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The media partnership between Active Citizenship Network and Geneft,an online global open access publication company encouraging innovative and original works primarily in the area of health and medicine, was established to facilitate the exchange of good practices on the issues that are pertinent to them and to support each other’s activities at the European and international level in common areas of interest.
Over the last years, ACN has established a media partnership with Syncsci Publishing, a company dedicated to publishing high quality articles that provide innovative and scientific research findings to scholars worldwide. ACN and Synsci have agreed on the opportunity to work together in a media partnership to support initiatives that educate citizens, patients, physicians, and relevant stakeholders, and to submit potential manuscripts on the topic of public health and the aspects related to it, including, but not only, vaccination, NCDs, chronic pain.
The pdha.eu website is now officially ready to receive all of the innovative and exciting digital health solutions for improving care and quality of life for patients and their caregivers that participants will submit! The window for the Call for Applications has been activated on 7 June at 11.00 pm CET and will remain open until 6.00 pm CET on 8 July. Winners will be announced at the European Pdha 2022 Virtual Award Ceremony on 10 November from 4.00 pm to 5.00 pm CET, and for the second year in a row, Active Citizenship Network is involved in the Jury. To apply click here. To know more:PDHA'S origins and mission
If you missed the EU training seminar “ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups” here you can find the recording link and all the documents related to the #VITA project (Value and Innovation of Advanced Therapies), including the presentations of the speakers: prof. Andrea Grignolio, prof. Andrea Cicchetti and Leire Solis from IPOPI.
The training dealt with three main topics:
As part of this long-standing partnership with Advances in Health and Behavior (AHB), Active Citizenship Network has recently published, last May 2022, the article "Isolated but not alone: the response to the pandemic in the story of PAGs from the Italian case history to the Global Health Summit “Rome Declaration”". In occasion of the Global Health Summit held in Rome last May 21, 2021, the article analyzed the condition of chronic and rare patients during the Covid-19 pandemic through the findings emerged from the XVIII National Report on Chronic Policies of Cittadinanzattiva, presented on October 13th, 2020, and entitled: "Isolated but not alone: the response to the pandemic in the story of Patients Advocacy Groups (PAGs)".
The European Association for Educational and Preventive Health in Epigenetics (AESEP), an official partner of Active Citizenship Network, and a supporter of the European Parliament Interest Group on Patients' Rights and Cross-border Healthcare, promoted the celebration of the XVI European Patients' Rights Day at the national level in Portugal, together with the Chronic Pain Association of the Azores, also an official ACN partner. For the occasion, the Director of Active Citizenship Network has been invited in the panel. The national celebration of the 2022 European Patients’ Rights Day took place on the 18th of April in a virtual format. Each year the theme is adapted to the emerging needs of the public health scenario of the country. This year, AESEP focused on “Women's Health - The Future of Health in Europe - Innovating in Prevention and Well-Being”.
The Swedish patients’ association FOKUS Patient, which is an official partner of Active Citizenship Network, organized three digital seminars from 19 to 21 April at lunchtime, from 12:00 to 13:00 CEST, dedicated to the right to information and the right to consent, which are Articles 3 and 4 of the European Charter of Patient’s Rights, drafted by Active Citizenship Network in 2002. The aim of the seminars was to address the relationship between access to information and patients’ rights in a Swedish context.
Active Citizenship Network’s Portuguese historical partner Associação de Doentes de Dor Crónica dos Açores (Chronic Pain Association of the Azores) celebrated the European Patients’ Rights Day 2022 at the local level in the Azores Islands. The theme chosen was "Mental Health as Prevention of Suffering in Chronic Diseases: strategies and testimonies" and, for the occasion, invited the Patients Association Força 3P from Oporto to the online webinar, which will take place on the 19th of April at 18:00 AZOT.
The XV European Patients’ Rights Day has been celebrated with a virtual event by Active Citizenship Network with its traditional format of a big multi-stakeholder conference focused on the role played by key actors in the decision-making process on health priorities. In particular, just before the end of the Conference on the future of Europe, the expectations and requests of citizens and Patients Advocacy Groups (PAGs) addressed to the institutions have been analysed. The first day of the 2022 conference was dedicated to the presentation to the EU Institutions of the outputs of the themes that emerged from health-related initiatives organized in the framework of the Conference on the Future of Europe. During the second day the discussion focused on analysing the actual level of citizen involvement by the Member States close to the approval by the European Commission of most of the NRRPs and their implementation at national level. Read more
As Member of the EU-Russia Civil Society Forum, Active Citizenship Network will join its next General Assembly that will take place online on 24 May 2022. In the past days the forum has launched an anti-war initiatives of Forum members and partners. For further information please consult their website.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
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