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Active Citizenship Network is glad to announce that it has recently signed a new Memorandum of Understanding with the Cyprian Universal Patients' Rights Association (UPRA), the only organization in the northern part of Cyprus whose mission is based on patients’ rights and who is offering support for patients and their relatives in their struggle with the violation of their rights. UPRA’s vision and mission take their essence from the European Charter of Patients’ Rights. For this reason, ACN and UPRA have become partners to support each other’s initiatives on the topics of the protection of patients’ rights stated in the European Charter of Patients’ Rights, reduction of health inequalities, patients’ empowerment, promotion of public health as a common good and have joined forces to raise awareness on the needs surrounding patient care and patients’ quality of life.
Active Citizenship Network is pleased to announce that a Memorandum of Understanding has recently been signed with the Dutch Orphans Feeding Foundation, a non-profit organization which supports orphans and vulnerable people globally. Orphans Feeding Foundation’s main objectives are the support of orphans and vulnerable children with regard to education, nutrition and health. Currently, Orphans Feeding Foundation focuses on supporting vulnerable populations suffering the war in Ukraine with continued healthcare, food and education. ACN and Orphans Feeding Foundation agreed to work together at the EU level in order to support each other’s initiatives and projects on the topic of the protection of patients’ rights and raise awareness on the needs surrounding patient care with relation to prevention.
Last 10 January 2022, Active Citizenship Network has published a new article entitled “The National Recovery & Resilience Plans According to Citizens’ Perspective: From the Italian Case History to the XVI European Patients’ Rights Day” on the international peer-reviewed journal Clinical Research and Clinical Trials, which publishes original research, reports, editorials, reviews and commentaries on all aspects of pharmaceutical, clinical trials, researches and related medical research methodologies. The newly published manuscript discussed about the significance of the engagement and empowerment of all European citizens, Patients' Advocacy Groups (PAGs), citizens organizations involved in healthcare issues and, more generally, to all actors that promote health as a common good, as a way to improve the health system. More in particular, the article focuses on the promotion of civic participation in the drafting and implementation process of National Recovery and Resilience Plans (NRRPs).
The pdha.eu website is now officially ready to receive all of the innovative and exciting digital health solutions for improving care and quality of life for patients and their caregivers that participants will submit! The window for the Call for Applications has been activated on 7 June at 11.00 pm CET and will remain open until 6.00 pm CET on 8 July. Winners will be announced at the European Pdha 2022 Virtual Award Ceremony on 10 November from 4.00 pm to 5.00 pm CET, and for the second year in a row, Active Citizenship Network is involved in the Jury. To apply click here. To know more:PDHA'S origins and mission
If you missed the EU training seminar “ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups” here you can find the recording link and all the documents related to the #VITA project (Value and Innovation of Advanced Therapies), including the presentations of the speakers: prof. Andrea Grignolio, prof. Andrea Cicchetti and Leire Solis from IPOPI.
The training dealt with three main topics:
Over the last years, ACN has established a media partnership with Syncsci Publishing, a company dedicated to publishing high quality articles that provide innovative and scientific research findings to scholars worldwide. ACN and Synsci have agreed on the opportunity to work together in a media partnership to support initiatives that educate citizens, patients, physicians, and relevant stakeholders, and to submit potential manuscripts on the topic of public health and the aspects related to it, including, but not only, vaccination, NCDs, chronic pain.
Active Citizenship Network has published in March 2022 a manuscript entitled "Supporting Non-Communicable Disease Patients in Time of The Covid-19 Pandemic: From Motivating Them to Qualifying the Role of Their Caregivers"on the international peer-reviewed Journal of Women Health Care and Issues, that aims to publish scholarly articles describing clinical examinations, investigative studies and practices related to etiology, diagnosis, treatment and prevention. In this context, the article published by ACN explores the impact of the pandemic on patients suffering from non-communicable diseases (NCDs). More in particular, the article discusses about the role of caregivers across Europe as invisible actors who informally help patients in the shadow, with considerable expenditure of physical and mental energy.
Active Citzenship Network has recently published, on 11 April 2022, a new manuscript dealing with the topic of therapeutic adherence entitled “Encouraging Across Europe the Civic & Patient Advocacy Groups’ Engagement in The Implementation of National Resilience and Recovery Plans to Reduce the Burden of Covid-19 Pandemic on NCDs Patients’ Therapeutic Adherence”on the International Journal of Epidemiology and Public Health Research, a peer-reviewed journal that encompasses all aspects of epidemiology and community health. The article examines the data emerged from the EU civic survey “The impact of the Covid-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe”, conducted by ACN in the second half of 2021, which show the inadequate attention of institutions and the main stakeholders in relation to access and continuity of care for non-Covid-19 patients.
Active Citizenship Network has formalized a new media partnership with Health Europa Quarterly, a publication established in 2017 and committed to highlighting the latest trends and developments in health and healthcare from across Europe. ACN and Health Europa work closely together with the aim to disseminate and spread awareness on common interests and to support each other on initiatives carried out in the area of health and healthcare.
In the framework of the media partnership with Epidemiology and Public Health Research (EPHR), a journal focused on research and reports discussing about public health, epidemiology and progress that have been made to enhance societies' healthcare internationally, Active Citizenship Network has published, last December 2021, a manuscript entitled “Influenza vaccination at the time of Covid-19: From the Italian case history to the “EU Flu Day”, discussing about how the national (Italian) and European contexts managed the administration of flu vaccination during the Covid-19 pandemic. To do this, the article puts forward the results emerged from the civic survey on the supply of flu vaccine doses conducted by Cittadinanzattiva in September 2020 across Italy and introduces the second EU survey entitled "Addressing the challenges of concomitant deployment of COVID-19 and influenza vaccination" launched by ACN on the occasion of the EU Flu Day 2021.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
