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Cittadinanzattiva, through its European branch Active Citizenship Network (ACN), has become involved, together with the Spanish association ALCER, in the AMR Patient Alliance, developed by IAPO P4PS Observatory, with the aim to gather the voice of patients and involve all the relevant stakeholders around the issue of antimicrobial resistance (AMR). Patients need to play a much bigger role in the fight against antimicrobial resistance (AMR), as they are directly involved in over-prescribing, overuse and self-medication, the scale and effect of which is still unknown. In order to this global public health threat, ACN has committed to undertake three main activities: a training seminar on the topic; contribution to the development of a repository of AMR-related educational, informative, and awareness-raising materials for patient organizations, patients and caregivers; support to the course “Antimicrobial Resistance: Patient Role in Rational Use” accessible to all EU citizens and developed by IAPO P4PSO and PAIR Academy.
In 2022 Cittadinanzattiva, through its European branch Active Citizenship Network, is engaged in an EU project to promote at the European level the importance of access to Advanced Therapy Medicinal Products (ATMPs), which development presents new opportunities for the treatment and prevention of a variety of diseases (gene diseases, oncological diseases and diseases with long prognosis) or for restoring, correcting or modifying compromised physiological functions in humans, including by correcting mutations acquired on a genetic basis. The relevance of these innovative therapies, however, places them at the centre of the discussion on health and health policy choices for the future and the sustainability of the health service. This will pose very delicate problems of choice and rationing in terms of access to treatment for patients, which could result in the treatment of fewer patients than eligible and therefore potentially treatable. A solution in terms of identifying the resources with which to finance them must therefore be tackled today so as not to arrive unprepared.
The "Italian proposal" provides for an installment of the cost of advanced therapies which at the moment are considered current expenses, but which, to be sustainable, should be considered as investments. The project will be developed through an EU training seminar, a policy dialogue with the main EU institutions, and a call to action aimed at European decision-makers to provide greater access to ATMPs.
This project will be carried out with the unconditional contribution of #VITA which includes: Celgene – Bristol-Myers Squibb, Gilead Sciences, PTC, Roche.
Active Citizenship Network is glad to invite you on the 29th of April 2022, from 14.30 to 16.30 CEST, to the event titled “Adult Vaccination: build the capacity and capabilities of civil society”. The training will take place in the framework of the EU #VaccinAction 2022 project and will focus on supporting the need to strengthen adult vaccination in Europe by providing concrete examples. It will consist of a 2-hour training seminar which will be realized during the “European Immunization Week 2022”, open to leaders of civic and patient associations from different countries in order to respond to the need to be more updated and prepared to support and protect the value, in particular, of adult immunization and its related benefits to better identify, recognize and address the growing external factors that can negatively influence policy on vaccines in EU Member States and beyond, and improving the know how to recognize official sources of information and have the tools to support them. To participate in the training, please register here.
CONFERENCE ON THE FUTURE OF A HEALTHY EUROPE: “Taking part in the decision-making process on health priorities” (14:30 – 16:00 CEST)
Given the current situation of uncertainty, the conference will be organized in a digital format. To virtually attend the conference, please register here (registration is mandatory).
Staying in control of our lives can be a daily struggle—especially this year, and especially for the half of us who live with a chronic condition. It’s time for a change. It’s time to work together to take back control. One way to start focusing on your health again is to see your doctor but there’s a lot to take in during a consultation with a health practitioner. Preparing yourself for the consultation helps ensure you leave satisfied. Check out www.thisislivingtoday.com to find our guide that helps you to prepare and suggests questions to ask in the session. The initiative and the website have been developed by Boehringer Ingelheim International GmbH in collaboration with representatives from patient organizations and other experts, including Active Citizenship Network.
Pain Alliance Europe (PAE), of which Cittadinanzattiva/Active Citizenship Network is a Board Member, is delighted to present the third edition of the Brain Mind Pain (BMP) Grant with the theme of “Healthy Sleep for People Living with Brain, Mind and Pain Conditions”. PAE represents the voice of people living with chronic pain. Pain, in a nutshell, is a significant disruptor of overall well-being, quality of daily life, and lifestyle choices. Chronic pain impacts mental health and healthy sleep. The latter is crucial for general health. With this vicious cycle in mind, the BMP Grant aims to explore and provide practical solutions for people living with pain and struggling with healthy sleep. PAE seeks all projects, big or small, that offer functional outcomes for people living with pain. They welcome applicants from various backgrounds, such as patient-centered NGOs, research/academia, medicine, and commercial organizations. Past BMP Grant winners include projects that utilized digital technology, such as an app for monitoring symptoms, an eHealth system with a self-help guide, or a social media campaign. Moreover, the BMP Grant also welcomes offline strategies for healthy sleep. This year, the BMP Grant fund is EUR 60,000.
The European mHealth Hub established by the International Telecommunication Union (ITU), in collaboration with the World Health Organisation (WHO) and the Regional Ministry of Health of Andalusia (Spain), together with 17 other European partners, to support the integration of mHealth programmes and services into national or regional health systems, is a project funded by the European Commission. Part of the work was to develop a Policy Framework Report aimed to contribute towards developing a policy framework for EU on cross-border adoption and assessment of innovation in mHealth to help pave the way for moving towards a “Single Healthcare Digital Market” in Europe. The Report aims to contribute to the development of a Common Policy Framework for mHealth in Europe, by sharing lessons learnt and recommendations, with the goal of promoting harmonization. Even so, app developers, industries, academia, research institutions and end-users (citizens and healthcare professionals) are seen as key actors for the Policy Framework development, and their role should be highlighted.
CROPBOOSTER-P is a Coordination and Support Action (CSA) project, of which Cittadinanzattiva/Active Citizenship Network is a Core Stakeholder, supported through the EU Horizon 2020 funding programme. The project, which started on November 1, 2018, is mapping and assessing current and future strategies, methods and technologies for crop improvement. The project mainly aims at new crop varieties in current agricultural practice by aligning the development of these crops with the needs, concerns, wishes and expectations of society. Following a responsible research and innovation (RRI) approach, stakeholders representing all actors of the food system are involved both in designing the blueprints for the future crops, as well as in the developing of the roadmap to successfully introduce the new crops to the users, and to educate the consumers to new paradigms of sustainable agriculture, based on future proofed crops and more efficient resource use.
The Steering Group on Influenza Vaccination – a multi-stakeholder platform aiming to drive influenza vaccination uptake in Europe, promoted by Vaccines Europe in which is included also Active Citizenship Network – last 27 January sent an official letter to the EU Institutions calling for urgent action to address alarmingly low coverage rates for influenza vaccination. In particular, the document draws attention to how the current influenza season is going, and stresses the Steering Group’s commitment to working together with the European Commission and WHO Europe towards better protection against seasonal influenza for European citizens and health systems.
Cittadinanzattiva, with the support of its European branch Active Citizenship Network (ACN), is working on an international project aimed at drafting a Global Health Charter, which aims to represent the main global health needs of each individual at a global level and to identify solutions in response to these. To participate in the project and to help define the perimeter of the macro areas in order to accurately define the Global Health Charter, please respond to this short survey focused on the degree of knowledge on the topic of "global health" and the main themes related to it.
Please note that the survey is anonymous and it takes no more than a few minutes to be filled out.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
