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In line with our increasing cooperation for a the better access to healthcare across Europe and in the field of patients' rights, starting from the Patients’ Right of Access, the Patients’ Right to Innovation and the Patients’ Right to Personalized Treatment, Active Citizenship Network has decided to co-organize the "Value added medicines dialogue" a workshop at European level on the 20 of November in Brussels.
The purpose of this initiative is to provide for a selected number of leaders of patients’ organizations and advocacy groups across Europe an updated overview about the option of the value added medicines, to know more about the incremental innovation in drugs and to facilitate an exchange views on key policy developments related to value added medicines.
What we are talking about? What is a value added medicine? What type of improvements can they deliver? What benefits will value added medicines bring to patients and healthcare professionals? What are their benefits for the healthcare community? Why are value added medicines important for patients?
To know more about value added medicines, click here
Active Citizenship Network launched the second edition of the bi- annual research-project at the European level “EU Civic Prize on Chronic Pain - Collection of good practices” with the aim to highlight existing good practices in several European countries in terms of struggle against pain.
In particular, this second edition allows us to expand the “agora” of operators of good practices on pain, encouraging the exchange of experiences among health professionals, healthcare providers, Institutions, civic associations and patient advocacy groups.
Action plan to improve the awareness on vaccine benefit across Europe
Active Citizenship Network strongly believe that vaccination is a right and an extraordinary tool of public health, which must be known, valued, spread and used in the interests of individuals and the community. However, it is necessary to work and contribute to a proper vaccine culture. In addition, it is necessary to ensure rigor and transparency, in order to recover confidence in science.
Therapeutic adherence: value the impact for patients and healthcare system
23 May 2018
Active Citizenship Network celebrated the 12th European Patients’ Rights Day with a conference, held on the 23rd May 2018 in the European Parliament in Brussels. The event was an occasion to foster communication among different partners/actors in the healing and caring process to improve adherence to treatments and take commitments to increase the respect of patients’ rights and their involvement as fundamental active partners with health professionals in their own care, respecting the fundamental values recognised by the European Charter of Patients’ Rights.
What are the informative needs and doubts, the unspoken requests and all the elements that somehow can impede the complete adherence to therapies, in particular with regard to chronic conditions? How the key role of civic and patient organisations in empowering patients and their families can be enhanced?
24 January 2018
10:00 - 12:00
ASP A3F38310, European Parliament, Brussels
To celebrate the 10th Anniversary of the European Patients’ Rights Day, Active Citizenship Network has decided to organize a widespread campaign in 2016 in cooperation with some of the national patient associations involved in its network.
Framework
Patients want to access cross-border health services when treatment is not available in their home country, when it is managed better elsewhere, or, as in the case of many border areas, when the nearest available care is in another Member State. Currently, cross-border healthcare accounts for approximately 1% of the overall EU public health spending – around €10 billion per year. Read more
Active Citizenship Network celebrated the 11th European Patients’ Rights Day with a multi-stakeholder conference, held on the 10 May 2017 in Brussels.
The aim of the convention was to discuss, inform and suggest new approaches to the existing European and national medicines regulatory systems, for better management of access to innovation. Indeed, the access to innovative therapies strongly contributes to define the quality of life of patients and the quality of healthcare services provided, respecting the fundamental values recognised by the European Charter of Patients’ Rights. The event was an occasion to inform, discuss and take commitments to improve the respect of patients’ rights and their involvement in the policy-making and regulatory processes at national and European level.
10th European Patients’ Rights Day
Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care
The 2016 European conference of the European Patients’ Rights Day focused on the fight against waste and inefficiency in healthcare systems in Europe and on the best practices to increase the efficacy and the quality of patient care.
It has been held on Wednesday, May 4th in Brussels at the European Parliament co-hosted by MEP David Borrelli, co-Chair of the EFDD Group and MEP Pier Nicola Pedicini, EFDD ENVI Committee Coordinator. The participants were leaders of civic and patient organizations coming from 25 Countries, some of them outside the European Union, such us Albania, Russia, Macedonia, Switzerland. With them, many representatives and leaders of 18 networks at EU level, professionals and experts, companies and providers, public relation agencies and other relevant stakeholders.
During the conference has been analyzed what has been done and what is been doing about it all around Europe and what is the role and the contribution of public and private sectors on it, as well as the ones of the civic society and patient organizations. It has been be also distributed the report of the European research carried out to find the good practices in this context. Some of the gathered good practices were showed and discussed.
EU Project funded by EuropeAid Cypriot Civil Society in Action V.
Patients’ Voice Project was the first European Union-funded project, implemented by the Universal Patient Rights Association (UPRA), that wanted to help promote and advocate for patients' rights in Northern Cyprus. It was a partnership project between UPRA and Active Citizenship Network intending to strengthen the integrity and dignity of patients in compliance with fundamental human rights, enhance the patients' quality of life in the Turkish Cypriot community, and decrease patients' rights violations in the Turkish Cypriot Community.
PolART Circle questions politics through creation. On a European scale, it offered a platform involving different partners, including artistic companies, citizens' NGOs, youth integration associations and universities.
Cittadinanzattiva APS
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via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
1000 Brussels - Belgium
