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Last 18th January 2022, Cittadinanzattiva presented the document "Together for oncology: with feet on the ground and a look into the future", with the support of Novartis and realized thanks to the contribution of about 60 experts, including representatives of institutions, of universities, of the research field, of civic and patient organizations, and of the private sector. To guide the work was also the European Plan against Cancer, built on four pillars (Prevention, Early Diagnosis, Treatment and Quality of Life) and the National Recovery and Resilience Plan (NRRP), which focuses on innovation, digital health, proximity care, social inclusion, management of chronicity. The document aims to draw a long-term strategic vision in the fight against cancer in our country, with the aim of delivering the proposals to the main decision-makers currently engaged in the construction of the new National Oncology Plan. At the center of the debate is the reflection on the Covid-19 pandemic situation and the emergency of suspended or cancelled ordinary treatments due to Covid. Among the proposals contained in the document: realizing screening and vaccines in the places closest to the citizens, implementing cancer registries in all regions, building a national portal of innovation, promoting the law on the right to oblivion.
Active Citizenship Network has recently formalized an official agreement with Confederation of Meningitis Organisations (CoMO), an international network of advocates working to bring together patient groups, health professionals and organisations, meningitis survivors and families from 40 countries to help reduce the incidence and impact of meningitis worldwide. ACN and CoMo have partnered together to support each other on the promotion of the protection of patients’ rights, with particular reference to weak target groups of citizens, and on the advocacy for civic participation in the construction of public policies, with particular reference to vaccination and prevention policies.
Active Citizenship Network has recently formalized an agreement with the Cyprus Federation of Patients' Associations (CyFPA), an umbrella organization representing all the organizations of people with chronic and other diseases. CyFPA aims at supporting patients with a strong voice in the Cypriot community and ensuring that patients have access to holistic and equitable social health care, with quality and patient-centeredness. In this regard, Active Citizenship Network and the Cyprus Federation of Patients' Associations have welcomed the opportunity to collaborate to support each other’s initiatives on the empowerment and protection of patients, in particular those affected by chronic and rare diseases. Moreover, ACN and CyFPA will commit to raise awareness on the needs surrounding patient care and patients’ quality of life.
CONFERENCE ON THE FUTURE OF A HEALTHY EUROPE: “Taking part in the decision-making process on health priorities” (14:30 – 16:00 CEST)
Given the current situation of uncertainty, the conference will be organized in a digital format. To virtually attend the conference, please register here (registration is mandatory).
Active Citizenship Network is glad to announce that an official agreement has been signed with Patients' Rights Association in Kosovo (PRAK), an independent non-profit and non-political association focused on promoting a fair healthcare for patients, engaging citizens and patients as equal partners in healthcare, and mobilizing other relevant actors to provide the best possible care for each patient at all times. ACN and PRAK will collaborate to raise awareness on the needs surrounding patient care and patients’ quality of life and to support each other’s initiatives on the topic of reduction of health inequalities, patients’ empowerment, and promotion of public health as a common good.
Active Citizenship Network has recently signed a new Memorandum of Understanding with its historical Polish partner Instytut Praw Pacjenta i Edukacji Zdrowotnej, an association aimed at improving the situation of patients, increasing civic awareness of pro-health attitudes and influencing the shaping of national health policy. The Institute also works to integrate the community of patients' organizations, organizes regular meetings with key experts in healthcare, takes an active part in social consultations, and conducts advocacy in cooperation with patients' organizations, among other activities. I
Active Citizenship Network is happy to announce that it has recently signed a new Memorandum of Understanding with EPECS, a non-profit Dutch foundation that wants to give a voice to the citizens of the EU and wants to engage them in policy development processes. Active Citizenship Network and EPECS will support each other’s initiatives with the objective to promote and accelerate the empowerment and engagement of citizens and patients and their participation in European public policies, activities, and dialogues as a key step towards a more inclusive Europe.
Active Citizenship Network is pleased to announce that a Memorandum of Understanding has been signed with the Asociación Española contra la Meningitis, which is currently the only non-profit organization fighting to defeat meningitis in Spain to protect the entire population from the consequences of this terrible disease.
Active Citizenship Network has recently signed a new Memorandum of Understanding with the Belgium non-profit organization Vaccine monitoring Collaboration for Europe (VAC4EU), the sustainability solution of the ADVANCE project which was funded by the Innovative Medicines Initiative, whose main missions are to: access and analyze available and newly collected health data to allow for evidence-based decisions by people, who need to either regulate, advise, prescribe or decide on vaccines; support reliable and rapid generation of evidence on vaccines in Europe; and train and to provide rapid access to a unique vaccine expert community and study network in Europe. ACN and VAC4EU have agreed to join forces to support each other’s initiatives on the promotion of public health, with particular reference to vaccination and prevention policies.
Active Citizenship Network is glad to announce an official new partnership with euPrevent, a Euroregional network that focuses on promoting cross-border health and sustainable partnerships to increase the quality of life of residents in the border region between the Netherlands, Belgium and Germany. In this regard, ACN and euPrevent have agreed to collaborate to increase protection of patients’ rights, diminish health inequalities among European Member States, and raise awareness on the needs surrounding patient care and patients’ quality of life.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
