Professor of Pharmaceutical and Public Health Policy, UCL School of Pharmacy and chairman of the second day of the VIII European Patients’ Rights Day.
Read the article written by Tessa Richards, senior editor/patient partnership, BMJ, who attended the VIII European Patients’ Rights Day.
On the occasion of European Patients’ Rights Day, the European Commission issued a statement listing 10 benefits patients may enjoy due to existing EU legislation.
As every year, the European Patients 'Rights Day was celebrated by the local branches of the Tribunal for Patients' Rights in about 70 Italian cities. The European Charter of Patients' Rights has been distributed in different events (seminars, street meeting, open days of the local headquarters etc..). The Italian celebration has been realized also thanks to an unrestricted educational grant from Johnson & Johnson Medical.
To download previous document by the Constitutional Court of Italy, click here
Cittadinanzattiva, with the support of the Italian Ministry of Labour and Social Policies, has developed a project on improving access to pregnancy and maternity services by immigrant women in Italy. The project is inspired by the need to ensure that all women and their children have the same access to services during pregnancy and childbirth, regardless of ethnicity and social status and with equal dignity and safety.