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Also this year, the Director of ACN has been invited to the annual COLLABORATE Rare Disease Multistakeholder Summit, an unique initiative putting together patients, patient advocacy groups (PAGs), caregivers, healthcare professionals (HCPs) and policy experts to discuss how to drive change in adult-onset rare disease. Download the COLLABORATE expert consensus paper “Challenges & Opportunities in Adult-Onset Rare Diseases: Perspectives from a Global Multi-Stakeholder Expert Group”, realized also with the contribution of ACN. To know more about the past edition, click here.
In continuity with his engagement along 2023, the Director of Active Citizenship Network has been invited to join the in-person EU workshop titled “Elevating the European Migraine Action Plan in the New EU Policy Mandate” focused on the “EU Migraine Action Plan”, togheter with representatives from the European Migraine and Headache Alliance (EMHA), GAMIAN-Europe, European Federation of Neurological Associations, The Migraine Trust (UK), Hooffdstuk (BE), MIGRA (PT), Alleanza Cefalalgici-Al.Ce. (IT), and La Voix des Migraineux (FR).
EU workshop
15 October 2024
In recent years, respiratory diseases have become one of the most significant health challenges of the modern world. Even before the COVID-19 pandemic, the World Health Organization (WHO) highlighted this urgent health issue and called for long-term strategies to combat these diseases. Respiratory diseases are among the most common reasons for adult hospitalization, contributing to substantial direct treatment costs.
On the occasion of the Hungarian presidency of the Council of the European Union, the Association of Innovative Pharmaceutical Manufacturers of Hungary (AIPM) and Vaccines Europe organized a joint international vaccines conference focusing on lifelong immunisation and pharmaceutical immunisation. The Director of Active Citizenship network has been invited as a speaker and to participate in the roundtable discussion on life-long immunization alongside other distinguished professionals. To download his presentation, click here. Download the programme. To know more, click here.
EU workshop
Brussels, 14 October 2024 | 14:30 – 19:00
Coronavirus disease (COVID-19) has had a major economic, health and social impact across the countries of the WHO European Region, affecting hundreds of millions of people. Although the acute phase of the pandemic has been overcome, COVID-19 has left its burden on health systems; high rates of burnout and COVID-19-related illnesses among health care workers have caused workforce dropouts, exacerbating staff shortages, increasing waiting times for patients to access services, and requiring health services to treat those who experience persistent symptoms after acute infection. These mid- and long-term disabling symptoms are collectively known as the post COVID-19 condition (PCC) or, commonly, long COVID. WHO defines this condition as the continuation or development of new symptoms three months after the initial severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, with symptoms lasting for at least two months without other explanation. According to the recent WHO Report “Service delivery models for people with post COVID-19 conditions in selected European countries: summary report”, PCC can present with a range of symptoms and more than 200 of them have been reported in the literature: what are the most common symptoms and how to recognize them? Who to refer to?
Save the Date and Register!
BioReCer, in partnership with ACN, announces the Italian Stakeholder Meeting on 2 October 2024, following the successful Swedish event in June 2024. This event welcomes consumer associations, authorities, industries, and other stakeholders to participate either in Milan or online.
On behalf of the Horizon Europe project PROPHET, in which Cittadinanzattiva-ACN is a partner, we are pleased to invite you to the Stakeholder Session workshop on 1 October 2024, from 13:30 to 17:30 in Stockholm or online.
About PROPHET: PROPHET aims to design a Strategic Research Innovation Agenda (SRIA) for adopting Personalized Prevention approaches in EU health systems. This session will gather inputs from external stakeholders on the first draft of this Strategic Agenda.
Invited by ACN official partner, the International Federation on Ageing (IFA), the Director of Active Citizenship Network was involved in the in-person EU workshop “Informing National Adult Immunization Strategies and Action”. Download his presentation.
The workshop aimed to leverage the work of experts, organizations, and government at a national level to develop a targeted approach to immunization policy, in consideration of country-specific context, policies, programs and attitudes towards immunization, with a specific focus on France and Germany.
The Director of Active Citizenship network has been invited as a speaker at the EuGMS Congress in the session “Impact and strengths of coalition partnerships to increase vaccination coverage rates”, organized by ESWI together with the European Geriatric Medicine Society (EUGMS).
To download his presentation, click here.
The goal is to showcase the advantages of a multi stakeholder coalition to overcome challenges and to achieve tangible results in the area of (life-course) vaccination. Read more
At the International Conference on Digital Health Literacy, the European Health Charter, a set of recommendations and guidelines on digital health literacy, will be presented. The aim of the Charter is to implement good and correct digital health information in schools and other settings.
The event will be attended by the winners of the national communication campaigns, who will present their projects on the topic. The event will be held on 17 July from 15:00 in Brussels (Sala Artemisia, Mundo Madou, Av. des Arts 7/8).
Click here for free registration.
The initiative is part of the European project BLISS - Boosting health LIteracy for School Students, of which Cittadinanzattiva is leader. OBESSU is organising the final international conference, bringing together a range of stakeholders in digital health literacy and civic engagement.
Click here to see all the communication campaigns that participated in the competition.
Cittadinanzattiva APS
p.iva: 02142701008
via Imera, 2
00183 Roma
Tel: (+39) 06.36.71.81
Fax: (+39) 06.36.71.83.33
Rue Philippe Le Bon, 46
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