While infections and hospitalizations in Europe are currently at a minimum, the consequences of the pandemic in terms of NCD are not yet evident. In this regard, we all remember the statement by European Commissioner for Health and Food Safety Stella Kyriakides when she said in June 2022 that "we will see the effects of NCD-19 in the years to come," adding that many diagnoses and screenings have been delayed, treatments have been postponed, and disease prevention and promotion activities have been suspended. And, as demonstrated by Active Citizenship Network at the EU webinar "Therapeutic adherence during the COVID-19 pandemic across Europe: impact, experiences and perspectives from PAGs & relevant stakeholders," reduced treatment adherence was one of the main side effects of the pandemic.

Therapeutic adherence is critical to achieving positive health outcomes in patients with chronic diseases, and Covid-19 has had a major impact on treatment plans for chronic patients. During the European policy dialogue event organized by Active Citizenship Network on 31 January 2023, where the impact of the pandemic on treatment adherence was discussed with a multi-stakeholder approach, experts reflected together to find synergies to address unmet needs.

The event was carried out as part of the multi-year homonymous European project: "Therapeutic adherence during the COVID-19 pandemic across Europe: impact, experiences, and perspectives from PAGs & relevant stakeholders" which focused on socializing the commonalities or specificities that the impact of the pandemic had on therapeutic adherence and supporting the unmet needs of chronic patients.

31st January 2023 | 14:30 – 16:00
EU online event

Therapeutic adherence during the COVID-19 pandemic across Europe:
impact, experiences and perspectives from PAGs & relevant stakeholders


Moderator: Alessandro Monaco, Giovanni Lorenzini Medical Foundation (Milan-New York)

14:30-14:40 Welcome address

14:40 – 14:50 The impact of the covid-19 pandemic on non-communicable and chronic patients ’therapeutic adherence across Europe

  • Bianca Ferraiolo, Head of the Representative Office to the EU and Senior Manager EU Affairs - Cittadinanzattiva-Active Citizenship Network

14:50 -15:55 Roundtable discussion

  • Bente Mikkelsen, Director, Non-Communicable Diseases in the division of UHC/Communicable and Noncommunicable diseases - WHO Headquarters (Geneva, Switzerland)
  • Neda Milevska-Kostova, Chair - International Alliance of Patients' Organizations (IAPO) and President - IAPO P4PS Observatory
  • Andrea Manfrin, Faculty Director of Research and Innovation and Chair Professor of Pharmacy Practice - University of Central Lancashire
  • Nick Guldemond, Professor of Healthcare and Public Health, Dept of Public Health and Primary Care, National eHealth Living Lab (NeLL) - Leiden University Medical Center
  • Shaantanu Donde, Head – Portfolio Management (Developed Markets & JANZ) Medical Affairs - Viatris

15:55 – 16:00 Closing remarks

To know more:

  • Click here to watch the event recording
  • Click here to download the speakers’ list
  • TrendSanità (2nd of Feb. 2023): Coinvolgimento dei pazienti e sanità digitale al servizio dell’aderenza terapeutica dopo la pandemia (IT)
  • INTERNATIONAL JOURNAL OF EPIDEMIOLOGY AND PUBLIC HEALTH RESEARCH (Published date: 11 April 2022): Encouraging Across Europe the Civic & Patient Advocacy Groups’ Engagement in The Implementation of National Resilience and Recovery Plans to Reduce the Burden of Covid-19 Pandemic on NCDs Patients’ Therapeutic Adherence
  • EU Project “Therapeutic adherence during the COVID-19 pandemic across Europe: impact, experiences and perspectives from PAGs & relevant stakeholders” (Edition 2021 – Edition 2022)
  • The Engagement of Cittadinanzattiva-Active Citizenship Network on Therapeutic Adherence at the national & at the EU level
  • The survey realized by ACN has involved representatives of the following 38 associations:
    National organizations:
    • Together for Life (Albania), Alliance of Transplanted and Operated ATO "Future for All" (Bulgaria), Association of Patients with Cardiovascular Diseases (Bulgaria), Association of Reproductive Health, Pregnancy and Childcare "Smile" (Bulgaria), Innovations Institute (Bulgaria), Пациентски организации Заедно с теб/Patients Organizations “With You” (Bulgaria), CEREBRUM-Association of People with Acquired Brain Injury (Cech Republic), Thalassaemia Society (Cyprus), Σύνδεσμος Καρδιοπαθών Λευκωσίας/ Nicosia Heart Patients' Association (Cyprus), Universal Patient Rights Association (Cyprus), Suomen Kipu ry/Finnish Pain Association (Finland), Aivoliitto ry / Finnish Brain Association (Finland), CHEN-Patient Fertility Association (Israel), Asociacioni Shendetesore Profesional/Professional Health Association (Kosovo), ADICD-Makedonsko Lekarsko Drustvo/Macedonian Medical Association (Macedonia), Malta Health Network (Malta), National Patients' Organisation (Malta), Instytut Praw Pacjenta i Edukacji Zdrowotnej/Institute of Patient' Rights and Health Education (Poland), Polskie Stowarzyszenie Diabetykow/ (Poland), Portuguease League Against rheumatic Diseases (Portugal), St Michael and Sta Maria Diabetic Patient Association Islands (Portugal), APN-Associação Portuguesa de Neuromusculares/Portuguese Neuromuscular Disorders Association (Portugal), Associação de Doentes de Dor Crónica dos Açores/Chronic Pain Patients Association in Azores (Portugal), Força 3P-Associação de Pessoas com Dor/Chronic Patients Association (Portugal), Portugal AVC-União de Sobreviventes, Familiares e Amigos/Stroke Portugal-Survivors, Caregivers and Friends Union (Portugal), ZPN-Association for justice and control (Slovenia), AECOSAR-Asociación Española con la Osteoporosis y la Artrosis/Spanish Association with Osteoporosis and Osteoarthritis (Spain), APDOL- Asociación Española de Pacientes Contra el Dolor (Spain), Fundación Sine Dolore/Sine Dolore Foundation (Spain), Dutch Association of Dietitians (The Netherlands), EUPREVENT (The Netherlands), Patientenfederatie Nederland/The Netherlands Patient Federation (The Netherlands).
    European/International organizations:
    • European Coalition for People living with Obesity
    • European Alliance for Patient Access
    • European Kidney Patients Federation (EKPF)
    • International Alliance of Patients Organisations


With the unconditional support of:

  • viatris

Media Partners:

  • health europe
  • policy and procurement IHC


For more information, please write to Bianca Ferraiolo: This email address is being protected from spambots. You need JavaScript enabled to view it.

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