Presented at the European Parliament a potential win-win economic-accounting solution driven by Italian experts and endorsed by 43 Patients' Advocacy Groups
All potential eligible patients have the right to access Advanced Therapies Medical Products (ATMPs). National health budget constrains cannot be a barrier for patients to have access to ATMPs. Nowadays traditional reimbursement and budgeting schemes are unable to amortize the value of the ATMPs, whose costs and benefits are not aligned. These types of therapies need new and different payment and accounting methods, which take into account the high initial costs and the large and lasting benefits over time, both for the patients and for the national health systems. It is time for an institutional mindset change to classify ATMPs expenditure as an investment and not a cost, possible if it is decided to review - from Eurostat downwards - the economic/financial classifications of healthcare expenditure currently in force.
Endorsed by 43 Patients' Advocacy Groups (PAGs), this was - in synthesis - the key message sent today to the European and Member States Institutions in order to leverage the potential of the advanced therapies for a large number of European citizens in compliance with the budget limits in which healthcare has been paying almost all of Europe for some time.
24th October 2022
The NIGHTINGALE project team, its advisory board and external experts gather in Berlin Messe this week. The project’s 2nd Roundtable and 2nd Plenary meeting are hosted by NIGHTINGALE project partners, the European Society for Trauma & Emergency Surgery (ESTES) and ASTRIAL GmbH amidst the German Congress of Orthopaedics and Traumatology, DKOU 2022.
The purpose of the meetings is to conduct focused discussions to support the technology development, share status updates and discuss next steps in the context of the upcoming testing and validation exercises.
Focus on Italy: little openness of the institutions both in the definition of priorities and in the implementation of the NRRPs.
Civic organizations and social partners not sufficiently involved in the definition of priorities and the implementation procedures of the National Recovery and Resilience Plans (NRRPs): this is generally valid as denounced for some time by the European Economic and Social Committee, and in particular in terms of health public, as emerged from the survey conducted by the European branch of Cittadinanzattiva, Active Citizenship Network, and presented on the occasion of the 16th Edition of the European Patients' Rights Day, which took place online on 20 and 21 April 2022.
Specifically, by questioning 38 patient and rights protection associations from 18 countries, it emerged that in most cases they have not been involved by institutions in the definition of public health priorities. The majority replied that they were not involved at all (35%) or had not been informed of these processes (22%), while 35% responded positively. However, of the latter, only 13% were involved in the consultation processes from the outset, while 11% were very limited.
Five best practices have been awarded today during the event titled “Patients’ right to avoid pain: reducing the burden of COVID-19, promoting best practices across EU”. It has been hold in the framework of the cycle of Eu Webinars «Health at the heart of the future of Europe», which the Italian NGO Cittadinanzattiva-Active Citizenship Network (ACN) will hold to feed the debate of the Conference on the Future of Europe and it included the Award Ceremony of the bi-annual project: “European Civic Prize on Chronic Pain Collecting Good Practices”, la cui terza edizione has been realized with support of Pfizer Inc.
This multi-stakeholder event - which involved civil society, patients, experts, institutions - provided an occasion for demonstrating what the community can offer in terms of good practices, as well as sharing experiences useful for raising awareness about the condition, enhancing the knowledge of positive cases and success, and strengthening the commitment on this topic. Throughout 2020 and 2021, this initiative has allowed us to collect 44 Good Practices coming from 13 different countries: Spain (4), Italy (19), Portugal (5), Belgium (2), Germany (1), The Netherlands (1), Ireland (1),Denmark (1), UK (3), Austria (1), and from extra EU countries: 3 from USA, 2 from Canada, 1 from the Dominican Republic.
Priority attention to non-Covid patients, especially oncological and chronic, in order not to lose the progress achieved in the last 20 years in terms of prevention and treatment. Ease of access to health services and medicines to reduce inequalities and “leave no one behind”.
Investments to have more resilient health services and to support research for more equitable access to care and to address unmet health needs. Strong reference to the sense of responsibility at all institutional levels in order to transform into acts the spirit of solidarity between countries which is a precondition for dealing with crises worldwide.
