To celebrate the 10th Anniversary of the European Patients’ Rights Day, Active Citizenship Network has decided to organize a widespread campaign in 2016 in cooperation with some of the national patient associations involved in its network.
Patients want to access cross-border health services when treatment is not available in their home country, when it is managed better elsewhere, or, as in the case of many border areas, when the nearest available care is in another Member State. Currently, cross-border healthcare accounts for approximately 1% of the overall EU public health spending – around €10 billion per year. Read more
Active Citizenship Network celebrated the 11th European Patients’ Rights Day with a multi-stakeholder conference, held on the 10 May 2017 in Brussels.
The aim of the convention was to discuss, inform and suggest new approaches to the existing European and national medicines regulatory systems, for better management of access to innovation. Indeed, the access to innovative therapies strongly contributes to define the quality of life of patients and the quality of healthcare services provided, respecting the fundamental values recognised by the European Charter of Patients’ Rights. The event was an occasion to inform, discuss and take commitments to improve the respect of patients’ rights and their involvement in the policy-making and regulatory processes at national and European level.
10th European Patients’ Rights Day
Reducing waste and inefficiency in the healthcare systems, increasing quality of patient care
The 2016 European conference of the European Patients’ Rights Day focused on the fight against waste and inefficiency in healthcare systems in Europe and on the best practices to increase the efficacy and the quality of patient care.
It has been held on Wednesday, May 4th in Brussels at the European Parliament co-hosted by MEP David Borrelli, co-Chair of the EFDD Group and MEP Pier Nicola Pedicini, EFDD ENVI Committee Coordinator. The participants were leaders of civic and patient organizations coming from 25 Countries, some of them outside the European Union, such us Albania, Russia, Macedonia, Switzerland. With them, many representatives and leaders of 18 networks at EU level, professionals and experts, companies and providers, public relation agencies and other relevant stakeholders.
During the conference has been analyzed what has been done and what is been doing about it all around Europe and what is the role and the contribution of public and private sectors on it, as well as the ones of the civic society and patient organizations. It has been be also distributed the report of the European research carried out to find the good practices in this context. Some of the gathered good practices were showed and discussed.
EU Project funded by EuropeAid Cypriot Civil Society in Action V.
Patients’ Voice Project was the first European Union-funded project, implemented by the Universal Patient Rights Association (UPRA), that wanted to help promote and advocate for patients' rights in Northern Cyprus. It was a partnership project between UPRA and Active Citizenship Network intending to strengthen the integrity and dignity of patients in compliance with fundamental human rights, enhance the patients' quality of life in the Turkish Cypriot community, and decrease patients' rights violations in the Turkish Cypriot Community.
In 2015, Active Citizenship Network wants to start a research-project at the European level with the aim to give evidence on existing good practices in several European countries in terms of struggle against pain.
In particular, the research allows us to give continuity - expanding it with some specificity – to the investigation for good practices in the struggle against pain started by ACN in 2012.
12 May 2015
European Parliament, rue RueWiertz 60,
Active Citizenship Network (ACN) has decided to dedicate the 9th celebration of the European Patients’ Rights Day 2015 (launched by ACN in 2003) to the sustainability of healthcare systems focusing on what concerns chronic diseases.
Chronic diseases represent the major share of the burden of disease in Europe and are responsible for 86% of all deaths. They affect more than 80% of people aged over 65 and represent a major challenge for health and social systems. An estimated € 700 billion per year (it means 70 to 80% of overall EU health care budgets) are spent on chronic diseases in the European Union. Moreover, we need to keep in mind the increasing demands for expensive medical technology that are made by a society that is ageing rapidly. In this context, the sustainability of our health and social systems is at stake. It is crucial to find new ways of investing in sustainable health systems, moving beyond limiting expenditure to addressing the demand for health and social services, much of which is related to chronic diseases.
ENS4Care, funded by the European Union, under the CIP-ICT-PSP-07 Framework Programme.
At a national and European level, the project coordinated citizens' involvement with public authorities in nine European countries to increase citizen initiatives' impact on the policy-making process in the EU. It was the extension of the EU Project "Joint Citizen Action for a Stronger, Citizen-Friendly Union (JoiEU)".
The commitment against unnecessary pain is going to enter in the European Agenda of Health policy. A lot of data have been collected by scientists' society, private companies and governments, etc. about the diffusion of chronic pain and its societal and economical impact. New laws, as the Italian one, have proposed innovative contents to put in practice.
At the same time the willing of patients' organizations to have an even more active role in the commitment for reducing pain and in the promotion of a new policy on pain relief is growing. Recently, it was founded a new coalition of patients' and citizens' organizations, named PAE (Pain Alliance Europe), with the mission to represent the point of view of patients in the European pain policies.