Active Citizenship Network’s Portuguese historical partner Associação de Doentes de Dor Crónica dos Açores (Chronic Pain Association of the Azores) celebrated the European Patients’ Rights Day 2022 at the local level in the Azores Islands. The theme chosen was "Mental Health as Prevention of Suffering in Chronic Diseases: strategies and testimonies" and, for the occasion, invited the Patients Association Força 3P from Oporto to the online webinar, which will take place on the 19th of April at 18:00 AZOT.
The European Association for Educational and Preventive Health in Epigenetics (AESEP), an official partner of Active Citizenship Network, and a supporter of the European Parliament Interest Group on Patients' Rights and Cross-border Healthcare, promoted the celebration of the XVI European Patients' Rights Day at the national level in Portugal, together with the Chronic Pain Association of the Azores, also an official ACN partner. For the occasion, the Director of Active Citizenship Network has been invited in the panel. The national celebration of the 2022 European Patients’ Rights Day took place on the 18th of April in a virtual format. Each year the theme is adapted to the emerging needs of the public health scenario of the country. This year, AESEP focused on “Women's Health - The Future of Health in Europe - Innovating in Prevention and Well-Being”.
Active Citizenship Network has recently formalized an official partnership with the Azorean Diabetic Association of St Michael and Sta Maria, a non-profit institution aimed in combating and supporting the treatment of diabetes, and promoting training, prevention and scientific research in the field of diabetes. Active Citizenship Network and the Diabetic Association of St Michael and Sta Maria have agreed to collaborate at the EU level to raise awareness on the needs surrounding patient care and patients’ quality of life, focusing on patients suffering from chronic diseases, and to accelerate the participation of patients in European public policies, activities, and dialogues to foster research and development on patients’ rights.
Invited by the EU Commission, on the 1st of June 2022, Active Citizenship Network will take part in the ECI Network Gathering – Connecting your ideas in Brussels. The Networking Gathering brings together ECI National Contact Points, ECI ambassadors, members of the European Economic and Social Committee ECI group, representatives of the ECI Forum as well as experts from the European Commission, the European Parliament, Europe Direct Centres and other relevant stakeholders.
In this interactive meeting, we will have the chance to meet the other members of the network, share our experiences and tips from our national/professional context about communicating about active citizenship and democracy in general and the ECI in particular, and make suggestions regarding how the network could most effectively work together to make the ECI better known.
The European Commission aims to gather a collection of action points and replicable ideas to share after the event within the ECI network. We are invited to already reflect on the examples you want to bring into the wider group, to co-create the final output.
The new manuscript drafted by Active Citizenship and titled “Addressing the Challenges of COVID-19 Pandemic on the Routine Vaccinations across Europe: Focus on Flu Vaccination” has been recently published on the peer-review International Journal of Virology & Infectious Diseases. The article shows the main results of the two recent surveys carried out at the EU level by Active Citizenship Network, both realized in the Eu Project entitled “Protecting the value of vaccination during - and after - the COVID-19 pandemic across Europe: impact, experiences and perspectives from citizens’ and patients’ advocacy groups & relevant stakeholders”- #VaccinAction2021.
Active Citizenship Network is glad to announce that a Memorandum of Understanding has been recently formalized with Together for Life (TFL), an Albanian nongovernmental and not-for-profit organization aiming at the development and empowerment of people, the protection of health rights, and the building of civil society at the national level, with a particular focus on vulnerable communities, including communities living in remote or economically less advantaged areas, women and youth.
As Member of the EU-Russia Civil Society Forum, Active Citizenship Network will join its next General Assembly that will take place online on 24 May 2022. In the past days the forum has launched an anti-war initiatives of Forum members and partners. For further information please consult their website.
In line with its multi annual commitment on CVDs prevention and in continuity with our recent EU project “EU PAGs & citizens together in the fight against stroke”, Active Citizenship Network is glad to support the European Stroke Awareness Day, planned next 10 May, and the related initiatives to its knowledge partner Stroke Alliance for Europe – SAFE.
DRIVE-Development of Robust and Innovative Vaccine Effectiveness is an Innovative Medicines Initiative focus on vaccination. A multistakeholder approach in health-related studies is an upward trend. Patient groups' engagement and involvement have particularly become important in vaccine research not only to ensure equity, accountability, and transparency but also to develop partnerships and networks and to include their perspective and need in the analysis. Active Citizenship Network (ACN) - as DRIVE patient collaborator representative - answered some key questions on the impact of Covid-19 in their work and the importance of their involvement in a project such as DRIVE.
Economist Impact, of which Active Citizenship Network is an Expert Panel member, has produced a video as a follow-up of the country-level pandemic response toolkit and report. The pandemic has reshaped the world in many ways. Now organisations, governments, international agencies and the scientific community are trying to understand what could have been done differently and what we should do to prevent this from happening again. In this framework, the video wants to act as a guided tour to support further dissemination and encourage people to use the toolkit, designed to work across a range of different countries and adaptable to suit an individual country’s needs and priorities. The video is now live on LinkedIn, Twitter and Facebook.