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The "Societal Impact of Pain" (SIP) is an international platform created in 2009 as a joint initiative of the European Pain Federation EFIC® and the pharmaceutical company Grünenthal GmbH and aims for:
Improve the awareness on the importance of vaccination across Europe Project
Leaders and activists engaged in social, civic and patients associations, parents, teachers, health workers, bloggers and popularizers: everyone can commit to disseminate correct scientific information, ready to defend the importance of vaccination from the wave of misinformation that is being spreading for some years.
Delivering patient value throughout the healthcare system.
A Debate on citizens' expectations.
9th April 2019 - European Parliament, Brussels
At the occasion of the XIII European Patients' Rights Day, on the 9th of April 2019, a selection of candidates MEP for the new EU Parliament – representing different Countries and 4 different political Groups - have been invited to discuss different priority topics linked to healthcare policies at EU level, including health promotion & disease prevention, the value of and access to innovation.
Delivering patient value throughout the healthcare system.
Focus on Digital Health and Personalized Medicine.
10th April 2019 - European Parliament, Brussels
To continue the celebrations of the XIII European Patients' Rights Day, on the 10th of April has been held an event dedicated to Digital Health and Personalized Medicine. The aim was to go into a topic related to several Patients’ Rights listed in the in the EU Charter of Patients’ Rights: the right to preventive measures (1st), the right to the observance of quality standards (8th), the right to safety (9th), the right to innovation (10th).
4-5 February 2019
Brussels
Background
Patient safety is the reduction of risk of unnecessary harm associated with health care to an acceptable minimum. An acceptable minimum refers to the collective notions of current knowledge, resources available and the context in which care was delivered and weighed against the risk of non-treatment or alternative treatment (WHO 2004).
In line with our increasing cooperation for a the better access to healthcare across Europe and in the field of patients' rights, starting from the Patients’ Right of Access, the Patients’ Right to Innovation and the Patients’ Right to Personalized Treatment, Active Citizenship Network has decided to co-organize the "Value added medicines dialogue" a workshop at European level on the 20 of November in Brussels.
The purpose of this initiative is to provide for a selected number of leaders of patients’ organizations and advocacy groups across Europe an updated overview about the option of the value added medicines, to know more about the incremental innovation in drugs and to facilitate an exchange views on key policy developments related to value added medicines.
What we are talking about? What is a value added medicine? What type of improvements can they deliver? What benefits will value added medicines bring to patients and healthcare professionals? What are their benefits for the healthcare community? Why are value added medicines important for patients?
To know more about value added medicines, click here
Active Citizenship Network launched the second edition of the bi- annual research-project at the European level “EU Civic Prize on Chronic Pain - Collection of good practices” with the aim to highlight existing good practices in several European countries in terms of struggle against pain.
In particular, this second edition allows us to expand the “agora” of operators of good practices on pain, encouraging the exchange of experiences among health professionals, healthcare providers, Institutions, civic associations and patient advocacy groups.
Action plan to improve the awareness on vaccine benefit across Europe
Active Citizenship Network strongly believe that vaccination is a right and an extraordinary tool of public health, which must be known, valued, spread and used in the interests of individuals and the community. However, it is necessary to work and contribute to a proper vaccine culture. In addition, it is necessary to ensure rigor and transparency, in order to recover confidence in science.
Therapeutic adherence: value the impact for patients and healthcare system
23 May 2018
Active Citizenship Network celebrated the 12th European Patients’ Rights Day with a conference, held on the 23rd May 2018 in the European Parliament in Brussels. The event was an occasion to foster communication among different partners/actors in the healing and caring process to improve adherence to treatments and take commitments to increase the respect of patients’ rights and their involvement as fundamental active partners with health professionals in their own care, respecting the fundamental values recognised by the European Charter of Patients’ Rights.
What are the informative needs and doubts, the unspoken requests and all the elements that somehow can impede the complete adherence to therapies, in particular with regard to chronic conditions? How the key role of civic and patient organisations in empowering patients and their families can be enhanced?
24 January 2018
10:00 - 12:00
ASP A3F38310, European Parliament, Brussels
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
