"The role of citizens' organisations in the empowerment of patients with chronic diseases".
8th European Patients’ Rights Day
May 12-13 2014
Brussels
Conference Materials
Opening Remarks:
Tonio Borg, Health Commissioner (Video Message)
Ingrid Kössler, European Economic and Social Committee
Mariano Votta, Director of Active Citizenship Network
Keynote Presentations about the empowerment concept in its complementary dimensions
Katja Neubauer, Deputy Head of Unit, Healthcare Systems Unit, DG SANCO
Rosa Suñol, EMPATHiE: the Study on "Empowering patients in the management of chronic diseases"
Birgit Beger, Secretary General, The Standing Committee of European Doctors (CPME)
Keynote Presentations about different successful models to networking:
Mark Lawler, European Cancer Concord and Queens University Belfast
Tonino Aceti, National Coordinator, Italian Coalition of Associations for Patients suffering Chronic Diseases, CNAMC
Catherine Hartmann, European Chronic Disease Alliance (ECDA)
Kevin Walker, “Partnership to Fight Chronic Disease”,USA
Empowerment in chronic diseases: best practices
The REPORT: Best practices on Chronic Patients and Organizations’ empowerment
Examples of National Best Practices from different EU Countries
Manuel Serrano, EUGENIE, Spain
Janet Mifsud, Caritas Epilepsy Association, Malta
Ugo Viora, National Association Rheumatic Patients, Italy
MANIFESTO FOR THE EMPOWERMENT
“Empowered patients are a resource”
Subscriptions
The role of patient organizations in promoting and supporting life changing and life- saving research into treatments or cures for chronic diseases
David Taylor, UCL School of Pharmacy, UK (Moderator)
Patients' Needs, Medicines Innovation and the Global Public's Interests
Sustaining innovation and access
Nathalie Moll, Secretary General of EuropaBio
For further information please write to
Read the article ”European Patients’ Rights Conference – The role of citizens’ organizations in the empowerment of patients with chronic diseases” published by www.patientsandresearch.org and written by Rosemary Colucci on May 29, 2014.
Read the article ”European Patients’ Rights Conference – The role of citizens’ organizations in the empowerment of patients with chronic diseases” published by www.patientsandresearch.org and written byRosemary Colucci on May 29, 2014.
With the support of:
The European Union,
in the framework of the Health Programme (2008-2013)
European Economic and Social Committee
This event has been made possible also thanks to an unrestricted educational grant from:
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