A Patient Group Submission Template is intended to act as a guide for HTA organizations that they can amend to suit their specific needs. It should be offered to patient groups to enable them to submit information to an HTA. Patient groups and industry can use it to understand how patients' experiences can have most impact in HTA, support training and encourage its use by HTA organizations in their own country or region.
A Patient Group Submission Template is intended to act as a guide for HTA organizations that they can amend to suit their specific needs. It should be offered to patient groups to enable them to submit information to an HTA. Patient groups and industry can use it to understand how patients' experiences can have most impact in HTA, support training and encourage its use by HTA organizations in their own country or region.
Last June, during the 11th Annual Meeting HTAI at the Grand Hyatt Washington in Washington DC, USA, Cittadinanzattiva presented a speech titled “Multi-stakeholder partnership as a tool of citizens¹ empowerment to build a participatory HTA model in Italy”.
The research shows the weakness of the measures enacted to sustain the average Italian family which during the years has become more and more a weak subject squeezed between the economic crisis and a welfare system no longer adequate for the needs of a deeply changed society. The study led by Cittadinanzattiva was presented in April in Rome and in June in Romania too, during the EU conference “Civil Society and Solidarity in Times of Crisis. Addressing the Challenges of the Romanian and European Political Crisis”.
Improving the quality of life of older people is a priority for the European Commission, that has realised a new video on the importance of active and healthy ageing and targets a larger public.
The Health Commissioner Tonio Borg recorded a video message in occasion of the VIII European Patients’ Rights Day. He highlighted the important role of patients’ organisations and stated that although there is no consensus among EU countries about patient empowerment, it means ensuring they are fully informed and in control of their own health care.
“The role of civic organizations in the empowerment of patients with chronic diseases has been underestimated for too long. It is important that policy makers let organizations and patients actively partecipate in the management of chronic diseases. Not only to better their cure, but to cope with the caring, social, relational and psychological impacts of their disease”. Read the declarations of Antonio Gaudioso, Secretary general of Cittadinanzattiva in our press release
The speakers examined the different chronic disease networkssuccessful experiences and their impacts on political decision making with examples of activities and objectives European networks can develop and achieve with a unified voice of different organisations.
One of the objective of the conference was to share best practices (BP) of different citizens and patients’ organisations on the two dimensions of patient’s empowerment, as defined by ACN:
- Improvement of a person’s capabilities to effectively self-manage his/her chronic disease;
- Enhancement of patient groups’ capacities to participate efficiently in health policies.
The Associations who participated in the conference called for new Members of the European Parliament and all European Institutions to support civic and patient organizations in their activities of Self-management & Education, Participation & Evaluation, Cooperation, Innovation, Information & Communication by producinga Joint declaration to improve the empowerment of citizens with chronic and rare diseases and their organizations.