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This newly published handbook aims to provide a variety of activity types for individuals seeking to contribute to prevention and immunisation efforts but lacking the necessary guidance. It serves as a practical guide, offering actionable insights and ideas to inspire associations and enhance vaccination policies within their specific contexts. The handbook was developed by Active Citizenship Network in collaboration with Patient Advocacy Groups (PAGs) and Civil Society Organisations (CSOs) in the context of the fifth edition of our EU initiative #VaccinAction “Protecting the Value of Vaccination Across Europe”. The handbook was edited and designed by MD Health. For the Download, click here.
On the 4th of December, supported by the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare” and kindly hosted by MEP Vytenis Andriukaitis, we organized the institutional event presenting the FACILITATE IHI project results and Principles (now endorsed by 50+ patient and civic associations and still growing). A full room in Brussels — with patients, associations, researchers, companies, institutions, nurses etc. — and around 80 online participants made the session lively and interactive, highlighting the momentum behind Returning Individual Participant Data (RoIPD) “by design.” The discussion showcased why RoIPD matters for trust, health literacy, and research quality across Europe. Slides and the full recording will be available soon on ACN’s and FACILITATE’s websites. Read more here, here and here.
On 3 December in Brussels, we brought together 16 ACN’s partners associations from 12 countries to examine vaccines from a crucial angle: research. From the development pathway to what’s next.
The debate focused on new platforms and delivery methods, as well as the idea of “future vaccines”.
We also explored how giving clinical trial participants access to their own data can build trust and understanding. To know more, click here for all the materials presented, here, and here to see some pictures from the day.
Active Citizenship Network took part in the ICPerMed & EP PerMed Joint Conference on 26-27 Nov 2025 in Prague, an important European forum dedicated to the future of personalised medicine. We recently joined the People Engagement Board of EP PerMed, the European Partnership for Personalised Medicine. This marks an important recognition and a valuable opportunity to actively contribute to the implementation of the EP PerMed Strategy to Foster People Engagement in Personalised Medicine: improving public and patient understanding, awareness, and empowerment AND strengthening meaningful engagement. We thank EP PerMed for welcoming us on board. We look forward to working together and contributing to fruitful discussions and impactful collaborations in the years ahead. Read more
An inspiring two days in Lisbon gathering that brought together national institutions, international experts, and key stakeholders committed to advancing adult vaccination. Materials from the meeting are available online on the Adult Immunization Board - AIB website (background document, agenda and presentations.
In coherence with its long lasting committement on the topic, Active Citizenship Network is glad to join SIP Stakeholder Forum, led and coordinated by the organisation representing healthcare professionals in the fields of pain management and pain science.
Active Citizenship Network – Cittadinanzattiva, as a partner of the EU-funded PROPHET project, is pleased to invite you to take part in the ongoing public consultation, open from 26 June to 16 July 2025. This initiative supports our broader goal of helping define and implement personalised prevention approaches in EU health systems. We believe that effective personalised prevention strategies are only possible if citizens, healthcare professionals, and policymakers are fully aware of their potential and equipped with the knowledge and tools to co-design and implement them. All materials and the consultation form are available on this page. We strongly recommend you start by reading this factsheet, which summarises the purpose of the consultation and the Strategic Research and Innovation Agenda (SRIA),
We are pleased to announce that the 19th European Patients' Rights Day 2025 has been officially endorsed by the Polish Presidency of the Council of the European Union (January-June 2025) and by the Polish Commissioner for Patients' Rights, who is deeply committed to the implementation of concrete measures aimed at the official adoption of the European Charter of Patients' Rights at EU level, as outlined in the recently published White Paper “Healthcare Policy Recommendations”.
Ten years after its inaugural launch in 2015, we are pleased to announce the re-establishment of the MEP Interest Group “European Patients' Rights & Cross-Border Healthcare” for a third consecutive term.
Created to foster cooperation and close the gap between European institutions, civil society and all stakeholders involved in public health, the Interest Group brings a civic perspective to health policy, placing citizens at its core to drive meaningful and sustainable change.
On 4th and 5th December 2024, the AIB hosted its annual country meeting in Helsinki (Finland), bringing together local experts to discuss key aspects of adult vaccination. In 2023, the country meeting was realized in Florence (Italy), and on both occasions the Director of Active Citizenship Network, as AIB Board Member, joined the appointments.
Adult Immunization Board (AIB) Country meetings are a unique opportunity to exchange ideas and best practices for improving adult immunization strategies. Experts from academia, healthcare, public health, and policy shared their innovative approaches to tackling challenges in adult vaccination.
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