Here some examples of the events and web and press articles which host the European Charter of Patients’ Rights.
PUBLIC EVENTS
National Patient Organization of Malta
The president of the National Patient Organization of Malta, Irene Schembri, a long-time ACN partner was invited to a national television programme (4 September 2019).
She had the chance to speak about the European Charter of Patients' Rights drafted by ACN in 2002. In the program, she had the opportunity to introduce the audience to the Charter which seeks to guarantee the same rights for every patient in Europe.
The Role of the Private Sector in the Future Healthcare System: from a European Context to the Local One/ Il Ruolo del Privato nella Sanità del Futuro: dal Contesto Europeo a Quello Locale
To celebrate the 55th year of activity of the Casa di Cura Città di Parma, a conference has been organized with the aim of offering a discussion between experts in order to illustrate the importance of the role of the private sector in the healthcare system. This public event also wanted to be an occasion to meet all those who over the years have been committed to the growth of the structure, therefore the medical, paramedical and administrative staff, collaborators and all those who have contributed to its improvement (29 September 2017). In this occasion, Daniela Quaggia, Project Manager of Active Citizenship Network, talked about the European Charter of Patients’ Rights, explaining the principles and the 14 rights that each sector should respect.
For the download of the ppt presentation click here.
For the download of the poster click here.
Patients in Power conference: European Charter of Patients’ Rights
The second annual Patients in Power conference, created by Kathi Apostolidis, took place in Athens, Greece. The conference’s organizing committee consists of forty patients and advocates, and just one academic (8 November 2013).
Every single aspect of this conference was conceived, designed, planned and prioritized from the patient point of view. The session has been on health reforms, including the work to make equal access to care a reality across borders within Europe. The first speaker was Mariano Votta, Director of Active Citizenship Network, whom has explained ACN’s mission to promote and support the construction of the European citizenship as an “active citizenship”, which means the exercise of citizens’ powers and responsibilities in policy-making. The conference goes on talking about patients’ rights, primary focus of ACN, and their European Charter of Patients’ Rights, created in 2002.
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Interview to Teresa Petrangolini on the European Charter of Patients’ Rights
An interview to Teresa Petrangolini was held on February 13, 2008 and it was published in the recent volume "Ten years of governing health. A conversation with the protagonists", in which the Secretary General of Cittadinanzattiva explains what the European Charter of Patients’ Rights is. During the interview, the Charter and its rights were discussed, as well as the concrete application of the principles in the EU member States and the goals that the European Patients' Rights Day aims to achieve.
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WEB ARTICLES
Resolution on Cross-Border Healthcare
This resolution was written by the Editor of European Affairs Helicia Herman and published by HealthManagement.org in 2007.
The resolution clearly states that the future legal framework of healthcare must include patients’ rights. In this a resolution on cross-border healthcare adopted on March 15, 2007, the European Parliament insisted on the obligation to guarantee absolute protection of health in the EU. The plenary assembly solicited amongst other things, a reinforcement of patient rights and the creation of a legal framework for cross-border arrangements in healthcare matters. In response to several cases of the European Court of Justice, MEPs cited juridical security as a priority of the legal framework proposed by the Commission for cross-border healthcare. The resolution states the importance of the European Charter of Patients’ Rights as a way to reinforce patient rights and information.
For the download click here.
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Rights of Patients in Europe: investigation of ACN/I Diritti del Malato in Europa: Indagine di Active Citizenship Network
The web portal Partecipasalute has a web article dedicated to the European Charter of Patients’ Rights published the 31 of August 2007. It explores the 14 rights of the Charter and discusses about where they have been implemented.
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The Enlargement of the Empirical Basis of Sociological Research on Human Rights in Developed Countries. The Case of the European Charter of Patients’ Rights.
This paper was written by Giovanni Moro, Scientific Director of Active Citizenship Foundation (FONDACA), during the IIS Congress that took place from the 5th to the 9th of July 2005 in Stockholm.
This paper aims at highlighting the problem that both scientific research and policy activity on human rights in well-based democratic regimes seem to have a relatively poor empirical content. It seems, indeed, that in these countries human rights fit just with far rare and extreme situations, such as arbitrary deprivation of life, torture, arbitrary arrest and detention. This paper mainly provides a thorough explanation of the European Charter of Patients’ Rights, explains all the 14 rights of it and their implementation in contemporary society.
For the download click here.
