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Over the last years, ACN has established a media partnership with Syncsci Publishing, a company dedicated to publishing high quality articles that provide innovative and scientific research findings to scholars worldwide. ACN and Synsci have agreed on the opportunity to work together in a media partnership to support initiatives that educate citizens, patients, physicians, and relevant stakeholders, and to submit potential manuscripts on the topic of public health and the aspects related to it, including, but not only, vaccination, NCDs, chronic pain.
If you missed the EU training seminar “ATMPs revolution: empowering leaders of EU civic and patients’ advocacy groups” here you can find the recording link and all the documents related to the #VITA project (Value and Innovation of Advanced Therapies), including the presentations of the speakers: prof. Andrea Grignolio, prof. Andrea Cicchetti and Leire Solis from IPOPI.
The training dealt with three main topics:
The pdha.eu website is now officially ready to receive all of the innovative and exciting digital health solutions for improving care and quality of life for patients and their caregivers that participants will submit! The window for the Call for Applications has been activated on 7 June at 11.00 pm CET and will remain open until 6.00 pm CET on 8 July. Winners will be announced at the European Pdha 2022 Virtual Award Ceremony on 10 November from 4.00 pm to 5.00 pm CET, and for the second year in a row, Active Citizenship Network is involved in the Jury. To apply click here. To know more:PDHA'S origins and mission
The Swedish patients’ association FOKUS Patient, which is an official partner of Active Citizenship Network, organized three digital seminars from 19 to 21 April at lunchtime, from 12:00 to 13:00 CEST, dedicated to the right to information and the right to consent, which are Articles 3 and 4 of the European Charter of Patient’s Rights, drafted by Active Citizenship Network in 2002. The aim of the seminars was to address the relationship between access to information and patients’ rights in a Swedish context.
The XV European Patients’ Rights Day has been celebrated with a virtual event by Active Citizenship Network with its traditional format of a big multi-stakeholder conference focused on the role played by key actors in the decision-making process on health priorities. In particular, just before the end of the Conference on the future of Europe, the expectations and requests of citizens and Patients Advocacy Groups (PAGs) addressed to the institutions have been analysed. The first day of the 2022 conference was dedicated to the presentation to the EU Institutions of the outputs of the themes that emerged from health-related initiatives organized in the framework of the Conference on the Future of Europe. During the second day the discussion focused on analysing the actual level of citizen involvement by the Member States close to the approval by the European Commission of most of the NRRPs and their implementation at national level. Read more
The European Association for Educational and Preventive Health in Epigenetics (AESEP), an official partner of Active Citizenship Network, and a supporter of the European Parliament Interest Group on Patients' Rights and Cross-border Healthcare, promoted the celebration of the XVI European Patients' Rights Day at the national level in Portugal, together with the Chronic Pain Association of the Azores, also an official ACN partner. For the occasion, the Director of Active Citizenship Network has been invited in the panel. The national celebration of the 2022 European Patients’ Rights Day took place on the 18th of April in a virtual format. Each year the theme is adapted to the emerging needs of the public health scenario of the country. This year, AESEP focused on “Women's Health - The Future of Health in Europe - Innovating in Prevention and Well-Being”.
Active Citizenship Network’s Portuguese historical partner Associação de Doentes de Dor Crónica dos Açores (Chronic Pain Association of the Azores) celebrated the European Patients’ Rights Day 2022 at the local level in the Azores Islands. The theme chosen was "Mental Health as Prevention of Suffering in Chronic Diseases: strategies and testimonies" and, for the occasion, invited the Patients Association Força 3P from Oporto to the online webinar, which will take place on the 19th of April at 18:00 AZOT.
Cittadinanzattiva is engaged in a project to promote at the European level the importance of access to advanced therapies by the highest possible number of patients in the light of the fact that by 2030 there could be as many as 60 advanced therapies that could change the life of 350 thousand patients, but to do this, the accounting system must be changed.
To raise awareness of this need, which is at the same time a great opportunity, Cittadinanzattiva, thanks to its EU branch Active Citizenship Network, will organize the following events: a training webinar, a call to action aimed at European decision-makers, and a policy dialogue with the EU Institutions and the involvement of the key stakeholders.
The general objective is to promote the importance of advanced therapies bringing the issue of access to the attention of the patient and civic associations and create consensus regarding the "Italian solution", that is, the fact of accounting for expenditure as a multi-year investment and not as a current expenditure (like a drug that runs out of results in the very short term). Stimulating widespread awareness of the rights to personalized treatments, innovation, and access. Promoting empowerment on the issue of advanced therapies. Strengthening, on the subject, the coalition between Patient and Citizen Associations in Italy and Europe. For further information consult the LinkedIn page or the project webpages (EN – IT versions).
The new manuscript drafted by Active Citizenship and titled “Addressing the Challenges of COVID-19 Pandemic on the Routine Vaccinations across Europe: Focus on Flu Vaccination” has been recently published on the peer-review International Journal of Virology & Infectious Diseases. The article shows the main results of the two recent surveys carried out at the EU level by Active Citizenship Network, both realized in the Eu Project entitled “Protecting the value of vaccination during - and after - the COVID-19 pandemic across Europe: impact, experiences and perspectives from citizens’ and patients’ advocacy groups & relevant stakeholders”- #VaccinAction2021.
Within the framework of the #VaccinAction2022 EU project, Active Citizenship Network on the 29th of April 2022 has organized the seminar titled “Adult Vaccination: build the capacity and capabilities of civil society”. It has consisted of a 2-hour training seminar which has been realized during the “European Immunization Week 2022”, open to leaders of civic and patient associations from different countries in order to respond to the need to be more updated and prepared to support and protect the value, in particular, of adult immunization and its related benefit. Please download key speakers’ speeches here and watch the entire webinar on Youtube.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