These, in summary, are the main messages hosted in the video created by Active Citizenship Network, the European branch of the Italian NGO Cittadinanzattiva, and addressed to the political leaders and experts gathered today in Rome on the occasion of the Global Health Summit, co-organized by the European Commission and Italy as chair of the G20. Here is the link to the video
The role of civic society and Patients Advocacy Groups for more resilient Health Care Systems. 10 recommendations towards a European Health Union
In the role of needed changes towards more resilient healthcare systems, it is necessary to recognize the key role of Patients' Advocacy groups (PAGs), citizens’ organizations involved in healthcare issues and, more generally, of all actors that promote health as a common good. This is the message that came to light during the European conference of the 15th European Patients’ Rights Day, which started today and will end tomorrow, involving more than 150 civic society representatives from across Europe, members of the European Institutions and key stakeholders.
The event is promoted by Active Citizenship Network, the European branch of the Italian non profit organization Cittadinanzattiva. and has been realized thanks to the unconditional support of: F. Hoffmann-La Roche LTD, Teva Europe, Boehringer Ingelheim International GmbH and Viatris.
Rome, 15February 2021
Civil society organizations, together with European Institutions to contribute to the achievement of the Sustainable Development Goals (SDGs): this is the main message of the new political initiative that will be launched at the European level, tomorrow, the 16th February, in the occasion of the conference “Making sustainability an easy choice for EU citizens”.
Promoted by Cittadinanzattiva – through its European branch Active Citizenship Network (ACN) – by the European Consumers Union association (ECU) and by the Italian Alliance for Sustainable Development (ASviS), theInter-Institutional Group “SDG’s for well-being and consumers’ protection” is currently supported by eight Members of the European Parliament (MEPs) from different countries and political groups: Nikos Androulakis (Greece – S&D); Tanja Fajon (Slovenia – S&D); Jose Gusmão (Portugal – GUE/NGL); Aldo Patriciello (Italy – EPP); Sabrina Pignedoli (Italy – NI); Giuliano Pisapia (Italy – S&D); Marcos Ros Sempere (Spain - S&D); Patrizia Toia (Italy – S&D).
Brussels, 19 November 2020
Antimicrobial resistance: one of the ten most urgent threats for the Global Health but totally underestimated among the populations; more dangerous than car accidents & cancer but not enough prioritized in the EU and National public health policies. Interlinked with Covid-19 pandemic but almost ignored by the media. The world is losing its most powerful tool in healthcare: antibiotics. By 2050 super bacteria could cause 350 million of deaths and meantime research is still waiting for EU incentive mechanisms as well as an overall strategy to integrate the development of - and access to - affordable and quality antimicrobials.
Despite the fight against AMR requires policies focused on the prevention and extension of vaccinations, the health expenditure for prevention programmes are the “Cinderella” of the public health budget.
“We were not born to suffer": this is the name of the campaign launched today by Cittadinanzattiva, ten years after the law 38/2010 which regulates access to palliative care and pain therapy and which puts our country in a leading position for citizens' rights.
4 best practices activities have been awarded today in Brussels, thanks to the second edition of the “EU Civic prize on Chronic Pain”, promoted by the Italian NGO Active Citizenship Network-Cittadinanzattiva during the annual symposium on the “Societal Impact of Pain” (SIP).
Active Citizenship Network (ACN) launched the project ”EU Civic Prize on Chronic Pain - Collecting good practices” to give evidence of the existing good practices in Europe in terms of struggle against pain, and based on the selection of the practices presented by different healthcare stakeholders. The prize provided an occasion for demonstrating what the community can offer in terms of good practices as well as sharing experiences useful for raising awareness about the condition, enhancing the body of knowledge of positive cases and success, and strengthening commitment on this topic. Throughout 2018 and 2019, this initiative has allowed us to collect 40 Good Practices coming from 12 different countries: Spain (13), Italy (10), Portugal (5) Belgium (3), France (2), Malta (1), Sweden (1), Germany (1), The Netherlands (1), Ireland (1), UK (1), and an extra EU country (1 from the Dominican Republic).