Health Rights- How Hospitals in 13 European Countries Match up to Active Citizenship Network's Charter of 14 Patients' Rights (2005)
The website of health rights has a page which shows the list of 13 European Countries hospitals that have implemented the 14 rights of the European Charter of Patients’ Rights (March 2005).
For the download click here.
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PRESS ARTICLES
Patients association calls for 'equity of access to healthcare' from the Irish Examiner
This article of the Irish Examiner cited the principles of the European Charter of Patients’ Rights as an adequate way to give patients’ access to the right care (published 14 May 2019).
According to the Irish Patients' Association, access to health services based on need should be a constitutional right. Co-founder of the association, Stephen McMahon, who hosted a conference on patients' rights in Dublin said some public patients have no quality of life because of treatment delays.
To overcome this issue, the executive director of the Sláintecare health reform project, Laura Magahy, said Sláintecare will ensure that everyone has access to the right care, in the right place at the right time.
Ms Magahy said the Sláintecare principles echo the spirit of the European Charter of Patients’ Rights that espouses patients’ rights including access, quality of care and safety.
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What rights for patients? From the Politico
This article of the Politico concerns healthcare in the European Union and talks about the fact that at EU level, access to health services is the main battleground for patients’ rights. It then introduces the European Charter of Patients’ Rights promoted by ACN and promotes its 14 rights as a way to drive up healthcare standards (2 November 2009).
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The European declination of patients' rights: La declinazione europea dei diritti del malato
This article published by Passoni Editori as part of the M.D. Medicinae Doctor category celebrates the first European Patients’ Rights Day (EPRD) promoted by Cittadinanzattiva/Active Citizenship Network and carried out on April 18, 2008. The brief article discusses about the EPRD’s objective to disseminate the European Charter of Patients’ Rights with the aim to increase awareness among the various stakeholders in the healthcare system to discuss common strategies and improve protection of patients’ rights (7 May 2008).
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Healthcare: Tribunal for Patients’ Rights; European Parliament Says Yes to the European Charter of Patients’ Rights/Sanita': Tdm, Parlamento Europeo Dice Si' a Carta Diritti Malato
This article published by Adnkronos Salute announces the news told by the Tribunal for Patients’ Rights that the European Parliament has approved the European Charter of Patients’ Rights and believes its rights to be necessary. The article then goes on explaining the 14 rights of the Charter (15 March 2007).
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Austria: European Charter of Active Citizenship
The Italian periodical newspaper Vita talks about the main principle and of the European Charter of Patients’ Rights presented in Vienna on the 22nd and the 23rd of May, which is that to promoted clear and transparent principles for the relationship between civil society and Public Institutions Rights for the participation of citizens' organizations in European and national policies (29 May 2006).
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Patients Call for European Charter of Rights
This article of The Irish Times makes a review of the charter in Ireland and talks about the Irish Patients' Association (IPA), whom has called for the Government to implement the European Charter of Patients' Rights to develop and provide a world-class health service (published 18 April 2005).
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VIDEOS
European Charter of Patients' Rights- 4th International Patients' Right Day
This YouTube video was created for the promotion of the European Charter of Patients' Rights and for the celebration of the 4th International Patients’ Right Day (18 April 2010).
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Activity Report of the Estonian Patient Advocacy Association
The Estonian Patient Advocacy Association carried out in 2009 a thorough advocacy activity at the national level with the aim to promote the European Charter of Patients’ Rights and emphasize the importance about the European Patients’ Rights Day in Estonia.
The association organized a series of events and initiatives to promote the two, which consisted in lectures about patients’ rights and the Charter, distribution of leaflets, information desks, public events, and press releases. All types of participants were registered, including patients, doctors, nurses, assistants, pharmacy workers, government officials, politicians, etc.
The main results of the advocacy activity were the following: leaflets were distributed in 97 buildings of different institutions; activities and events were carried out in 17 different cities and towns (Tallinn, Tartu, Pärnu, Viljandi, Rakvere, Haapsalu, Kuressaare, Võru, Paide, Türi, Rapla, Paldiski, Keila, Kose, Saue, Aravete, Kallavere); 7 press releases were produced; information desks were open in 10 places; and 4 lectures were realized.
Below are some pictures of the leaflet distributions and information desks that were organized:
Information desk at the Estonian Parliament.
Information desk at the Estonian Ministry of Social Affairs.
Examples of the posters and materials set out to different institutions.
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