A Project to Facilitate the Access to Clinical Trial Data and to Manage its Reuse
The current fragmentation of clinical data in separate repositories makes the return and reuse of clinical trial data particularly complex and challenging.
The IMI project FACILITATE aims to develop an innovative process for the return and reuse of data within an ethical legal framework compliant with the General Data Protection Regulation (GDPR) and recognized as:
How can participatory consensus building contribute to effective collaboration on policy options to tackle medical deserts? During an upcoming webinar on January 27th, the partners of the Action for Health and Equity: Addressing medical Deserts (AHEAD) will share their experience with applying AHEAD’s participatory consensus building methodology in workshop sessions with stakeholders in areas affected by medical deserts in Italy, Moldova, the Netherlands, Romania and Serbia.
It is known from literature that successful implementation of health workforce policies requires strong inter-sectoral governance and consensus building among the different stakeholders involved. The AHEAD partners therefore held sessions with local and national level stakeholders in their countries, applying the methodology to increase the chances of identifying locally owned and sustainable policy solutions to counteract medical deserts and related health workforce challenges.
The Director of Active Citizen Network (ACN) has been invited as a speaker in occasion of the training session focused on antimicrobial resistance organized by Malta Health Network, historical partner of ACN, and supported by the Malta Medicines Authority. For furterh information, click here.
Why are those living in poverty less likely to be vaccinated? Business Fights Poverty is working with MSD to better understand the links between immunisation and poverty in 5 European countries: France, Spain, Italy, Germany and the UK. Active Citizenship has been invited in the panel. To know more about the live written panel discussion to explore how we can advance #VaccineEquity in Europe at 3pm GMT for free, click here.
Register here! (registration is free but mandatory)
Cittadinanzattiva, through its EU branch Active Citizenship Network (ACN), is glad to invite you to the national event “Health needs in inner areas, between medical desertification and NRRP”, which will be held in Rome at the European Commission Representation in Italy - via Quattro Novembre 149 - on January 19th, 2023 from 10:00 to 13:00 CET. The initiative is part of the EU project “Action for Health and Equity: Addressing medical Deserts” (AHEAD), which aims to reduce health inequalities by addressing the challenge of medical deserts and medical desertification in Europe. “A medical desert is the end point of a complex process called ‘medical desertification’, that implies continuous and increasing inability of a given population to access health services in a timely and contextually relevant manner” as defined through the AHEAD project activities.
Active Citizenship Network has been officially invited to participate to the “One Year of HERA” Conference, taking place in person in Brussels on 8 December 2022. The Conference is the first occasion to gather actors from the institutional EU governance networks and also from industry, research, academia, civil society, national/local/regional authorities, key international organisations, partner countries as well as many other stakeholders to discuss on innovative medical solutions to address cross-border health threats, resilient supply of medical countermeasures and international collaborations in preparedness and response to cross-border health. To know more, click here.
JOIN OUR EVENT ON ADULT VACCINATION AT THE EU PARLIAMENT! Registration link (registration is free but mandatory)
Active Citizenship Network (ACN), is glad to invite you to the next EU Webinar: “Waiting for the next Council conclusions: focus on adult vaccination” on the 6th December 2022 from 14:30 – 16:00 CET. EU health Ministers will meet later this year, under the Czech Presidency of the European Council, to discuss the European institutions' commitment to the vaccination policy. The Expert Meeting on Vaccinations, which will be held in Prague on 21 and 22 November, is an excellent opportunity to ensure that vaccines are seen as a lifelong saving rather than a cost. There is a clear need to consider lifelong vaccination in these policy discussions and we appealed to Eu institutions to support the need to prioritise adult vaccination to help ensure the protection of the most vulnerable and reduce the burden on healthcare systems. Our multi-stakeholder online event, hosted by the MEPs Interest Group "European Patients' Rights & CrossBorder Healthcare, is intended to be a moment of reflection to observe and discuss the outcome of the situation, also on the basis of the documents that will come out of the expert meeting on 21-22.
Active Citizenship network has been invited to speak in the session dedicated to Promoting Life Course Vaccination Strategies as the Basis of Health Systems Resilience Across Europe. It is one of the 5 Vaccine Working Groups taking place on Thursday 1st and Friday 2nd December in Amsterdam and online, in the framework of the Excellence in Pediatrics Annual conference.
The Societal Impact of Pain (SIP) is currently focusing on ICD-11 (International Classification of diseases), and as part of its activities in 2022, it’s revisiting the SIP Road Map Monitor. The results from the SIP Road Map Monitor 2022 will officially be launched at this event. To register, click here.
Since 2022, Cittadinanzattiva/Active Citizenship Network was officially appointed by the EU Commission as a member of the HERA Civil Society Forum, the expert group of the HERA Advisory Forum, led by the European Health Emergency preparedness and Response Authority (HERA). The second meeting of the HERA Civil Society Forum which will take place at the Albert Borchette Conference Center, Rue Froissart 36, Brussels, on the 28 November 2022 in the afternoon. A hybrid connection option is available for the member cannot join in person. To know more, click here.